The one constant with MS is there is NO CONSTANT!!! While we have some symptoms in common, no two people experience MS the same way. To that end, it drives me batty when I meet people who know someone (a cousin, wife's sister, friend of a friend, man down the street) who was diagnosed X years ago and "is just fine." "Don't worry about it, she doesn't feel anything." Or "God only gives you what you can handle." or "If you pray more it will be better."
I hate when people assume that your case… read more
I am not the person I was, my body doesn't work in the same way. Do I give in, or fight, and learn to use my new body?
We have to learn our bodies like a baby learns the world, how do we walk and talk, how do we move and think? Babies don't grow by sitting still and waiting, we can't afford to either.
The person we were physically may have gone, so be the best New Person and push forwards.
◦You don’t look sick
◦You shouldn’t drink diet coke
◦OMG this diet cures MS
◦OMG this vitamin will leave you symptom free
◦Aren’t you gluten free? … You should be
◦Aren’t you too healthy looking to have MS
◦Try this herb; it helped my cousin’s uncles’ sister’s friend who has MS
◦Well aren’t you taking your meds?? (Yes….) Then why is your MS bothering you still
◦Are you contagious
◦You shouldn’t eat meat…
◦What did you do to get MS?
◦How DID you get that? You must’ve had mono
◦If the heat… read more
So we all know that MS sucks, but is there anything good that it brought into your life? For me I've finally learned to enjoy life, smell the roses, and not to sweat the small stuff.
It is worth planning a walking exercise where you walk only a short distance on day 1, concentrating on each and every step, even if you need sticks or a frame as an aid, then build a bit more into the walk, a bit further each day, to 'recondition' your leg muscles. Resting to restore....
I am feeling so weak by the afternoon. I feel like I need to lay down always. I'm trying to get enough sleep and walking 30 min a day. Its just seems to be getting worse.
I have seen so many posts concerning misdiagnosis and delayed diagnosis. This is stopping us from having appropriate medical treatment such as DMT, FES and suitable medications to alleviate pain etc. How can we help the medical profession get to the right answer quicker?
I was lucky to get a diagnosis in 5 weeks, but have seen friends and many of you waiting 7 years or longer, with what appear to be very recognisable symptoms
How do you handle stress? I find that if I am upset either a person or situation my arms and legs begin to feel like spaghetti, I feel weak and uncoordinated and sometimes "blow my stack" because I can't concentrate or control my emotions.
When asked, I tell people that it is a disease that causes my immune system to go haywire. Because the Immune System is confused, it attacks my Central Nervous System. When this occurs, it causes damage to the sheath around the nerve(s). Then I ask them to think of in terms of electrical wire that has the rubber coating over it. If the coating of the wire is damaged, it can cause the wire to short out. It's the same thing. They get it every time!
We all know we often stagger around like a drunk at times. Coming into summer season with checkpoints set up in various states at various times, how would you tell an officer that you cannot take the drunk driver test, other than a breathalyzer. Or do you ask for the breathalyzer? Just curious.
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