Multiple Sclerosis

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Is this stress or something else?

Is this stress or something else?

My severe levels of stress are getting to me which caused extremely low blood pressure on and off, from it being normally high by stress too?

What is happening to my body has anyone else this same problem?

I’m getting this low blood pressure on and off with horrendously scary thoughts if it’s something else instead. Not sure what’s MS and not anymore as my brain is just beyond saturation on coping with this. Has my mothers death been contributing to this low Blood pressure,… read more

How ais Drop foot toe cramping and AFOs supposed to work ?

How ais Drop foot toe cramping and AFOs supposed to work ?

I have PPMS. Right drop foot and have hinged AFOs for both feet. My issue with the AFOs is that I wear them but my right foot will start to cramp and toes will try to curl. I can't get the AFO off fast enough. I struggle with getting them on and off myself without the cramping. So when they start cramping I seriously think I will either break my brace or my foot/toes. Anyone else have this problem?

A MyMSTeam Member said:

Ankle foot orthosis (afo)

posted about 5 hours ago
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Copaxone

Copaxone

Hello I’m praying everything is peaceful trying to make a decision I’m wanting to stop Copaxone the side affects are really wearing me out. Anyone have any tips

A MyMSTeam Member said:

Hello I’m going to speak to my Neurologist I’m hopeful we can come up with a plan that works for me

posted about 2 hours ago

Right Before Bed

Right Before Bed

Does anyone else get sick right before they try to go to sleep. I first get a headache and then it affects my stomach and then I feel like poison is running through my body. I can't describe the pain other than my body is filled with poison.

A MyMSTeam Member said:

Maybe a side effect of a medication? Hope it gets better soon

posted about 11 hours ago

Fungal infection on face

Fungal infection on face

Im taking copaxone has anyone else got fungal infection

A MyMSTeam Member said:

...everyone is different. Have you called your Dr.?

posted 1 day ago

How do you manage in your home with MS? Have you renovated? Who paId - you or government?

How do you manage in your home with MS? Have you renovated? Who paId - you or government?

The most difficult part of MS is trying to modify your life & home to accommodate your disease. Some have renovated their homes. Some moved to a more accessible home. Some do not have the ability financially to do either.

What have you done to make your home more accessible? Have you renovated? To what extent? Did you have to pay for these renovations or did your insurance or government resources pay or private social… read more

A MyMSTeam Member said:

wow cool...I had a cahir lift myself many years ago but as your mentioned it is not really good for narrow steps and can cause more problems than it was… read more

posted about 8 hours ago

Am I having the MS hug?

Am I having the MS hug?

I have been experiencing a strange sort of pain in my waist/back under my ribs. Is this an MS hug?

A MyMSTeam Member said:

I get mine tightly around my rib cage.

posted about 15 hours ago

Does anyone take low dose naltrexone and Ocrevus? If so what is your experience. Thanks

Does anyone take low dose naltrexone and Ocrevus? If so what is your experience. Thanks

A MyMSTeam Member said:

I sadly found out that I can't because I have another disorder that causes benign tumors all over my body and that medication ups your chance of getting… read more

posted about 23 hours ago

Stress

Stress

Was anyone under extreme stress for a long period of time before being told they had MS? My stress level is VERY EXTREME!! and has been for a long long time.

A MyMSTeam Member said:

@A MyMSTeam Member I wish I had known this 15 years ago...

posted about 15 hours ago
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