Multiple Sclerosis

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Is anyone on Mayzent, Gilenya, or Ocrevous?

Is anyone on Mayzent, Gilenya, or Ocrevous?

I was on Tecfidera for three years until my new neurologist pulled me off because my lymphocytes have been around 400 to 500 for the past year. He said I need to be at 600 for Tecfidera. He is suggesting mayzent, gilenya, or ocrevous to switch to. I am leaning toward the mayzent, but I'm curious how people are doing on it. How are the side effects? I hate changing meds. It's all so scary.

A MyMSTeam Member said:

It made me sick as I have ever been. I could barely function.

posted about 6 hours ago

How many Carers, Partners and Family Members are on the site

How many Carers, Partners and Family Members are on the site

I have tried to thank many of you for caring while I have been building my team, but for any of you who I have missed, or not yet come across... THANK YOU FOR CARING

A MyMSTeam Member said:

Just me

posted 30 minutes ago

Has anyone seen the documentary by *Matt Embry an MS patient

Has anyone seen the documentary by *Matt Embry an MS patient

I will be watching it this weekend, but love MS.Hope websites by Matt Embry & plan to implement his diet, supplements, and exercise as nothing else has worked even though I eat healthy and I’ve been doing yoga for several years. What do you all think of the documentary?

A MyMSTeam Member said:

I guess I’ve never heard of it, how did you? I would love to hear anything by anybody who may have made a difference, no matter how little. Every little… read more

posted about 10 hours ago

Has anyone in Arizona with MS ended up with disseminated valley fever

Has anyone in Arizona with MS ended up with disseminated valley fever

If so? Where did you get tested? What kind of test? How bad were your symptoms? How were you treat it? By whom were you treat it? How long was your treatment course?And have you recovered fully?

Ocrevus and Cancer

Ocrevus and Cancer

I recently found out that the drug Ocrevus can cause cancer, mainly breadt cancer in women. Have anyone been diagnosed with cancer or was even told that this drug causes cancer? Im angry that i had to find out through social media and not by my doctor or the infusion center.

A MyMSTeam Member said:

No I haven't heard about it, but I know that some of these medications have terrible side affects

posted about 3 hours ago

Mood swings

Mood swings

I have been experiencing some mood swings or snapping at people that I care about. What have you done to stop or control them if you have them?
I am frustrated as I don’t see them coming.

A MyMSTeam Member said:

You might need more than just a counselor. If this is driven by MS itself and inflammation in the brain you might need medication (ie. to see a… read more

posted about 23 hours ago

Strange Headache When I Laugh

Strange Headache When I Laugh

Okay, y'all, I've searched these forums and the web, and all I can find on this are articles about Laughing Headaches (LH). So, asking here.

When I smile or laugh a lot, my scalp hurts from the tops of my ears to the crown of my head, and it moves down as time passes but takes a few days to go away completely after I stop.

A friend suggested intracranial hypertension, but I looked, and the description doesn't fit what's going on with me at all (except the vision crap). LH headaches… read more

A MyMSTeam Member said:

@A MyMSTeam Member OMG. Your comment led me down a rabbit hole of reading, and I came across this article: read more

posted 2 days ago
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