Multiple Sclerosis
Questions + Answers
What do you think?
I don't get these much but used to when I was 16 17 then a couple years later I had diplopia double vision
Migraines are common in people with relapsing-remitting MS. They last between 4 and 72 hours and have some of the following features: Preceded by an aura (blurry or distorted vision signaling that a headache is about to begin) or prodrome symptoms (including fatigue, hunger or anxiety)
I do get migraines but usually no double vision. But sometimes the pain is so intense that I don't want to see light and keep my eyes closed as happened… read more
IVF after lemtrada
Hi there everyone. I wondered if anyone can help me with this question. I want to have a baby next year but would need to do so via IVF due to having no Fallopian tubes. I am starting Lemtrada September 2017 and wondered if this could effect my chances of a success pregnancy. I would like to try for a baby 12 months from now and wondered if my body will be fit enough by then, any help would be much appreciated. Much love xxxxxx
@ Lemtrada is safe to get pregnant 4 months after the last infusion done the second year. The first year is 5 consecutive days of infusions followed by… read more
Ocrevus
I am meant to start on Ocrevus next week for my PPMS and was wanting to know if anybody else out there is on it and can you tell me if you have noticed anything different since starting on it. Cheers from NZ.
So does that mean that you have had your 2nd treatment? Well, I'll add you to my prayer list in hopes it does have an amazing effect, on all of us.… read more
Can anyone recommend a good Travel Insurance Company that isn't too expensive.
Book travel with a credit card and the card usually has some insurance for traveling
What kinda questions should I be asking?
Ok I don't remember if I put this in my profile but I really get stuck when I go into seeing doctors and feel like i freeze and cant remember what he said or I wanted to ask and was wondering other people's thoughts,
So far I've had an MRI and blood test and even before going back for the results (This Friday) I got a letter saying I'm on the waiting list for a clinical neurological test (think that's wat it's called) and I've decided to go private with the test.
I suffer… read more
I also use my phone and send myself a message when strange things happen so I remember to tell my doc. The night before I go to doc I list them all so I… read more
Can anyone recommend a Travel Insurance Company that doesn
Question on heat sensitivity
Im not diagnosed but have gone through mris which were normal, ssep, bloods ect. When i get overly hot by a shower or the weather just a small spot on my heel tingles. I have been told this is from back and disc problems. I have heard heat intensifies ms symptoms and am wondering if it manifests in this manner or if with ms it is much more severe. I dont notice the tingly spot unless I'm paying attention to it, but it still comes on with heat?
Those signs are a bit scary, sorry! I live with PPMS and find that cooling down in the shower has helped me a lot. When you are done with a nice warm… read more
Anyone on Myrbetriq for bladder spasticity
Is anyone taking Myrbetriq? I would like to know your experiences with it.. a lot of the reviews online said it didn't do Anything. I know everyone's different, but would like to know your experiences with it. I've tried a slew of other scripts for bladder spasticity (Vesicare being the most recent and absolute worst because I already have chronic constipation and it shut my bowels down). Thanks y'all!
Anyone on Myrbetriq for bladder spasticity
Is anyone taking Myrbetriq? I would like to know your experiences with it.. a lot of the reviews online said it didn't do Anything. I know everyone's different, but would like to know your experiences with it. I've tried a slew of other scripts for bladder spasticity (Vesicare being the most recent and absolute worst because I already have chronic constipation and it shut my bowels down). Thanks y'all!
Does anyone have feedback to offer on Ocrevus?
In process of getting approved for this drug. Hope to start next month. I have run out of other options. I've failed many drugs so far and can't take others. I'm the queen of side effects though. If there's 1, I'll get five. Just wondering what people taking it thinks so far. How's it going for you? Any advice to starting out.
