Multiple Sclerosis

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Does anyone ever get 'sick shamed'?

I had an awful day today. I just had someone close to me shame me for being sick.
They think that I am avoiding them and don't want to be in there life because 'I haven't been around'... Yet, they have not reached out to me or answer my calls/texts when I reach out to them.
It seems really juvenile and I am trying not to let it bother me, but it really hurts. With everything going on in the world and with me personally, this person thinks that the only reason why I don't talk to… read more

tags: #people #depression #sadness

posted about 2 hours ago by A MyMSTeam User

Why do they use Gadolinium in our mri? See comment below

A Gadolinium (gd)-Enhanced T1-Weighted Scan Reveals Only New Lesions

These are areas where the disease that are currently active. Before the MRI, an injection of gadolinium (gd) is administered. This will distinguish the active lesions from the normal parts of the brain. When MS is active, gadolinium will cross the blood-brain barrier and reveal areas of inflammation by becoming lighter or brighter. These are called "enhancing lesions" because they are able… read more

tags: #gandolinium #t1 #mri

posted about 6 hours ago by A MyMSTeam User
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Maybe they could take cells from starfish or earthworms so we could regenerate?
It could happen.

posted about 5 hours ago

MS Walk Team Name????

Silly and maybe a “lighter,” topic question. I am planning to register for the MS walk in Des Moines IA. I am in the process of making a team to walk for our cause. Biggest struggle is a team name: Any and all suggestions are welcome

posted about 7 hours ago by A MyMSTeam User
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Make it the street the event starts on or be even more basic and use the city its in. A landmark in the city? Is a company helping with sponsorship? If… read more

posted about 5 hours ago

How do I change my city on my profile?

Hey! Anyone know how to change your city on your profile? I was hoping it would just be a quick editing click, but I haven't been able to get it to work. (When I click on MT View in editing phase, it just shows me other people from MT View and doesn't change it.) Thanks for any help y'all can provide! :-)

tags: change of city changes to profile

posted about 8 hours ago by A MyMSTeam User
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Try my profile - settings - account settings. Hmm, i havent changed my location so I am not sure if they want facebook access. You could sebd a message… read more

posted about 6 hours ago

Anyone suffering with MS and Breast cancer?

I am looking for someone with the above diseases. How can I manage alone?

posted about 10 hours ago by A MyMSTeam User
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I moved to a neighborhood where people don't even wave to you. It is so hard
I'm51 and so scared.

posted about 6 hours ago

Ultraflex brace for drop foot

Hi everyone! I have been trying physical therapy recently in an attempt to regain some mobility that I have lost due to muscle spasticity and foot drop in my left leg.
The physical therapist has suggested an Ultraflex ankle brace that would go halfway up my calf. Has anyone tried this? I’d hate to spend several hundred dollars on something that might not help but really I’m willing to try anything to be able to walk better. If anyone has any feedback, I’d appreciate it.

posted about 12 hours ago by A MyMSTeam User
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i have tried( MS gym )a good site.

posted about 12 hours ago

Does one foot ever feel colder than the other? So much that it’s hard to fall asleep at night.

posted about 15 hours ago by A MyMSTeam User
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@A MyMSTeam User
have you discussed this with your doctor to make certain there's not a blood circulation issue in that leg/foot or any other ubderlying… read more

posted about 6 hours ago

Leg jumping at night

My legs are jumping really bad at night time and im really struggling to sleep, does anyone else suffer the same or knew why it does it

posted about 16 hours ago by A MyMSTeam User
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I heard so much about about cannibis... so I tried it. Completely stopped the spasms...I sleep uninterrupted for 5-6 hours. When I wake up the clonus is… read more

posted about 11 hours ago

Has anyone gotten pregnant while on Tecfidera?

Looking to start tecfidera and I want to become pregnant. My other half is reversing his vasectomy. It may take some time to become pregnant as we are not in our twenties. I was thinking to go off meds for a few months but if it doesnt work what then? Would it be safe to start tecfidera and keep trying? Has anyone gotten pregnant while on this medication?

posted about 22 hours ago by A MyMSTeam User
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My DR told me I had to give him a verbal response clearly indicating that I would not try to get pregnant and would use contraceptives before he would… read more

posted about 13 hours ago


Hi Team, we know how important is it to keep moving. So, @A MyMSTeam User and I came up with a fun way to begin to be more active. MS won't stop us! Each week we will have a fitness challenge. This is how it will look (fitness challenge week 1 day 1 - week of March 25) (fitness challenge week 1 day 2) (fitness challenge week 1 day 3) Here is an example that @A MyMSTeam User has shared what she did today: This morning as I wrestled to put on my gotchies, I hopped on my left foot continuously… read more

posted 1 day ago by A MyMSTeam User
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@A MyMSTeam User Thank you Jeff for your inspiration Hugs Beech

posted about 18 hours ago
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