Multiple Sclerosis

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Ive been on gilenya 6 years

Ive been on gilenya 6 years

anyone else my age (late 50's) have their doc say they wanna take you off Gilenya at age 60?? she said the "risk vs. benefits" swings the other way as your get older. i was dx oct 2001 10 years on avonex, a couple of years on copaxone, 2 months on tecfidera (didnt go well) and now Gilenya. my last exacerbation was 18 years ago (feb 2002)

thanks

A MyMSTeam Member said:

Yes, I am 61 and have been off any DMT for 5 years or so. My MRI's had been stable at at that time for over 5 years. I am considering going on Mayzentread more

posted about 1 hour ago

Is there a connection between childhood trauma and MS?

Is there a connection between childhood trauma and MS?

My daughter had been reading several studies where the subject of childhood trauma (emotional, sexual, physical) was being investigated as a possible contributing or primary factor in a person developing MS in their lifetime. This included children of parents who divorced. I found this to be very interesting as a child of sexual abuse and now an adult living with PPMS. I was wondering, since this is such a large and diverse group of people with MS, if any of… read more

A MyMSTeam Member said:

I think my MS came about after dental implant surgery. It may have been hidden from other stress..none of which you mentioned, but some major crap in… read more

posted about 13 hours ago

Siponimod & SPMS???

Siponimod & SPMS???

Wondering how people on Siponimod aka Myzent, didn’t spell that correctly

A MyMSTeam Member said:

I was diagnosed in 2001. I got really bad really fast by 2007 thought I didn't have much time left. Drs gave me no hope. Researched all my symptoms.… read more

posted about 19 hours ago
Want to learn more about SPMS? Read more >

Pressure in temples

Pressure in temples

Anyone else wake up with slight pressure on the temples and fatigue? Not sure if this is MS related at all. I’ve also heard it could be related to the ears.. It comes and goes throughout the day. I had a physical with my primary doctor and she suggested TMJ but I don’t think it’s that even though my jaws arent aligned to begin with. She also said its not a tension headache either because im not having the symptoms of it. I got a routine blood work and I suspect I’m anemic again. Which would… read more

A MyMSTeam Member said:

I have the same issue with hearing loss at times that lasts about three days then comes back...i was told it was a sinus infection but medication did… read more

posted 2 days ago

Heavy legs

Heavy legs

Does any have advice to help with having my arms and legs feel as though they are twice as heavy as usual? Start with feeling like my muscles where miss firing Last week to extra heavy arms and legs.

A MyMSTeam Member said:

Christy, I know how you feel I deal with muscle weakness and the heaviness too. I can't go to the gym like the doctor wants me to help with making the… read more

posted about 23 hours ago

Does anybody else experience this problem?

Does anybody else experience this problem?

Since ms I've notice that when I get an itch on my arms it feels like someones pricking me with a pin and then my right arm jerks or my hand twitches, but any place else on my body the itching feels normal. Is it me or does anyone experience this?

A MyMSTeam Member said:

Yeah i scratch but it either moves or it hurts to scratch since the feeling isnt an itchy one @CherylWaltmaN

posted 1 day ago

How can I be sure the pain I feel is from MS. I was diagnosed last year. I have gotten worse.

How can I be sure the pain I feel is from MS. I was diagnosed last year. I have gotten worse.

Is it an MS feeling to have pain or muscle spasms in your lower back comparable to the pain from a lower lumbar puncture. The type that bolts down your leg? Is this pain from exposed nerves?

A MyMSTeam Member said:

I have pain every day all day and mine is MS i have to take pain medicine, but it never leaves complety. The spams i have in my back dont usely start… read more

posted 1 day ago
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