Multiple Sclerosis

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4 medium

Does anyone still flush after taking Tecfidera for a long time?

Does anyone still flush after taking Tecfidera for a long time?

I have been on it for 2 years and have started the whole flushing issue again. I eat when I take it (protein, carb, fat) and have taken a low dose aspirin before hand. I will start flushing hours, as much as 8, after I have taken it.

edited, originally posted over 2 years ago
4 mini
A MyMSTeam Member said:

Thank you, OscarsMom! That is a first for me.

posted over 2 years ago
1 medium

Is anyone having good results from Tecifera?

Is anyone having good results from Tecifera?

Looking for some feedback. I was on Copaxone for over five years. I had to switch neurologist and the first thing she did was take me off Copaxone and start be on Tecfidera. I have felt bad since getting off Copaxone. I would like to hear peoples experience with a.) Tecfidera B.) experiences with switching medicine. Is it normal for MS to flare up when going off or starting medications? As for the Tecfidera-I am not a fan. The first week was fine. The second week I did… read more

posted over 2 years ago
1 mini
A MyMSTeam Member said:

I was on it & had bad side affects Couldnt function so I quit

posted over 2 years ago
1 medium

Anyone take low dose Naltrexone (ldn)? I have read good things, but doctor won't prescribe. Just wanting to get feedback from others

Anyone take low dose Naltrexone (ldn)? I have read good things, but doctor won't prescribe. Just wanting to get feedback from others

posted about 5 years ago
1 mini
A MyMSTeam Member said:

I have been taking Ldn for almost 3 years and tried to stop it and after about a week I went back on it because of the pain and fatigue. It helps me… read more

posted about 5 years ago
2 medium

low dose naltrexone

low dose naltrexone

Is anyone taking, or has taken or know someone that has taken LOW DOSE NALTREXONE...and if so, what is the experience with it?

posted almost 6 years ago
2 mini
A MyMSTeam Member said:

@A MyMSTeam Member - Great news about your latest MRI! Thank you!

posted almost 5 years ago
9 medium

Anybody have experience with Low Dose Naltrexone?

Anybody have experience with Low Dose Naltrexone?

My bro recently started after yrs of Copaxone and Rebif (and pretty solid health). Curious what people are saying...

edited, originally posted over 4 years ago
9 mini
A MyMSTeam Member said:

My son had terrible effects with copaxone and rebif. He is now on tecfidera, and has no side effects and has had no new brain lesions

posted over 4 years ago
8 medium

Anyone else on LDN? If so, what is your dosage and how long have you been on it? Has it help you? If so, how?

Anyone else on LDN? If so, what is your dosage and how long have you been on it? Has it help you? If so, how?

posted over 5 years ago
4 mini
A MyMSTeam Member said:

It has now been 5 years since I've been on it and have had no flare ups except one when I stopped using iit for awhilrwhile. There is more testing on it… read more

posted over 3 years ago
8 medium

Trileptal and going off other GABA drugs?

Trileptal and going off other GABA drugs?

I was at first mentioned to by a former psychiatrist and have been discussing with physical medicine doctor now about cutting down and off of baclofen and gabapentin. I'm on pretty low doses already and Trileptal is also a GABA interactive drug. Would it be safe in your opinions to do this? Personally I think it's worth a shot entirely- I'm tired of being a walking poly pharmacy lol. I already take a bunch of supplements and a bigger handful of meds so it would be good to… read more

posted about 3 years ago
1 mini
A MyMSTeam Member said:

How do that help u?

posted about 3 years ago
4 medium

LDN - Low Dose Naltrexone

LDN - Low Dose Naltrexone

Has anyone used LDN Low Dose Naltrexone? If so how has it helped you.

posted over 3 years ago
4 mini
A MyMSTeam Member said:

I used it for one month. I believe it was helping some what. But, was so hard to tell as I was dealing with ankle injury at the same time. The biggest… read more

posted almost 3 years ago
0 medium

Low dose steroids, long term

Low dose steroids, long term

After having another appointment at Queens Square on Tuesday my neurologist wants me to go back on baclofen for my spasticity and also low dose steroids continually. I didn't think it was safe to be on them for long term. I terrified of putting on more weight. Does anyone find the benefit from them?

posted almost 3 years ago
3 mini
A MyMSTeam Member said:

@A MyMSTeam Member, I feel the same way about Lyrica! That's why I try my best to administer the drug very sparingly because I don't wanna gain weight… read more

posted almost 3 years ago
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