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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Is Anyone Using Ocrevus As Their Med?

Is Anyone Using Ocrevus As Their Med?

My doc is suggesting it but I'm nervous about the side effects [breast cancer]. I looked at the Ocrevus website and things look positive there -- I was interested in "real life" feedback

posted March 30, 2019
A MyMSTeam Member

I have been on Ocrevus for 18 months now. So I have had three infusions. The day of the infusion is stressful and exhausting. However the next day is great. Then the day after that I seem to crash and burn for about a week. It’s really hard to say if it is working. But according to my MRI’s, no new development has happened. I have had MS for 20 years. I am starting to believe that what I experience now is just the progression of the disease. As you know all they can do is slow it down at this time. I know everyone’s body reacts different to different medications. I do like the fact that it is only once every six months. I wish you luck.

posted April 6, 2019
A MyMSTeam Member

I have been fighting my insurance to approve Ocrevus for 6 months. The denial was just overturned. I’m ready and had concerns myself. When they lower your immune system it does raise your chances for things like cancer. My husband gets Remicade infusions for Chrons disease, 10 years now. Its the same type of risk. So ive been through this decision before. Its worth it, i hope. Good luck!!

posted April 6, 2019
A MyMSTeam Member

There are numerous Ocrevus groups that you can join on Facebook.

posted March 31, 2019
A MyMSTeam Member

I have been on many Meds in My 30 years of fighting the MonSter. Most were Injectables, but they had Severe sideaffect. But Now, a Med that is given in a Hospital setting could not be too bad, considering I would be in the Right place if there Were...

So having Ocrevus given at the Hospital is the way to go. Now, that was 3 years and 7 Infusions ago. This has been the best route.

It is started in 1/2 Doses, to see how Your Body handles it, the full doses from there. And the Energy I have received from them is Exciting! Being aware and being able to communicate My thoughts is a Benefit (Now to running My 5 Miles a day, but Not yet!)

So, Walking has improved (a bit anyway), and speaking to You is a Great Relief!
I used to talk all the time (an Operator for Communitions Co.), but was loosing that fora time, but is back in full!

It is Not the 'Cure' we all look forward to, but a step in the Correct direction. So this Med will just make You a bit Better!

Caio for Now!
Michael

PS, I don't have any feedback on the Cancer question, Sorry! But I can't see this as a Bad!

posted March 30, 2019
A MyMSTeam Member

Of course you're nervous. That is big stuff. How are you dealing with it? Plenty of support? Trust God as you go through this. You are a warrior.
We are all here with support and prayers.

posted March 30, 2019

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