Has anyone taken Retuximab for MS?
Hi Lydia! I am not here much either. I just had my first two rounds of rituxan. So far, I love this stuff. Had to wait a year before I started. Insurance denied it at first. I had a very bad reaction to the tecfidera, so that was out. Then I got intrathcal methotrexate until the insurance decided they would approve the rituxan. It is nice to feel almost " normal".
@A MyMSTeam Member @A MyMSTeam Member wow it's been over a year since I've been on this site! I've actually have 5 rounds of Retuxin so far and am so happy to say that I have no new leisions, no growth, and no active leisions!!! I think I found my match and would recommend it in a heartbeat! Not to mention it's only once every 6 months for me and I don't have to inject myself.
Hi @A MyMSTeam Member! So after reading over the conversation that started two years ago, it seems neither of us are on here much haha. How is IVIG working for you? I have never heard of that treatment.
Unfortunately for me, I had a change in insurance's and my new insurance is denying my retuxin. Even after I filed an appeal, it was denied and the reason was that my "diagnosis" does not qualify for the appeal process. I'm so over insurance companies!!! I have never had to deal with someone or some corporation having so much control over my life. And to think that there are so many people who are probably in worse predicaments than I am, only to be denied of their treatments. It's freakin insane! So far I am two months behind on my infusion.
Thank you for sharing about IVIF. I like knowing about other options.
Hope you are well,
Couidn't stay on Rituxan. Started having more problems. No new lesions though. Now I am on IVIG. 5 hr Infusions twice a month. Either consecutive or one day in between. Getting it set up to be done at home so I don't have to go into NYC. Annoying. so far it seems ok. I think I expect too much from these meds.
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