Multiple Sclerosis

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4 medium

Anyone in management?

Anyone in management?

I’ve just been offered a higher position. I’ve been working three years for this and am very excited, just nervous. Curious if anyone else is in management and balances both having MS and being in a higher position.

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does anyone notice bloating

does anyone notice bloating

my lower abdomen is bloated .. every Dr. I asked said they don't know what's causing it. constant heartburn too. food feel stuck all the time..

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A MyMSTeam Member said:

Good afternoon, I had unexplained severe heartburn, bloating and weight gain. A simple blood test revealed h-pylori, a common bacteria infection that is… read more

posted about 5 hours ago
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Anxiety

Anxiety

I’ve recently been diagnosed with ms in April of 2019. I just had my third infusion of Tysabri yesterday. My question is ever since the 2nd infusion I have been having some pretty bad anxiety attacks can it be from the Tysabri or just my nerves I’ve never had anxiety before. Otherwise I feel good until that attack happens. Then it gets crazy and dark. Thank you

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A MyMSTeam Member said:

Thank you very much everything has happened so quickly and it doesn’t hurt to ask people that may have gone through this before. I appreciate your time.… read more

posted about 5 hours ago
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Good Advice

Good Advice

Looking to far into the future, only opens the door for fear. Not one of us are promised tomorrow, so how bout we just live and love in today

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A MyMSTeam Member said:

idealism; unrealistically aiming for perfection.

synonyms: utopian, visionary, romantic, quixotic, dreamy, unrealistic, impractical, castle-building

posted about 3 hours ago
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Can mouth pain be related to MS? Any suggestions for relief?

Can mouth pain be related to MS? Any suggestions for relief?

I suffer severe pain in my mouth and on my tongue. Of course spicy foods and carbonated drinks cause me pain, but all foods (and even water) hurt. I have had difficulty swallowing and have lost most of my ability to smell, both apparently related to MS. I drink 80 to 110 ounces of water per day, and I practice good dental hygiene. I have tried prescription lozenges used to treat oral yeast infections but they don’t help. This problem began after I… read more

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A MyMSTeam Member said:

Isn’t it amazing how MS actually expands our thought process? (Example: “the tongue is a big muscle”) It compromises our brain with lesions and yet… read more

posted about 11 hours ago
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Muscle spasm and can’t walk

Muscle spasm and can’t walk

In a lot of pain in my hips and have spasm and can’t walk

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A MyMSTeam Member said:

I had that problem and I thought for sure it was MS related. So I consulted both my primary physician and my MS specialist and after testing was done it… read more

posted 1 day ago
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Has anyone had surgery for trigyminal neuralgia?

Has anyone had surgery for trigyminal neuralgia?

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A MyMSTeam Member said:

Surgery no- put high dose gabapentine worked for me .
It's a dreadful pain....sorry it's your experience too.
Stacey

posted about 5 hours ago
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My right leg drags now (used to be just foot drop)

My right leg drags now (used to be just foot drop)

Because of my compromised walking, my lower back hurts. Does anyone take anything other than Advil, Aleve, etc. for their MS pain?

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A MyMSTeam Member said:

Good morning! Great Wednesday!
I'm a very healthy dude and if you read my story maybe SOME validity. BUT pain.
This may sound absurd but a FACIA ROLLER,… read more

posted 1 day ago
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How did you all “come out” about your diagnosis?

How did you all “come out” about your diagnosis?

Hi! I was diagnosed almost 10 years ago when i was 21. At the time, i really hid my diagnosis from most friends and family as i progressed through school and my career. Im in a place now where i want more support and i am also “owning” my diagnosis and am not ashamed to share it.
How did you all navigate sharing your diagnosis widely? I am thinking of doing a facebook post/email. Any positive or negative stories are welcome.

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A MyMSTeam Member said:

thank you all SO much for these responses and perspectives!! I think initially when I planned on disclosing I was looking to do a big "reveal" on social… read more

posted 1 day ago
4 medium

Lymphopenia persisting off tecfidera?

Lymphopenia persisting off tecfidera?

Hi all! I have been battling lymphopenia (low lymphocytes) for a while while on tecfidera. My doctor took me off completely earlier this year, with the goal of starting a new drug once my immune system bounces back. It has been a couple of months and my lymphocytes have not improved at all. Has anyone had experience with this? Is there anything we can take/do/eat to improve white blood cell numbers? Im worried about being off medication for so long. Thanks!

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