Multiple Sclerosis

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RGN352

So RGN352 is under research and it is supposedly aimed at helping regrow myelin. It was given a patent in Australia,according to MY Msnews. Anyone heard of this drug?or anyone is on it???

posted about 6 hours ago by A MyMSTeam User

Legs hurt at night?

Does anyone else's calves hurt at night? I go to bed and lay there with them hurting!

posted about 6 hours ago by A MyMSTeam User
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Yes, my hips, legs, and calves ache. Lately, laying on my left side (my preferred position) hasn't been comfortable either. Along with the 400Mg Gabapentin I take 3… read more

posted about 6 hours ago

Anyone on Copaxone have trouble with weight gain??

I have gained weight since being on it and find it very hard to lose any now.

posted about 8 hours ago by A MyMSTeam User

Yes! It's disheartening! Haha

posted about 7 hours ago

Does weather changes affect you? It seems that I get worse when the weather fluctuates (hot one day and cold the next)?

posted about 15 hours ago by A MyMSTeam User
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I can feel the change coming a few days out. Western Canada has had a harsh winter this year with up to a 30 degree temperature difference between days sometimes. My… read more

posted about 11 hours ago

How often do you slip and fall down ...due to weakness-knees buckle-rubber legs or whatever...

you do need to call 911 for an EMT to help you get your body up off the floor...then do you have a panic button...here is one I bought...
http://www.ebay.com/itm/252683367010?_trksid=p2...

tags: 911 emt

posted about 15 hours ago by A MyMSTeam User
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Been there. I asked my doctor to get a walker with a seat because I tire easily. Then one day I woke up and could walk again. You poor thing I know how you feel. I… read more

posted about 9 hours ago

Curcumin

Does anyone else use curcumin for natural pain relief and help with inflammation? It's from turmeric but using just turmeric doesn't help as there's not enough curcumin in the amount you'd use to cook.

posted about 15 hours ago by A MyMSTeam User
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I take it and Biotin, Baclofen, Tizanidene, Gabapentin, Tramadol, aspirin, Aleve & xtrastrength Tylenol and still have pain .

posted about 9 hours ago

Feel lost!

After being pushed from pillar to post I have finally been given answers I have been looking for. I am still awaiting a date to start Alemtuzimab- but one step closer.
Beginning to become a bit worried about actually starting it.
I am very good at acting like I've got things under control only very few people know the real me.
I am having to travel to London for the treatment but I'm worried that if things go wrong people will be like 'the medication was your choice'
Not a lot of people understand how… read more

posted about 17 hours ago by A MyMSTeam User
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Msbuster => Rhiannon79 is from the UK and most likely got the MS Assistance Card from the UK MS Society here's the link read more

edited, originally posted about 13 hours ago

Has anyone else been diagnosed with MS and Lupus?

Also does anyone have around 20 brain lesions? What symptoms do you deal with? Example: Anxiety, depression, cognitive issues, memory problems, high inflamation levels, kidney issues, ect...

posted about 17 hours ago by A MyMSTeam User
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The number is in significant as lesions come and go. As LisaWurthmann has already stated it's the location the lesions . Along with how well your body is able to… read more

edited, originally posted about 13 hours ago

Dating/relationship when have MS fatigue

I wasn't aware about my ms before but I am now. I've looked back on relationships and other than the obvious I do know that I've struggled with relapses, stress, fatigue & that has been a factor in the breakups. I cannot help the fatigue that puts me unfocused & throws me off. I don't know how to date. I feel most men won't fully accept the constant ms fatigue. Any tips on how to convey acceptance from men on this fatigue thing?

posted about 17 hours ago by A MyMSTeam User
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You may want to check into Provigil. Research it online then make the decision to ask your neurologist or not. It helps me with fatigue

posted about 12 hours ago

Does anyone else have distorted rainbows in your vision? What has your doctor say or done about them?

posted about 18 hours ago by A MyMSTeam User
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Rhiannon79 => Flashes of light and floaters generally not a symptom of MS. Rather as one ages a it is more common to experience floaters and flashes. Reason being… read more

posted about 13 hours ago
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