Multiple Sclerosis

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Cure

Cure

Can you tell me if any studies show what causes trigeminal neuralgia with no mylein damage ?

Tecfidera to Gilenya

Tecfidera to Gilenya

Has anyone switched from Tecfidera to Gilenya? I start my first dose of Gilenya on Friday. Just looking to see what you all have experienced. Thanks in advance!

A MyMSTeam Member said:

I’m switching due to progression, I hope it helps. Thanks for the info!

posted about 13 hours ago

Tightness moving up legs

Tightness moving up legs

Hi,
It started with my feet - burning, can't touch the top - pain. Then this weird feeling of tightness moved to my calves and now is moving up to my right knee and lower part of thigh. Also, one day it was so bad that my right foot started turning in (pigeon toed) while walking.

What the heck is going on? Is this feeling going to move up my whole body? I feel like I am slowly being over taken.

A MyMSTeam Member said:

I haven't seen any responses suggesting this so consider a small group of stretches for daily use. I know I have gotten "tighter" as I've lived with my… read more

posted about 17 hours ago

Help please! mobility device design

Help please! mobility device design

Hello Everyone! I am a design student currently working on my final year project on mobility devices.

I am wanting to create a design hat can actually be helpful improve the experience of using mobility devices.

In order to do this I need real life stories about peoples experiences with mobility challenges.

Have you had to deal with decreasing mobility?
What is your story?
What have been the challenges for you when dealing with decreasing mobility?
How have you incorporated… read more

A MyMSTeam Member said:

Hard no on the Alinka as I don't think I could balance myself at this disease point without a good back of the chair to rely upon. I loved my tadpole… read more

posted 1 day ago

What does the end result of your treatment do for you?

What does the end result of your treatment do for you?

May it be daily injections, prescriptions medication via liquid or pill, infusion treatments etc....what can you personally attest to it improving or effecting? Is it a general maintenance of your current condition, prevention of progression or an overall improvement of your symptoms? Please share if you’re inclined. Thank you.

A MyMSTeam Member said:

I started DMDs almost 20 years ago...Neurologist wanted me to start as early as possible. Studies should they could slow any progression of MS. Funny… read more

posted about 23 hours ago

MS and fighting sicknesses

MS and fighting sicknesses

Hi guys! those of you who get infusion therapy.....because themedicines are immunosuppressant......when I feel something coming on I can't just go and take an emergency-c, sambucol, or any quick immune booster because of the counter affects of them. What DO you guys take to help at least try to fend off the icky-ness?!

A MyMSTeam Member said:

What medication are you currently getting.. the immunosuppresent?

posted 1 day ago

Posting under "All Activity" tab.

Posting under "All Activity" tab.

Nothing that I post is there? Anyone else?

A MyMSTeam Member said:

I've had no problems with posting.

posted about 22 hours ago

Fatigue questions

Fatigue questions

Is seems I know why I am so tired all the time but what do you do for your fatigue? And who else doesn't sleep good throughout the night and what do you recommend or any advice. I'm new to having MS and just trying to find some relief. Thank you for any advice , have a great day everyone!!

A MyMSTeam Member said:

Hi and welcome to the club so to speak. It's terrible what a toll the fatigue takes on us. I have tried several different medications but the one I have… read more

posted 2 days ago

Has anyone tried Amprya for walking?

Has anyone tried Amprya for walking?

Amprya is not a MS med but its supposed to help with walking

A MyMSTeam Member said:

Thanks, will try you suggestion.

posted about 15 hours ago

My results came back. No bands in my csf .It was negative. Did you get a ms diagnosis after a negative spinal tap?

My results came back. No bands in my csf .It was negative. Did you get a ms diagnosis after a negative spinal tap?

My neurologist said my 9 lesions could just be anomalies.

A MyMSTeam Member said:

The lumbar puncture report that showed I had oligoclonal bands stated that they are present in 95% of MS patients.

posted 1 day ago
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