Multiple Sclerosis
Questions + Answers
Why do people who don't have MS always act like they are your neurologist ?
Why do the people around you act as though they are your neurologist ? They have more pros and cons about this disease then you are aware of, they drive me crazy.
chef I have ha MS for over half of my life I have always had the best knowlage for my MS CAREER since I was a teenager and my father is a Nerologyst. I… read more
Anyone using meditation and visualization daily?
the mind is a powerful thing. I took a meditation class a few years ago and am just getting to try to make that my daily practice - along with visualization. I've only been at it for a week, but I feel pretty good. Anyone else trying this?
PT work with MS
Anyone working a part time job that seems to be ok when you have chronic fatigue, memory issues and a little one at home? I have to re-enter the workforce and am not elligigble for disability. I need to work part time mom hours if possible. Any suggestions or relatable experience from anyone is appreciated. TIA!
Can you apply for all three? Blue badge, Freedom pass and Taxi card?
Hi,
As far as I know, I can have either a Blue Badge or a Freedom Pass. I like driving so I will aim to keep this. I don't know about the Taxi card… read more
When you feel really good - what do you attribute it to?
It's winter here in Australia. Last winter I was exhausted all the time and all the balance, tingling etc issues were really obvious - so bad that we ended up buying a new house (at much cost) so that when I went down the steps in the house my leg wasn't going from under me and to avoid trips etc.
This winter - I feel fabulous. No balance issues, no legs going from under me, reduced pins and needles (although sometimes dream I am covered in spiders and wake… read more
Leg keeps falling asleep
I'm not sure if this is MS or not. My right leg keeps falling asleep every time I sit somewhere for ?10? minutes or so. It wakes up in a few minutes if I'm standing. My MS feels like it is active. (My left leg falls asleep a little to, my left leg is dragging a bit. It falls asleep no matter what I sit on.) Has anyone ever had this? Should I be frantically contacting my neurologist? It has been going on for 2 weeks now and now my leg is dragging a bit. I'm worried.
Contact your neuro with anything that is new or that your concerned about. Always.
On a separate note, do you have back issues?
I hope you find some… read more
Temporary Drug
Well been off all meds since 4/7 hoping to start Ocrevus. Can't start until 10/1. Been battling all this time trying to get on it. So I need something in the intern. I don't think anything will be built up to full potential until 3/6 months. Doctor mentioned Gileyna or Zinbryta in April. Insurance won't cover Zinbryta. Aubgio x 3 months and stopped do to diarrhea. Rebif 18 years prior. Royal pain switching. Any thoughts.....
@A MyMSTeam User why did u stop? No diarrhea or headaches ??
Recently became a mom any suggestions?/
had my daughter on ay 8, 2017 and i've recently been having some issues. I have been going numb on my left side and it has been really throwing my balance off
Balance is an issue for me but no kiddos anymore I struggle to be an active Grand My grandchildren are my heart and soul
New Hire with MS
I'm a single mom whose MS has caused me to move in with family to a new unfamiliar city. I have been applying for jobs and have a couple interviews scheduled but I'm apprehensive about advising my potential employer that I have MS. It's been 7 months since my last relapse and I'm currently managing my symptoms pretty well, but as you know some days MS has the last say. Should I wait until I'm officially hired to disclose my condition? Can I be let go during my time of employment if I relapse and… read more
I the US I think you would be advised not to disclose your MS. In fact if you needed a doctor's note for a reasonable accommodation, the doctor would… read more
Changing treatment
My doctor has recommended a chance in treatment from an injection to either tysabri or tecfidera. Anybody have any experience with either of these, like side effects or life changing problems. Any help would be greatly appreciated.
Don't take those if you test positive for JCV You run a higher risk of PML.