I'm being switched over right now. I can't wait to get my starter pack. My neuro said that it's very similar to Tysabri, It's supposed to not only prevent relapses but… read more

posted about 1 year ago

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Not yet but my Avonex isn't working so my neuro is recommending either Tecfidera or Aubagio. I am going to wait on both until they have been FDA-approved for at least… read more

posted about 1 year ago

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I take Glybenia and Amptyra

posted about 1 year ago

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I took that for 6 days, add adverse effects the entire time that finally came to a head. FINALLY got in to see my neuro who said, Why don't we hold the tecfidera. What… read more

posted about 1 year ago

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Yes, this is the reason they call their offices a PRACTICE.....Haha sorry, a little humor never hurt anyone.... Lol

posted about 1 year ago

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I was on it for 5 days and had to come off, but some people are tolerating it really well. A very similar drug was used for 20 years in Germany for psoriasis so there… read more

posted about 1 year ago

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I am on my second week of tecfidera. Little to no side effects. I am so happy with it

posted about 1 year ago

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I am getting ready to start my second week on Saturday. I only had flushing once. But other than that, I am very pleased with it so far. Anything is better than having… read more

posted about 1 year ago

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I am starting week 6 and I am only experiencing some mild flushing at this point. I had a few days of abdominal pain and found that if I take it mid morning (after I… read more

posted about 1 year ago

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First three pills, I experienced flushing or instant sun-burn, as I called it! Lasted 2 hours and faded away. Took next doses with food and no more redness! Took first… read more

posted about 1 year ago

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My Doctor prescribed it but I haven't filled it yet. I am on Avonex pen and although I hated doing the needle every week, the pen is not that bad. I might wait awhile… read more

posted about 1 year ago

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I was taking the compound pharmacy brand from Jan to April but it was causing severe fatigue and stomach problems. I am sure the actual Tecfidera is much better but… read more

posted about 1 year ago

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Before I see my see my neurologist I'm going to make a list of the medications you-all have written about. The only medications I've heard of are Betaseron, Copaxone,… read more

posted about 1 year ago

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Just wanted to say thank you for this post. Copaxone is not working for me anymore. Plus after taking it for six years, it's left bad marks on me at the injection… read more

posted about 1 year ago

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Thank you, Josette, for your post. It never occurred to me to look online...and, obviously, to the NatIonal MS Society website. Actually, I didn't realize they… read more

posted about 1 year ago

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I was in a clinical trial a couple of years ago. my improvement in walking was notable!

posted about 1 year ago

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I haven't seen my DR and won't until October, I am tired of the needles but if my insurance doesn't pay I won't get it

posted about 1 year ago

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What did they use in the clinical trial? Did they tell you?

posted about 1 year ago

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Biogen has a $10 co-pay for Tecfidera, regardless of income. Please look into it. It was a piece of cake to sign up for it.

posted about 1 year ago

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Good morning, I am getting ready to start Tecfidera. I was on Avonex since 1997 and was having some problems with it. So I will let you all know how I do with it once… read more

posted about 1 year ago

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I started Tecfidera about a week ago. I love not taking shots anymore. Being a Type 1 diabetic, one less stick for me is good.

posted about 1 year ago

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I started taking Aubagio, I LOVE IT (so far). I was taking Avonex and it made me so sick everytime. I hated it, my joints hurt and I would stay up at night just… read more

posted about 1 year ago

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Took my second starter dose of Tecfidera this morning. So far so good, only a little nausea. I hope this works, because after several years on Copaxone I developed a… read more

posted about 1 year ago

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I have been on tecfidera for 3 weeks, pretty intense flushing, sweating and stomach pains occasionally. I was concerned but found a tecfidera group on facebook. now I… read more

posted about 1 year ago

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Yes - just completed second week. First week is half dose, second week is full dose. I do have digestive discomfort but nothing at this time that would stop me from… read more

posted about 1 year ago

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i'm on week 2 w/minimal side effects.

posted about 1 year ago

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Starting it tomorrow. Thanks for the comments

posted about 1 year ago

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On week 6 and for me everything is good...no more shot and feeling crappy all weekend. I did have flushing very bad and my whole body looked sun burnt for about 2 hrs… read more

posted about 1 year ago

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I am looking to take some form of oral medication. I am on betaseron have been for about 10 years. Please up date any side affects that you have so I can make a good… read more

posted about 1 year ago

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I think the side affects are different for each person; but I guess that if a large number of people have no problems with a medication, it might be worth a try.

