anyone else my age (late 50's) have their doc say they wanna take you off Gilenya at age 60?? she said the "risk vs. benefits" swings the other way as your get older. i was dx oct 2001 10 years on avonex, a couple of years on copaxone, 2 months on tecfidera (didnt go well) and now Gilenya. my last exacerbation was 18 years ago (feb 2002)
My daughter had been reading several studies where the subject of childhood trauma (emotional, sexual, physical) was being investigated as a possible contributing or primary factor in a person developing MS in their lifetime. This included children of parents who divorced. I found this to be very interesting as a child of sexual abuse and now an adult living with PPMS. I was wondering, since this is such a large and diverse group of people with MS, if any of… read more
Wondering how people on Siponimod aka Myzent, didn’t spell that correctly
Anyone else wake up with slight pressure on the temples and fatigue? Not sure if this is MS related at all. I’ve also heard it could be related to the ears.. It comes and goes throughout the day. I had a physical with my primary doctor and she suggested TMJ but I don’t think it’s that even though my jaws arent aligned to begin with. She also said its not a tension headache either because im not having the symptoms of it. I got a routine blood work and I suspect I’m anemic again. Which would… read more
Does any have advice to help with having my arms and legs feel as though they are twice as heavy as usual? Start with feeling like my muscles where miss firing Last week to extra heavy arms and legs.
Since ms I've notice that when I get an itch on my arms it feels like someones pricking me with a pin and then my right arm jerks or my hand twitches, but any place else on my body the itching feels normal. Is it me or does anyone experience this?
Is it an MS feeling to have pain or muscle spasms in your lower back comparable to the pain from a lower lumbar puncture. The type that bolts down your leg? Is this pain from exposed nerves?