Multiple Sclerosis
Questions + Answers
Flares and steroids
I have never had an "episode", to my knowledge, where steroids would be needed or should have been inquired about. I just deal.. here and there new symptoms appear. I read a lot of this treatment being used for MS. What makes a flare significant enough to need this?
@A MyMSTeam Member, I haven’t used steroids in 3-4 years, as I have successfully avoided any major flares. But that said, it is nice to know that they… read more
Solumedrol ?
I had my first flare up last week. And was given an iv of solumedrol(?) Since then I feel like garbage. Is this normal? Everyone thinks that it's the affects of the steroids. It's been 4 days since the iv and I feel crazy tired, sore to touch, like my body is bruised, a headache, and my heart feels like its dancing around my chest. My blood pressure has also been up and I have this "out of it" feeling in my head. So hard to describe.
I'm really sensitive to chemicals so I generally feel pretty crappy when I've had to take any sort of steroid. It takes quite some time for it to fully… read more
Baclofin for spasms/spasticity
What has your experience been with this medication? I am about a week in and although I have seen a significant improvement in reducing the leg spasms and spasticity, it’s not been complete and the incremental fatigue has neen brutal.
Thank you for your feedback everyone! I’m up to 40mg per day, 10 mg 4x per day. Spasticity and spasms reduced by 70-80% depending on the day, combined… read more
I have been having burning pain & heaviness in my legs and it seems to worsen at night making sleep even worse. Any advice on relief?
I would like to know what to expect in terms of M.S. symptoms possibly getting worse after surgery.Total Knee Replacement
In February I will have my surgery, and I would appreciate any input...my biggest fear is my mild to this date symptoms getting worse. I've been relatively stable with RRMS since 1998..The only reason I have a cane now is due to osteoarthritis in both knees. I'm a little scared, but I have no choice..I can only walk a few blocks without wishing I'm home again..
I was just diagnosed with osteoporosis along woth MS. Does anyone have experience treating both?
I am on Copaxone injections 3 times per week.
For osteoporosis I was offered Forteo vs Tymlos.
Due to stomach issues i am not a candidate for the oral drugs to treat Osteoporosis.
I have not decided, the rheumatologist i went to see told me its no rush..my concerns and i told him was taking two shots per day on the day Copaxone is due, he told me it can be done.
I know it can be done. I am a nurse with 30+ years in the… read more
Short term memory loss
Hi everyone hope you are well, just wondered if anyone is suffering from short term memory loss, i seem to be forgetting alot of things and people think im beimg ignorant. I remember long term memories and things like that but anything new seems to be getting erased from my mind
