I had to get a CT as my first test prior to seeing a MS specialist. They noticed the white matter disease plus demyelination and vasculitis. I’m working on getting an appointment with the MS specialist in order to do the MRI next. Is Chronic white brain matter disease part of MS?
And how much accomodation do you require? I work in the restaurant industry and am finding it difficult to traverse this rocky landscape as well as having people talking badly about me (drama queen) when I have a flare up because our illness is invisible.
I forgot to mention and or ask does anyone else's tailbone hurt as if you sat on it all day? It's so painful at times no rhyme or reason why that I can think of.
I get asked when i go for my infusion if i have a port. I dont. Should i consider asking my doctor about this if it will help get my infusion. I have tricky veins. They are perfectly visible and rise when ready but have slipped or been poked through several times. The easiest is in the back of my hand.
I'm not active. I work full time at a desk. Its ergonomically correct. I suddenly developed very bad tendonitis in both elbows!! My general doctor ordered X-rays to confirm it. Sometimes I can pick anything up. It slowly come on, has lasted about 2 months, and is slowly leaving now (I have RRMS). I currently dont have a neurologist so I didn't bother getting an MRI. Is this a possible symptom of M.S.?
Please let me know your experience or feeling on this
Wishing everyone great day and God bless
This last week was the first time I’ve ever had a flare up in the summer. We’ve been at or around 90 degrees all week. I know summer is when a lot of people have more problems but I’ve always only had issues when its cold or if I work too hard or hike too far.
Does anyone else experience squeezing tightness and discomfort/pain in back of thigh?
I have had a pretty rough 2 years - diagnosed last year with both kidney cancer and MS (in the same week)!! The cancer luckily was contained to my kidney and once it was removed my prognosis was pretty good. My MS is not too severe at this stage - pins and needles in feet and memory loss and blanks. I have moments of sadness and frustration at this illness and the fact that I cant do the things I use to be able to do. I… read more