Connect with others who understand.

sign up log in
About MyMSTeam

Multiple Sclerosis

Questions + Answers

Don't see your question? ask question
Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
View:

Has Anyone Had Chronic White Brain Matter Disease Show Up On CT Scan?

Has Anyone Had Chronic White Brain Matter Disease Show Up On CT Scan?

I had to get a CT as my first test prior to seeing a MS specialist. They noticed the white matter disease plus demyelination and vasculitis. I’m working on getting an appointment with the MS specialist in order to do the MRI next. Is Chronic white brain matter disease part of MS?

A MyMSTeam Member said:

I am not familiar with it. I would read up on it on Mayo Clinic, Johns Hopkins University, etc. I hope you will be fine and feeling good!

posted 6 minutes ago

Does Anyone Else Suffer From UTI’s And If So Have You Been Given Anything To Prevent Them?

Does Anyone Else Suffer From UTI’s And If So Have You Been Given Anything To Prevent Them?

A MyMSTeam Member said:

I have them constantly and just gotten off medication for one. I also have to use catheters to empty my bladder. I have an enlarged bladder due to urine… read more

posted about 3 hours ago

How Much Of Your Health Do You Disclose To Your Boss?

How Much Of Your Health Do You Disclose To Your Boss?

And how much accomodation do you require? I work in the restaurant industry and am finding it difficult to traverse this rocky landscape as well as having people talking badly about me (drama queen) when I have a flare up because our illness is invisible.

A MyMSTeam Member said:

@A MyMSTeam Member Do and say what is best for you!! I have had MS for 10 yrs & cashiered thru 9yrs and have always been an open book!! I did never… read more

posted about 6 hours ago

Forgot To Ask Earlier Regarding Tail Bone

Forgot To Ask Earlier Regarding Tail Bone

I forgot to mention and or ask does anyone else's tailbone hurt as if you sat on it all day? It's so painful at times no rhyme or reason why that I can think of.

A MyMSTeam Member said:

Oh yep, is sad (lol) can't not even rest in paz

posted about 19 hours ago

Does Anyone Use A Port When Getting An Infusion Or Other Treatments?

Does Anyone Use A Port When Getting An Infusion Or Other Treatments?

I get asked when i go for my infusion if i have a port. I dont. Should i consider asking my doctor about this if it will help get my infusion. I have tricky veins. They are perfectly visible and rise when ready but have slipped or been poked through several times. The easiest is in the back of my hand.

A MyMSTeam Member said:

I have a port. Make sure if you get one, that they flush yours out often. My hospital never notified me of that. Now, they don't know if it is still… read more

posted 1 day ago

Did Anyone Else Randomly Develop "tennis Elbow" Because Of M.S.?

Did Anyone Else Randomly Develop "tennis Elbow" Because Of M.S.?

I'm not active. I work full time at a desk. Its ergonomically correct. I suddenly developed very bad tendonitis in both elbows!! My general doctor ordered X-rays to confirm it. Sometimes I can pick anything up. It slowly come on, has lasted about 2 months, and is slowly leaving now (I have RRMS). I currently dont have a neurologist so I didn't bother getting an MRI. Is this a possible symptom of M.S.?

A MyMSTeam Member said:

I had tennis elbow when I was in my 20's and played a lot of tennis !

posted 2 days ago

200mslewis => Angelo Toronto, ON

200mslewis => Angelo Toronto, ON

Mayzent (siponimod) for my treatment , do you know anything should change my current treatment of Rebif

Please let me know your experience or feeling on this
Wishing everyone great day and God bless

thank you

A MyMSTeam Member said:

maybe stay on rebif until know more

posted 2 days ago

Does Anyone Have Flare Ups In Winter From The Cold Weather?

Does Anyone Have Flare Ups In Winter From The Cold Weather?

This last week was the first time I’ve ever had a flare up in the summer. We’ve been at or around 90 degrees all week. I know summer is when a lot of people have more problems but I’ve always only had issues when its cold or if I work too hard or hike too far.

A MyMSTeam Member said:

I love the cold and HATE the heat. But I have had flare up or two while cooler. Had majority of them in hot temps. It is pretty unppredictable.

Added… read more

posted 2 days ago

Sitting Pains?

Sitting Pains?

Does anyone else experience squeezing tightness and discomfort/pain in back of thigh?

A MyMSTeam Member said:

Yes I think spasticity is a symptom. But also a result of nerve damage . . I think it goes hand in hand. This is my best guess

posted about 23 hours ago

How Can I Tell If Its Depression Or Just (understandable) Sadness And Frustration At Having MS

How Can I Tell If Its Depression Or Just (understandable) Sadness And Frustration At Having MS

I have had a pretty rough 2 years - diagnosed last year with both kidney cancer and MS (in the same week)!! The cancer luckily was contained to my kidney and once it was removed my prognosis was pretty good. My MS is not too severe at this stage - pins and needles in feet and memory loss and blanks. I have moments of sadness and frustration at this illness and the fact that I cant do the things I use to be able to do. I… read more

A MyMSTeam Member said:

I've done some of that as well, Cheryl!

posted 1 day ago
Continue with Facebook
Sign up with your email
Already a Member? Log in