Multiple Sclerosis

Questions + Answers

Don't see your question? ask question
View:

73 Search Results

1 medium

Cold sores

I was wondering if anyone else that gets cold sores is on antivirals for them?
Lately I’ve been getting them more often and it makes my old ms symptoms reappear. My Dr wants me to take a low dose antiviral for it for the rest of my life.
Has anyone else been out on antivirals long term? Also does it really help a lot?
Thanks

posted 3 months ago
A MyMSTeam Member said:

@KTontherrocks I've had too long, there not coming back to much in the last 8+Yes. I feel you, I hate them.

posted 3 months ago
5 medium

Treatment feedback

Hi guys has anyone ever tried Low dose naltrexone (LDN), if so would really love your feedback thank you

posted 11 days ago
A MyMSTeam Member said:

Yes I've been on it. Not sure if it does anything but people swear by it

posted 5 days ago
5 medium

Who takes gabapentin? Tell me about it and your experience

I wwas trying to not take something that would not cause any fatigue. I don't have much pain at all.
Anyway I've been taking mertazapine for sleep... I think it's causing bad morning fatigue. It's either that or just gilenya and ms fatigue and heat.
The mertazapine is a Low dose and she wants me to alternate mertazapine with gabapentin before bed. I have no experience with taking gabapentin.

edited, originally posted 4 months ago
A MyMSTeam Member said:

@A MyMSTeam Member; I drove over the road for three years , some times a thousand miles a day with a tractor trailer, it never caused me to fall asleep… read more

posted 4 months ago
5 medium

Do any of you take low dose naltrexone (LDN)

I've been taking it for a couple months. At the end of this article he said may need to be cautious if on immune suppressant med.

https://msfocusmagazine.org/Magazine/Magazine-I...

posted 3 months ago
A MyMSTeam Member said:

Kay it's basically not a MS med and it's at such a low dose

posted about 1 month ago
5 medium

Aspirins new study

Aspirin Suppresses MS Symptoms by Preventing Loss of Regulatory T-cells, Mouse Study Shows
DECEMBER 5, 2018 Patricia Inacio, PhDBY PATRICIA INACIO, PHD IN NEWS.
Aspirin Suppresses MS Symptoms by Preventing Loss of Regulatory T-cells, Mouse Study Shows
Aspirin, administered orally at low doses, was sufficient to suppress multiple sclerosis (MS) symptoms in a mouse model of relapsing-remitting MS (RRMS) and chronic MS, a study reports.

The clinical benefits of aspirin were linked to an increase… read more

posted about 1 month ago
A MyMSTeam Member said:

I take low dose 81mg every night.

posted about 1 month ago
1 medium

Lexapro not working anymore ???

I started lexapro a year ago and started at 10mg ,I wasn't diagnosed with ms yet ,they thought it was just fibromyalgia ,I was only 16 so I was put on a low dose ,after I was officially diagnosed with MS I was feeling very down and was put on 20 mg , it hasn't been working in months and I have no motivation to do anything even though I'm on the maximum of leaxapro . Has anyone has a problem similar to this ? Is there any other better antidepressants out there (I tried Prozac but it… read more

posted 4 months ago
A MyMSTeam Member said:

yes I've been having MS since the age of 15, I'm 29 now. Never had a problem with depression until now
. I was thinking it was because of my age . Then… read more

posted 4 months ago
9 medium

Low dose naltrexone. Do you, have you used it? Helped? Hurt? No difference?

Have you used low dose naltrexone? How has it helped you? Kept progression from happening? Helped with symptoms? How long did you take it? Caused any side effects? I’ve read it can help with depression & fatigue. Anyone have that experience? I see not such good information about using it on the national sclerosis society website, like they don’t approve of it? Thank you

posted 7 months ago
A MyMSTeam Member said:

@A MyMSTeam Member much thanks!

posted 7 months ago
5 medium

Psychologist evaluated husband who has MS...says symptoms are all in his mind...not MS.

Husband was military (Army) when the diagnosis was made in 1989 at Ft. Lewis, WA. That unit was disbanded just after Desert Storm started. Medical records were sent to Presidio, CA where he was then pronounced medically retired. All records can't be found. We saw the MRIs back then and he had lesions all over and in his brain too.

Long story short, had MRI of the brain here in Tulsa in June, 2018...only… read more

posted 6 months ago
A MyMSTeam Member said:

I was Military Medical Retired with Multiple sclerosis but uou need to csll around your Records are not Destroy

posted 6 months ago
8 medium

Are there any users of Low-Dose Naltrexone (LDN) out there? What time of evening do you take it? And what time is your normal bedtime?

Are there any users of Low-Dose Naltrexone (LDN) out there? What time of evening do you take it? And what time is your normal bedtime? Your experiences with LDN?Has it helped?

posted about 5 years ago
A MyMSTeam Member said:

@A MyMSTeam Member My story is similar to yours. I had optic neuritis in my left eye. Did the IV steroids. Vision returned, mostly. Then last October, 9… read more

posted over 2 years ago
9 medium

LDN Low Dose Naltrexone Pharmacies

If you take LDN

How do you know when a pharmacy has experience with it?

What accreditation’s do they need?

Where do you get it? Local or mail order compounding pharmacy?

I was told Skips Pharmacy in Florida, then I went to read reviews & it’s been sold to a new owner & it’s bad now-that’s just reviews I read online, I don’t know how good or bad Skips pharm is.
Specifics please

Thanks

edited, originally posted 4 months ago
A MyMSTeam Member said:

Thanks.

posted 3 months ago
Continue with Facebook
Sign up with your email
Already a Member? Log in
×

Welcome back!

Log in to gain access to the thousands of comments being shared on MyMSTeam.

log in
×