I have been hearing about lions mane and wonder about others experience with it
Has anyone tried these infusions who would strongly suggest NOT doing them? I don’t want to make the wrong decision and I don’t particularly trust the pharmaceutical companies and the docs pushing the meds. I want to hear firsthand from an MS patient, one way or the other. Thank you
The last 2 days I have felt kinda light headed. No real memory issues, just spacey not feeling normal. Maybe how you feel before getting a cold, but no other symptoms than this strange feeling. I did better today at work, but really feel I need to process what I am doing. Is this what is considered as the famous brain fog? Also, does anyone get like an electrical shock in their leg once in awhile?
Started at the beginning of June. High-pitched squealing. Both ears, but the left is a little louder. Neuro said consult ENT. I did. They say it’s either my MS or Menier’s Disease. It’s making me crazy. Gets louder on shot days. Can it be the Copaxone? Anyone else having this issue? I did an internet search and it said it could be the meds. At this point, I’m ready to try anything. Yes, I cut my sodium to almost nill. Didn’t help. ACK!
I had the normal rash that can happen with Lemtrada which went I’m a week post infusion and this new rash appeared yesterday and seems to of spread I wondered if anyone else had this issue. I’ve taken antihistamine which has helped with the discomfort/itchiness but that’s it. It’s on the trunk of my body/back/arms/thighs/face. I didn’t have this the first time round has anyone else experienced this on Lemtrada ?Thanks in advance
Im finally starting meds either january or february and im unsure what to pick. Odds are my insurance wont cover ocrevus so im told but if they do it sounds almost too good to be true. Great effectiveness and minimal side effects. If they dont cover it im thinking of starting tecfidera because the side effects seem less than gilenya. Im high JCV+ so that rules out tysabri. Any experience on any would Be appreciated. Im scared to make the “wrong” choice :/
My Neuro appt isn't until Feb. I called and they said to see my GP (who I hate). What should I do??? My next infusion is Jan 19