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Multiple Sclerosis

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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Was Any One Here Born In Camp Lejeune NC?

Was Any One Here Born In Camp Lejeune NC?

I'm asking because I feel that is where my body became destroyed in utro and living there until I was 3 not to metion I was a premature. I've seen Many people with MS from there so I was curious?

A MyMSTeam Member said:

Thank you so much for responding @A MyMSTeam Member

posted about 11 hours ago

Knee Pain And MS

Knee Pain And MS

Does knee pain have anything to do with MS? Lately, I have had excruciating knee pain. Describing symptoms I have to my doctor be hard for me.

A MyMSTeam Member said:

Thank you ❤️

posted 1 day ago

Thoughts/Experience With Kesimpta?

Thoughts/Experience With Kesimpta?

Been on copaxone for 4yrs now, just this past January went through my first relapse since being on copaxone.
Now facing the decision on which drug to switch to??
If anyone can share your experience/opinion with Kesimpta would be appreciated. What side effects did you experience? How long did they last? Did you get injection site reactions? Did the side effects slowly fade over time? Does it come with an injector pen?
Thank you in advance for any info. ❤️

A MyMSTeam Member said:

I have been on kesimpta since May 2021. It is a pre filled auto pen syringe. It is very easy in inject once a month. I only get side effects for a few hour after injection, 1000mg Tylenol helps. The… read more

posted 1 day ago

Anyone Know The Difference Between PPMS And SPMS?

Anyone Know The Difference Between PPMS And SPMS?

A MyMSTeam Member said:

I am convinced that Copaxone is useless for many people. I tried it with no results. I’ve met one person who said it worked for her. This is a small sample size! But if it doesn’t work for you… read more

posted about 17 hours ago

Heat.

Heat.

I find myself affected with heat. day time temperature and inner core body heat. I find I move easier when it is cool/cold. I am going into winter, the house is sitting around 50*F, I'm moving easier. Should I not heat the house this winter? Is that a good idea? It's unlikely to drop below 40*F outside here.

A MyMSTeam Member said:

Kristina, I'm so sorry. Arizona is so incredibly hot I've heard. 🔥 you must be so careful! I knew this man who had MS. ( way before I knew I had it also) when it got up to 80 he literally couldn't… read more

posted about 20 hours ago

What Do You Think The Best MS Medication Is Out There Relapsing Form Of Ms?

What Do You Think The Best MS Medication Is Out There Relapsing Form Of Ms?

I have been on Extavia for a long time and I’m having a hard time getting it right now. They are saying it’s on back order and can’t give me a time frame of when I can get it. So I have a video conference with my dr tomorrow afternoon to determine what should be done. I see all these different medications out there now and don’t know a thing about them. Could use some input on some of them and how they effect you. Good or bad. So I can be a little prepared for my talk with the dr. Any… read more

A MyMSTeam Member said:

Use vumerity it's a 2nd generation tecidera. easier on stomach biogen also

posted about 17 hours ago

Does Anyone Get A Severe Flushing/hot/red Feeling After They Take Tecfidera?

Does Anyone Get A Severe Flushing/hot/red Feeling After They Take Tecfidera?

I took my first dose of Tecfidera today and I am hour later I felt super hot, tingling, super red from chest to face and super nauseous. Then I got chills and itchy.

A MyMSTeam Member said:

I did for several years. Mainly when I didn't have food with the medication. It would still be somewhat random and out of the blue at times.i chose to go on Ocrevus Infusions since. Hopefully they… read more

posted 2 days ago

THC- How Many Mgs Do You Take For Pain Spasticity?

THC- How Many Mgs Do You Take For Pain Spasticity?

Now that THC is legal in NJ I’m considering trying it. I currrently take gabapentin and klonopin at night but still wake up tied in knots. Wondering how much you take at bedtime, I would do edibles maybe 10 mg?? And use it to gradually lower my doses of the prescriptions. Going to mention to my dr at next appointment in 2 weeks

A MyMSTeam Member said:

I use THC in an Edible Brownies. I take 5 Mg in the Brownies however I am not on any other Medicine

posted 5 days ago
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