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Stupid Things People Say To You (when They Hear You Have MS)...

Stupid Things People Say To You (when They Hear You Have MS)...

The one constant with MS is there is NO CONSTANT!!! While we have some symptoms in common, no two people experience MS the same way. To that end, it drives me batty when I meet people who know someone (a cousin, wife's sister, friend of a friend, man down the street) who was diagnosed X years ago and "is just fine." "Don't worry about it, she doesn't feel anything." Or "God only gives you what you can handle." or "If you pray more it will be better."

I hate when people assume that your case… read more

posted October 27, 2013 (edited)
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A MyMSTeam Member

Understand. Have some of those days also. Dear friends, even my sister doesn’t understand
The loss of who you once were has slowly diminished as the years go by
This time last year didn’t use a… read more

posted November 24

Who Is THE NEW ME ?

Who Is THE NEW ME ?

I am not the person I was, my body doesn't work in the same way. Do I give in, or fight, and learn to use my new body?

We have to learn our bodies like a baby learns the world, how do we walk and talk, how do we move and think? Babies don't grow by sitting still and waiting, we can't afford to either.

The person we were physically may have gone, so be the best New Person and push forwards.

posted March 12, 2020 (edited)
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A MyMSTeam Member

thank you for the great hug and here is one for all the rest of you for they do make the day an even better day ....

posted July 11

How Many Of These Apply To You? Found On MultipleSclerosis.net, MS & Things People Should NOT Say

How Many Of These Apply To You? Found On MultipleSclerosis.net, MS & Things People Should NOT Say

◦You don’t look sick
◦You shouldn’t drink diet coke
◦OMG this diet cures MS
◦OMG this vitamin will leave you symptom free
◦Aren’t you gluten free? … You should be
◦Aren’t you too healthy looking to have MS
◦Try this herb; it helped my cousin’s uncles’ sister’s friend who has MS
◦Well aren’t you taking your meds?? (Yes….) Then why is your MS bothering you still
◦Are you contagious
◦You shouldn’t eat meat…
◦What did you do to get MS?
◦How DID you get that? You must’ve had mono
◦If the heat… read more

posted November 6, 2013 (edited)
A MyMSTeam Member

Wow! That is a almost complete list here are a couple I thought of
-You look terrible are feeling ok
-You’ve asked me that question 3X’s
-Just go take a hot shower you’ll feel better
-That’s exactly… read more

posted 2 days ago

Perks

Perks

So we all know that MS sucks, but is there anything good that it brought into your life? For me I've finally learned to enjoy life, smell the roses, and not to sweat the small stuff.

posted August 27, 2013
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A MyMSTeam Member

Finally understanding I need to take care of me for myself and my family. Don't take anything for granted.

posted November 17, 2020 (edited)

Walking To Strength

Walking To Strength

It is worth planning a walking exercise where you walk only a short distance on day 1, concentrating on each and every step, even if you need sticks or a frame as an aid, then build a bit more into the walk, a bit further each day, to 'recondition' your leg muscles. Resting to restore....

posted February 29, 2020
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A MyMSTeam Member

Hi. I have found it definitely helps. I, like many if us, I assume, have weak hip flexor muscles. I actually got an Aklinger to

posted June 24

I Need Help With My Fatigue. What Is There To Help

I Need Help With My Fatigue. What Is There To Help

I am feeling so weak by the afternoon. I feel like I need to lay down always. I'm trying to get enough sleep and walking 30 min a day. Its just seems to be getting worse.

posted March 11, 2018
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A MyMSTeam Member

I take B-12 time released. I think Nature Mde is the brand

posted June 27, 2021

MISDIAGNOSIS

MISDIAGNOSIS

I have seen so many posts concerning misdiagnosis and delayed diagnosis. This is stopping us from having appropriate medical treatment such as DMT, FES and suitable medications to alleviate pain etc. How can we help the medical profession get to the right answer quicker?

I was lucky to get a diagnosis in 5 weeks, but have seen friends and many of you waiting 7 years or longer, with what appear to be very recognisable symptoms

posted August 14, 2019
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A MyMSTeam Member

I had my first severe symptom and hospitalization10 years ago. I was told multiple times that I just needed PT and confirming. I am now in the process of getting officially diagnosed.

posted July 11, 2021

Does Stress Cause Your MS Symptoms To Get Worse?

Does Stress Cause Your MS Symptoms To Get Worse?

How do you handle stress? I find that if I am upset either a person or situation my arms and legs begin to feel like spaghetti, I feel weak and uncoordinated and sometimes "blow my stack" because I can't concentrate or control my emotions.

posted August 31, 2014
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A MyMSTeam Member

Yes! Yes! Yes! We were having a stressful issue with an adult child. Every time the phone would ring, I would start shaking all over. My precious husband muted his phone, and would walk out of the… read more

posted July 7

How Do You Describe Multiple Sclerosis To Others?

How Do You Describe Multiple Sclerosis To Others?

When asked, I tell people that it is a disease that causes my immune system to go haywire. Because the Immune System is confused, it attacks my Central Nervous System. When this occurs, it causes damage to the sheath around the nerve(s). Then I ask them to think of in terms of electrical wire that has the rubber coating over it. If the coating of the wire is damaged, it can cause the wire to short out. It's the same thing. They get it every time!

posted August 10, 2013
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A MyMSTeam Member

My mother board is fried!

posted July 7

MS Versus A DUI

MS Versus A DUI

We all know we often stagger around like a drunk at times. Coming into summer season with checkpoints set up in various states at various times, how would you tell an officer that you cannot take the drunk driver test, other than a breathalyzer. Or do you ask for the breathalyzer? Just curious.

posted June 11, 2013
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A MyMSTeam Member

I would just ask for a breathalyzer or even a blood test after explaining that I have MS. I’m currently in physical therapy for my knee and shoulder, today they had me start balance exercises. I… read more

posted December 9, 2021
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