posted about 1 year ago

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I too am in the process of being switched over..in the 2 yrs since my diagnosis I've been on Copaxone and most recently on Rebif (2 different doses) and it was not my… read more

posted about 1 year ago

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I started taking it over a month ago basically after taking everything else this is the end of my rope - I was on Tysbria for 3 years and go the T C virus to get PML… read more

posted about 1 year ago

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took my first dose this morning. My face is flush and my ears felt like they were on fire for about an hour but that's all. So far so good

posted about 1 year ago

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I am suppose to be starting it. I sure pray it helps. Just waiting for all the paperwork process to go through.

posted about 1 year ago

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Thank you all so much for responding to this question. I am soon to start Tecfidera, and have been sweating bullets about side effects. You all have eased my anxiety,… read more

posted about 1 year ago

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I think being part of this group is great support even if you just read all the different responses. I am glad to be part of it.

posted about 1 year ago

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I agree with Josette 100%. All of our bodies are different and you have to find that "cocktail" that is right for you. But it is very helpful to hear what is working… read more

posted about 1 year ago

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Thanks for this post. My neuro is considering this med for me but wants to wait. Don't ask me what he's waiting for but... Are the side effects tolerable? Can you go… read more

posted about 1 year ago

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I worked 1st 3 days on it. Haven't increased dose yet but feel fine

posted about 1 year ago

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Very good to know, I'm in the insurance phase of the process.

posted about 1 year ago

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This is all good to know. Just like going on Tysabri, this scares the crap out of me. I'm not sure about this. And then there's the insurance issue anyway. I won't… read more

posted about 1 year ago

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Well...I started Tecfidera this morning....just waiting to see what affect it has on me...so far so good. Hoping this goes well

posted about 1 year ago

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@llh1600 hope all goes well! I will probably start next week, or the week after. Keep me posted. I'm try ing to learn from everyone

posted about 1 year ago

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I thank God, REALLY for all of you. The amount of support we give each other here is overwhelming. I'm so thankful to be a part of this. God bless you all.

posted about 1 year ago

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Hi Josette. I also was on Tysabri for many years and loved it. Best I ever felt since I was diagnosed in '92. Last year I came down with spinal meningitis and went off… read more

posted about 1 year ago

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I will keep praying for you. Hope to hear more positive news.

posted about 1 year ago

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I started over a month ago. I have been lucky. The first time I did turn into a very orange oompa lumpa. Did not freak out took my baby aspirin and cold shower and was… read more

posted about 1 year ago

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I love Tecfidera but it is affecting my diabetes. I have been experiencing unexplained low blood sugars. I have turned my insulin pump down and it is still happening.… read more

posted about 1 year ago

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@kendall, I have diabetes as well type two. Have you heard of anyone else having low blood sugar on it? Thanks for posting that. It's good to know to watch out for it… read more

posted about 1 year ago

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I'm almost done with week two on Tecfidera. So far the flushing and digestive side effects have been minimal, but I had really bad back pain (in the kidney area) for… read more

posted about 1 year ago

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Just took my first dose of Tec this morning. Have already failed at Rebif and Copaxone but my reent MRI showed active lesions and progression so alas here I go again… read more

posted about 1 year ago

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@susieDuren hope it works for you. I am waiting for my first dosage and I am praying that it works at least 1/2
as good as Tysbri. Keep us posted. Blessings

posted about 1 year ago

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Happy to give updates for sure.. so far had nothing extreme but have only had the first dose so we shall see how I am over time for sure.... am not feeling perfect but… read more

posted about 1 year ago

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Just completing week #2..minimal side affects..I am very pleased with that!! Still keeping an open mind I didn't have issues with Copaxone except that it didn't stop… read more

posted about 1 year ago

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@LLH1600 good to know you are having a good experience this far... am hoping I do too... this being my first day I am not sure yet how it will be but hearing good… read more

posted about 1 year ago

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Week 5 of taking Tecfidera, blood sugars have leveled off. For me, Tecfidera is working well! I love not having to take shots anymore.

