Multiple Sclerosis
Questions + Answers
Does any one get agitated over small things?
I get real agitated more now then I ever have it seams to hit bad when I get hot or when I get out for the day around big group's of people.
Stupid things people say to you (when they hear you have MS)...
The one constant with MS is there is NO CONSTANT!!! While we have some symptoms in common, no two people experience MS the same way. To that end, it drives me batty when I meet people who know (a cousin, wife's sister, friend of a friend, man down the street) who was diagnosed X years ago and "is just fine." "Don't worry about it, she doesn't feel anything." Or "God only gives you what you can handle." or "If you pray more it will be better."… read more
Perks
So we all know that MS sucks, but is there anything good that it brought into your life? For me I've finally learned to enjoy life, smell the roses, and not to sweat the small stuff.
I believe it makes all of us appreciate life more in a different way, and to look at things in life different and to not care so much about the… read more
How many of these apply to you? Found on MultipleSclerosis.net, MS & Things People Should NOT Say
You don’t look sick
You shouldn’t drink diet coke
OMG this diet cures MS
OMG this vitamin will leave you symptom free
Aren’t you gluten free? … You should be
Aren’t you too healthy looking to have MS
Try this herb; it helped my cousin’s uncles’ sister’s friend who has MS
Well aren’t you taking your meds?? (Yes….) Then why is your MS bothering you still?
Are you contagious?
You shouldn’t eat meat…
What did you do… read more
Oh yes, I hear just about all of those!! At least 3 times a week. Also I get, " DO you really need that oxygen?!!!!. Yea I love these 2 prongs in my… read more
Does stress cause your MS symptoms to get worse?
How do you handle stress? I find that if I am upset either a person or situation my arms and legs begin to feel like spaghetti, I feel weak and uncoordinated and sometimes "blow my stack" because I can't concentrate or control my emotions.
MS versus a DUI
We all know we often stagger around like a drunk at times. Coming into summer season with checkpoints set up in various states at various times, how would you tell an officer that you cannot take the drunk driver test, other than a breathalyzer. Or do you ask for the breathalyzer? Just curious.
How do you describe Multiple Sclerosis to others?
When asked, I tell people that it is a disease that causes my immune system to go haywire. Because the Immune System is confused, it attacks my Central Nervous System. When this occurs, it causes damage to the sheath around the nerve(s). Then I ask them to think of in terms of electrical wire that has the rubber coating over it. If the coating of the wire is damaged, it can cause the wire to short out. It's the same thing. They get it every time!
Ocrevus
Just finished my first dose of Ocrevus. First dose is split into two sessions, two weeks apart. My second will be in November, 6 months after the first. So far, I haven't had any noticeable side effects other than exhaustion. That is subsiding each day ....
If you are considering this drug, please keep in mind the purpose of this drug is to halt the progression of MS. You will no doubt read about symptoms getting better. I have so many symptoms, time will tell. Although I have noticed, my brain fog is… read more
What’s the best advice you’ve received from someone else living with MS?
@A MyMSTeam Member; you are so sweet and yes I do;Trillions of us: Lol enjoy your Day
I need help with my fatigue. What is there to help
I am feeling so weak by the afternoon. I feel like I need to lay down always. I'm trying to get enough sleep and walking 30 min a day. Its just seems to be getting worse.
My doc started me on Adderal, it’s been very helpful.
