Multiple Sclerosis

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8 medium

Flares and steroids

I have never had an "episode", to my knowledge, where steroids would be needed or should have been inquired about. I just deal.. here and there new symptoms appear. I read a lot of this treatment being used for MS. What makes a flare significant enough to need this?

posted about 4 hours ago
A MyMSTeam Member said:

@A MyMSTeam Member, I haven’t used steroids in 3-4 years, as I have successfully avoided any major flares. But that said, it is nice to know that they… read more

posted about 1 hour ago
7 medium

Solumedrol ?

I had my first flare up last week. And was given an iv of solumedrol(?) Since then I feel like garbage. Is this normal? Everyone thinks that it's the affects of the steroids. It's been 4 days since the iv and I feel crazy tired, sore to touch, like my body is bruised, a headache, and my heart feels like its dancing around my chest. My blood pressure has also been up and I have this "out of it" feeling in my head. So hard to describe.

posted about 5 hours ago
A MyMSTeam Member said:

I'm really sensitive to chemicals so I generally feel pretty crappy when I've had to take any sort of steroid. It takes quite some time for it to fully… read more

posted about 3 hours ago
0 medium

Baclofin for spasms/spasticity

What has your experience been with this medication? I am about a week in and although I have seen a significant improvement in reducing the leg spasms and spasticity, it’s not been complete and the incremental fatigue has neen brutal.

posted about 17 hours ago
A MyMSTeam Member said:

Thank you for your feedback everyone! I’m up to 40mg per day, 10 mg 4x per day. Spasticity and spasms reduced by 70-80% depending on the day, combined… read more

posted about 5 hours ago
0 medium

I have been having burning pain & heaviness in my legs and it seems to worsen at night making sleep even worse. Any advice on relief?

posted about 18 hours ago
A MyMSTeam Member said:

@A MyMSTeam Member Naps work great for me too --Every Day! Even if I don't need it until night time. If I want to finish my day and keep moving, I HAVE… read more

edited, originally posted about 1 hour ago
8 medium

I would like to know what to expect in terms of M.S. symptoms possibly getting worse after surgery.Total Knee Replacement

In February I will have my surgery, and I would appreciate any input...my biggest fear is my mild to this date symptoms getting worse. I've been relatively stable with RRMS since 1998..The only reason I have a cane now is due to osteoarthritis in both knees. I'm a little scared, but I have no choice..I can only walk a few blocks without wishing I'm home again..

posted about 20 hours ago
A MyMSTeam Member said:

Oh my gosh!! Thanks for your reply...that's great to hear!
How was your recovery?
The washroom situation has me nervous, because my bladder doesn't have… read more

posted about 18 hours ago
6 medium

I was just diagnosed with osteoporosis along woth MS. Does anyone have experience treating both?

I am on Copaxone injections 3 times per week.
For osteoporosis I was offered Forteo vs Tymlos.
Due to stomach issues i am not a candidate for the oral drugs to treat Osteoporosis.
I have not decided, the rheumatologist i went to see told me its no rush..my concerns and i told him was taking two shots per day on the day Copaxone is due, he told me it can be done.
I know it can be done. I am a nurse with 30+ years in the… read more

posted 1 day ago
A MyMSTeam Member said:

@ LizColpoys..I went to a rheumatologist, my pcp sent me to this doctor.He has been in practice for more than 25 years, well respected. I maybe going… read more

posted about 2 hours ago
7 medium

Can you do an artcle on JCV virus.

posted 1 day ago
A MyMSTeam Member said:

I got a answer. Thanks

posted about 20 hours ago
7 medium

Can you do an artcle on JCV.

posted 1 day ago
A MyMSTeam Member said:

Thank-you!

posted about 3 hours ago
2 medium

Short term memory loss

Hi everyone hope you are well, just wondered if anyone is suffering from short term memory loss, i seem to be forgetting alot of things and people think im beimg ignorant. I remember long term memories and things like that but anything new seems to be getting erased from my mind

posted 2 days ago
A MyMSTeam Member said:

I have no idea it was professional and at the hospital though. I thinm 8 weeks is a joke i will keep pestering them

posted less than a minute ago