Multiple Sclerosis

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How has Your MS Symptoms improved?

I know how hard living with MS is however I am doing better now then I was 30 Years ago and I thought for the Long Timers with MS WE could share a little about Our MS Improvements. I will start. 1. My Vision is so much better. 2. My Vertigo is so much better and recently I was able to Climb a few Stairs. 3) I can work Part time now. 4) I found a way to Sleep. 5) I can empty My Bladder at night now. 5) I have not been Paralyzed in 30 Years. 6) I have not had any Swallowing… read more

tags: MS IMprovements

posted 39 minutes ago by A MyMSTeam User
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You are welcome. This is why I posted this is to give People hope!!! This is how My MS has gotten better. Yes I still have MS however it is so much… read more

posted 8 minutes ago

Energy

I have fatigue and wish I had more energy. What do y'all take to help with energy?

posted about 2 hours ago by A MyMSTeam User

Looking for feedback on Dr Staley Brod

My regular neurologist referred me to Froedert Medical College of WI to see their new MS Specialist. I'm curious if anyone had heard of or is familiar with Dr. Staley Brod.
Thanks!

posted about 5 hours ago by A MyMSTeam User
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If you are in the Milwaukee/Oconomowoc area, I would suggest you look at Dr. Leah Rayman at the Aurora Summitt Hospital. I am very pleased and impressed… read more

posted about 2 hours ago

Can lesions disappear?

My neurologist said lesions never disappear. She said neither brain or spinal cord lesions ever go away-she said they are permanent no matter what. BUT Ithere were cervical lesions (active) on my MRI 20 years ago but there were no cervical lesions on my recent MRI but I did have brain and thoracic lesions. So has anyone had any lesions disappear???

posted about 5 hours ago by A MyMSTeam User
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My issues involve also the spine
I have 19 lesions and MRI states progressive spinal atrophy of thoracic spine so I don't think there's any chance of my… read more

posted 29 minutes ago

Built-up anger and frustration

What do you do to release any built up anger and frustration. I am in a wheelchair and have extreme fatigue issues. I need to find something that I can do. Any ideas?

posted about 7 hours ago by A MyMSTeam User
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Or take your husband to the bedroom lol that might help

posted about 1 hour ago

Can anyone please give me the names of neurologists and neuro-opthamologists in the western suburbs of Chicago?

I was just approved for Medicaid (Yay!), but now I need to find doctors who will treat my MS. Any suggestions would be greatly appreciated.

tags: Accepts Medicaid western suburbs of Chicago Neuro-Ophthalmologist

posted about 7 hours ago by A MyMSTeam User
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Not sure of DuPage Medical Group does but you might want to call and find out.

posted about 5 hours ago

Pain on skin after a shower

I have just started to get pain on my skin after I come out of the shower it feels like it is a burning feeling

posted about 10 hours ago by A MyMSTeam User

Call your doctor and tell them please

posted about 1 hour ago

Weight loss during MS flare?

So I've lost about 13 unexplained pounds since January. No change in my eating habits. I had this happen when I was first diagnosed while I was in a flare.

I have no appetite but I make myself eat. I've actually lost 3lbs in 2 days. It's a sensation where I eat but I FEEL like I haven't. I know it sounds crazy but that's how I felt 14 yrs ago and it was when I was in a flare and that's how I feel now...along with the fatigue.

I just saw my neurologist I'm January. They no about the… read more

posted about 10 hours ago by A MyMSTeam User

Hope you feel better soon Sweetie

posted about 1 hour ago

Gilenya

Hello, I am starting gilenya Sunday. I was wondering if anyone can give me
Helpful tips or suggestions as to when to take it at night or morning? Does it matter? Also do you have to take it the EXACT same time every day? Any side effects??? Thanks in advance

posted about 10 hours ago by A MyMSTeam User
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Oh duh! I didn't realize you asked about gilenya. Can't help you with that lol. Sry

posted about 10 hours ago

Hi..has anyone tried D-Ribose for fatigue? I'm just about to start taking + wondered if anyone else has tried??

Ribose is a kind of sugar that is produced by the body. It is used as a medicine.

Ribose is used to improve athletic performance and the ability to exercise by boosting muscle energy. It has also been used to improve symptoms of chronic fatigue syndrome (CFS), fibromyalgia, and coronary artery disease. Ribose has been used to prevent symptoms such as cramping, pain, and stiffness after exercise in… read more

posted about 21 hours ago by A MyMSTeam User
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