Multiple Sclerosis
Questions + Answers
Has anyone had constant pain in back of head
every now and then i get pain in back of my head on the left side about two inches from my ear, It happens in the exact same place every time. also i get this pain practically every night closet to my tail bone about three inches away from it, it get very painful then i start jerking then goses my back aches. Dose any of this sound familiar to anyone?
it sound like the pain may be from a trigger point in your low back area or shoulder. Trigger points can come from any trauma or repititive moments over… read more
How do you get yourself motivated to live a healthy life, specifically exercise, diet and taking control of your life?
Job
Does anyone know of any jobs that I could possible do at home for extra income. I can not work and I am currently waiting for a disability hearing. Just trying to make extra money for help my husband..
I am in this same boat. I need some kind of help too! My neuro said I should not be working a full-time job. My job put me on medical leave and after… read more
Foot drop, again!
I had an EMG and the results were negative, does that mean i do not have foot drop?
Physical therapy is a good idea. It has helped a lot. I was tripping on air until the therapist started me on exercises to strengthen my muscles. I… read more
Additional info. I re ocrevus from a marketing and biopharm perspective
Sometimes I think we're suckers... Not meant to be negative but I understand if you feel like crap you'll do whatever you can do to change it. since this drug is basically @@rituxan... Why not just use @@rituxan.. I know why I'm just being fascitious
https://decisionresourcesgroup.com/drg-blog/dru...
https://neuroimmunology.wordpress.com/2011/03/2...
Yeah my doc at the VA discussed with me if i wanted to start either ocrevus or rituximab. I researched and said ok, whichever seemed to work better. I… read more
Making mistakes
I am going through a fog sometimes at work that causes me to make a mistake, and although my supervisors know about my MS, I still feel that I am so close to being let go....I don't know what to do. I feel overwhelmed. Anyone else have this problem.
I started the Wahl Protocol diet, basically paleo, and my brain fog lifted about two weeks in and never came back. It's been a little over a year.… read more
Tecfidera
I am going to be starting Tecfidera as soon as the specialty pharmacy gets it together. A little nervous because this is my first medicine to start for my MS. What were your reactions to the medicine?
i take Tecfidera and yes every now and then i get the flushing but that is it.
Does anyone get Anxiety& OCD while Traveling or New Situations?
I have noticed over the past few years that places such as Disney World or Cruises seem to trigger off my condition. It use to be all the prep work with the medication, kids, and husband. Now, I find that this is happening more and more to the point it makes me sick. I shut down, can't eat, even if I'm hungry and all my symptoms come out. I have trouble walking, I get tired, if I find things in the room, it freaks me out.
I also have found that… read more
You should talk to your doctor Nero and tell them they can help with medication please contact your doctor Nero and tell them sending prayers your way… read more
Demyelination PPMS
Hey guys,
Im still fairly new to this condition so once again sorry for all my questions!! Im glad to have you guys :)
I was wondering does the demyelination carry on FOREVER? Or does it EVER stop? Because i know its hard to get the damage areas back but does demyelination just carry on?
So I have PPMS with no spinal or neck lesions but i have numerous lesions in my brain which have been increasing, however they are always inactive. I have sever foot drop, walking issues and weakness in my… read more
It is suppose to help with anxiety too, and oil. I have extreme anxiety also and ppms. So, your not alone, and YES, IT SUCKS!!!!!!!!!!!!
Have you had any side effects from Ocrevus
Has anyone taking Ocrevus suffered from any negative side effects?
My next infusion is in December (I've only had the starter infusions so far) - and no side effects to attribute to Ocrevus.
Can't say as I've seen any… read more