posted about 1 year ago

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Just FYI Medicare is not paying for Tecfidera so biogen is giving Tecfidera away for a year. Don't know what you have to do to qualify. My neuro office with. Biogen… read more

posted about 1 year ago

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@SonyaWoodhamPepper Please let me know what you had to do. I was on the phone for hours with them on Thursday. It was very frustrating and I ended up with a horrible… read more

posted about 1 year ago

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@kims, my neurologist group is having biogen idec call me on Tuesday. After that I'll let you know.

posted about 1 year ago

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I take an extra 1\2 of Norco 7.5 or a gabapentin. I used to take 1800 of gabapentin a day, I slowly titrated it down to 900. So the extra isn't really extra.

posted 10 months ago

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I was on Techfidera for about a month with just the flushing. Then I developed severe gastric problems and ended up in the emergency room. I haven't taken it since.

posted 10 months ago

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I'm on my third day on Tecfidera, no side effect so far. Let's keep praying for the best for everybody.

posted 10 months ago

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Just started. Had the flushing on Day one, but now I take a baby aspirin with it and no side effects.

posted 10 months ago

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I'm a Type 1 diabetic on an insulin pump as well as an MS'er. I was on Tecfidera for a few weeks with minimal side effects, but then started having wild swings of my… read more

posted 10 months ago

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You are in my thoughts @Soup2001 I sure hope it all works out for you. Hugs and Smiles to you Always

posted 10 months ago

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Thanks @Jilly! Appreciate it.

posted 10 months ago

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Ask doc about it he still swears by Tysabri so I on at least another year don't see any improvement but maybe expecting to much

posted 9 months ago

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I have a neuro appointment next week. Don't want to take Tysabri (positive for virus issue) and Tec is out (no more wild blood sugar swings since I stopped it). Any… read more

posted 9 months ago

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I'm seeing my neuro Friday; haven't seen her since last May. Am on Avonex (since 1999). I'm not dissatisfied with Avonex, but I'm going to ask her about Gilenyal,… read more

posted 8 months ago

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Hi @SusanG I was on Provigil and when I got off it believe me I have seen the difference. I see my neuro in Jan and I going to ask to be put back on it and I hope my… read more

posted 8 months ago

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Ritalin 3x a day helps me

posted 8 months ago

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I'm on it now. Don't know if I will be able to continue. Very intense flushing and sweating.

posted 7 months ago

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I'm going to finish this round of it and hope things get better. Does the sweating and flushing go away completely?

posted 7 months ago

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I started Tecfidera about 6 mos ago. I hope its working. I will be having an MRI soon. I am in a lot of pain in my legs 24/7. My Pain mgt. doctor still has not found a… read more

posted 7 months ago

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Hi Kendall, Have your doctors considered switching your medication from Tecfidera to something else? I've been on Avonex since 1999 and have few side effects. I know… read more

posted 7 months ago

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I get so heated, and sweat horribly bad. My shirts, bras, and my hair gets so wet from sweat. It's almost like someone pours warn water on me. Don't think I can keep… read more

posted 7 months ago

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Tee-Tee, how long have you been taking Tecfidera? I had some flushing initially that went away. But not the intense sweating you've mentioned. I'd say try to give it a… read more

posted 7 months ago

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How long did it take before flushing stopped? And does it stop?

posted 5 months ago

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@A MyMSTeam User I have been on Tecfidera now for 1 full year and if I am late even by a few hours I will still experience flushing, so I take my Tecfidera exactly 12… read more

posted 2 months ago

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They ended up keeping me at the lower dose a lot longer, it did the trick! I have been on Tecfidera for just over one year and have been doing great!! Only occasional… read more

posted about 1 month ago

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Lisa123, The first MS shots I got were Copaxone. Apparently, most people who use it are fine -- I had a toxic reaction --really bad-- ; 103.5 degree fever. When my… read more

posted about 1 month ago

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Prayers @A MyMSTeam User:

posted about 1 month ago

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I am waiting to receive my 1st delivery of Tecfidera and although I was trying to start it the week right after my last Avonex shot, of course there are coverage… read more

posted about 1 month ago

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Just let your Dr. know your status and he may have some advice for you. I think it will all work out fine. I was in between meds waiting to get on it and everything… read more

posted about 1 month ago

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@ Jilly thanks. I am still waiting to get my delivery, waiting for the copay assistance to be confirmed. It has been thank goodness, and know the pharmacy has to call… read more

posted about 1 month ago

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AT the time I looked like and drunk and explained to all those I know about what's going on. Yes, I feel comfortable talking about it.

posted about 1 month ago

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