Multiple Sclerosis

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Has anyone had constant pain in back of head

every now and then i get pain in back of my head on the left side about two inches from my ear, It happens in the exact same place every time. also i get this pain practically every night closet to my tail bone about three inches away from it, it get very painful then i start jerking then goses my back aches. Dose any of this sound familiar to anyone?

tags: Questionable pains

posted about 5 hours ago by A MyMSTeam User

it sound like the pain may be from a trigger point in your low back area or shoulder. Trigger points can come from any trauma or repititive moments over… read more

posted about 4 hours ago

Job

Does anyone know of any jobs that I could possible do at home for extra income. I can not work and I am currently waiting for a disability hearing. Just trying to make extra money for help my husband..

posted about 6 hours ago by A MyMSTeam User
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I am in this same boat. I need some kind of help too! My neuro said I should not be working a full-time job. My job put me on medical leave and after… read more

posted about 6 hours ago

Foot drop, again!

I had an EMG and the results were negative, does that mean i do not have foot drop?

posted about 11 hours ago by A MyMSTeam User
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Physical therapy is a good idea. It has helped a lot. I was tripping on air until the therapist started me on exercises to strengthen my muscles. I… read more

posted about 6 hours ago

Additional info. I re ocrevus from a marketing and biopharm perspective

Sometimes I think we're suckers... Not meant to be negative but I understand if you feel like crap you'll do whatever you can do to change it. since this drug is basically @@rituxan... Why not just use @@rituxan.. I know why I'm just being fascitious

https://decisionresourcesgroup.com/drg-blog/dru...

https://neuroimmunology.wordpress.com/2011/03/2...

tags: #rituxan #ocrevus #money #biopharma

edited, originally posted about 12 hours ago by A MyMSTeam User
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Yeah my doc at the VA discussed with me if i wanted to start either ocrevus or rituximab. I researched and said ok, whichever seemed to work better. I… read more

posted about 6 hours ago

Making mistakes

I am going through a fog sometimes at work that causes me to make a mistake, and although my supervisors know about my MS, I still feel that I am so close to being let go....I don't know what to do. I feel overwhelmed. Anyone else have this problem.

posted about 12 hours ago by A MyMSTeam User
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I started the Wahl Protocol diet, basically paleo, and my brain fog lifted about two weeks in and never came back. It's been a little over a year.… read more

posted about 9 hours ago

Tecfidera

I am going to be starting Tecfidera as soon as the specialty pharmacy gets it together. A little nervous because this is my first medicine to start for my MS. What were your reactions to the medicine?

posted about 14 hours ago by A MyMSTeam User
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i take Tecfidera and yes every now and then i get the flushing but that is it.

posted about 5 hours ago

Does anyone get Anxiety& OCD while Traveling or New Situations?

I have noticed over the past few years that places such as Disney World or Cruises seem to trigger off my condition. It use to be all the prep work with the medication, kids, and husband. Now, I find that this is happening more and more to the point it makes me sick. I shut down, can't eat, even if I'm hungry and all my symptoms come out. I have trouble walking, I get tired, if I find things in the room, it freaks me out.
I also have found that… read more

tags: #anxiety#OCD# Traveling#Newsituations

posted about 19 hours ago by A MyMSTeam User
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You should talk to your doctor Nero and tell them they can help with medication please contact your doctor Nero and tell them sending prayers your way… read more

posted about 12 hours ago

Demyelination PPMS

Hey guys,

Im still fairly new to this condition so once again sorry for all my questions!! Im glad to have you guys :)

I was wondering does the demyelination carry on FOREVER? Or does it EVER stop? Because i know its hard to get the damage areas back but does demyelination just carry on?

So I have PPMS with no spinal or neck lesions but i have numerous lesions in my brain which have been increasing, however they are always inactive. I have sever foot drop, walking issues and weakness in my… read more

posted about 20 hours ago by A MyMSTeam User
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It is suppose to help with anxiety too, and oil. I have extreme anxiety also and ppms. So, your not alone, and YES, IT SUCKS!!!!!!!!!!!!

posted about 15 hours ago

Have you had any side effects from Ocrevus

Has anyone taking Ocrevus suffered from any negative side effects?

tags: I have not used this medicine

posted about 20 hours ago by A MyMSTeam User
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My next infusion is in December (I've only had the starter infusions so far) - and no side effects to attribute to Ocrevus.
Can't say as I've seen any… read more

posted about 11 hours ago
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