Multiple Sclerosis

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6 medium

Cooling vests are they worth it?

Cooling vests are they worth it?

I'm going to South Florida in July, and i don't want to be stuck inside so I've been contemplating a cooling vest does anybody have experience with them and if so a recommendation?

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A MyMSTeam Member said:

https://mymsaa.org/msaa-help/cooling-products/
Polar Products
you know it's the worst time to go -- I live in AZ and I wouldn't even think of going… read more

posted about 1 hour ago
5 medium

I'm on Aubagio for 5mos now, I seem to be getting worse, but it take months to get it out of my system, anyone having these problems?

I'm on Aubagio for 5mos now, I seem to be getting worse, but it take months to get it out of my system, anyone having these problems?

I don't seem to be getting anywhere with these Meds. I losing a lot of Hope I would
Like to know more about this DRUG

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A MyMSTeam Member said:

@A MyMSTeam Member well said-- I should have been a MS neurologist or researcher--I always said the same thing as your doctor! I guess i'm doing… read more

posted 29 minutes ago
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6 medium

MS hug?

MS hug?

I have started to get a pain to the right of my navel. Just above to the right.I get this on and off.I thought it was appendicitis, but it comes and goes. Has anyone else got this?... is this ms hug?

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A MyMSTeam Member said:

I get something similar.. the area will feel like it has a marble or something in it, as well as ..something ripping/prying apart. It's painful.

posted about 18 hours ago
5 medium

Can aubagio cause a rash

Can aubagio cause a rash

I have a rash on my chin and side of my lips. I started aubagio 7 days ago. My lips feel wierd as if they are peeling.

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A MyMSTeam Member said:

I've been taking aubagio for awhile now and haven't had any side effects. As Patricia60 pointed out, the pharmacist should know. Or, you can email your… read more

posted about 20 hours ago
9 medium

Moving to Spain

Moving to Spain

Hi we are looking to move to Spain in August what is the best way of obtaining theAvonexmedicine as we are being told a number of different things. Thanks

2 medium

Deciding what drug to use

Deciding what drug to use

I am trying to decide between Ocrevus, Mavenclad or Tysabri. I really want to hear the good, the bad and the ugly from patients. I’m tired of doctors. Have you been on one of these? If so.... What was your experience?

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A MyMSTeam Member said:

I’ve been on Ocrevous for 2 years. No side effects at all, except minor fatigue for 24 hours. No exerbations; same result from Copaxone for 8 years

posted about 18 hours ago
9 medium

When is work too much?

When is work too much?

I am 28 years old and a a first year elementary teacher. This year has wiped me out completely. My body is numb and tingly often and I come home and immediately have to sleep because I'm so fatigued. I don't know if I can keep up with my career choice. When do you push on and when do you throw in the towel?

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A MyMSTeam Member said:

@A MyMSTeam Member Your right to keep quiet about the MS Dx. If you say anything, just let the employer know that you are in a protect class by EEOC… read more

posted about 3 hours ago
5 medium

How do I get a proper diagnosis

How do I get a proper diagnosis

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A MyMSTeam Member said:

Stary by finding a neurologist who is a MS specialist, not just any neurologist.

posted 1 day ago
7 medium

Do you shop for no reason?

Do you shop for no reason?

It usually happens to me late at night when I can’t sleep. No one around telling me “that’s a bad idea”. It’s always online too. I stupidly opened a credit card with Best Buy last week. Not sure why I get this way.

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A MyMSTeam Member said:

I impulse buy when I feel I need to "treat" myself, especially after a tough week. I am trying to get a better credit score since my husband passed and… read more

posted about 16 hours ago
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