I'm currently in the process of deciding on what treatment is best and I'm contemplating lemtrada.. I'm just worried about the side effects of it.. does anyone else have any stories of their treatment or how they came to make a decision? I also wondered..I know it's a little taboo but anyone used cbd oil? A couple of ppl I know have raved about it but I feel like my body has given up working and I'm scared about what to do next or what to try can anyone advise?… read more
Phase 3 Trial of MD1003 in Treating Progressive MS
Has anybody that’s claimed pip got feedback on how it went. Iv filled in my form but not sure if I’ve explained things properly. Iv answered looking back on my worst days but what if they come to assess me and I’m not having a bad day. The thought of anyone coming and thinking I’m making my illness up is daunting! Don’t know if it’s even worth applying as I’m already stressing
I have 2ndary progressive MS. MY back stiffens up whenever I sleep and becomes very painful so I spend at least half of each night out of bed, stretching and doing my physio to keep my back moving. Also get a pain in my back under the shoulder blade that feels like I have been stabbed - use a tennis ball to press on a pressure point to relieve it. Basically I am tired all of the time as a consequence.
I take 25mg Dantrolene twice a day to control spasms, 150mg pregabalin twice a day and 200mg… read more
I work in a large office (think 2 Costco/Sam's Club) so I have to do some serious walking. I'm a slow walker with spasticity and I'm looking for something easy to zip around at work.
Has anyone tried this? https://www.triadmotion.com/
I can get to sleep without a problem--Melatonin and sometimes a puff of medical Cannabis--but I wake up with nerve pain (past 9 months) like I've been shocked while I'm sleeping. It can wake me up at times. Anyone else experience this? I've been offered Gabapentin but I really don't want to take a med.
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