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A MyMSTeam Member asked a question 💭
Bear Valley Springs, CA

I have this. The first time I really noticed it was last fall when I thought my phone was buzzing in my back pocket. I realize I have had it on any off since I was about 12. It is random and varies in intensity and places through my body, seemingly centered in my low-low back, legs, arms.

My solumedrol infusion last month seemed to abate it, but now it is back...upper left thigh.

I just had an injury there two months ago (attacked by my goose before he went to live somewhere else). I am… read more

May 20, 2013
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A MyMSTeam Member

I only ever got rid of L'hermittes by upping my B12 intake...just taking a few more soluble tabs a day got rid of it pretty fast for me. I did this after learning B12 deficiency causes the same symptom.

May 20, 2013
A MyMSTeam Member

I didn't realize B12 helps, I had been taking so many vitamins I would be full of vitamins in the am then more at lunch then more a bedtime.... I have to get back to that....

May 24, 2013
A MyMSTeam Member

I do and thought it was phantom phone vibration but it happens on legs not really pocket area never thought about it being MS.

May 21, 2013
A MyMSTeam Member

I'm experiencing this today in my left calf and in my stomach area. It feels very strange, almost like a fluttering under the skin.

September 7, 2013
A MyMSTeam Member

Thank you all, these answers helped so much. It seems that the steroid infusion in April did have some benefit in that the vibration is much less in terms of frequency. I do not have it isolated though, as it can strike any part of my body. Right now, when it does strike it is my lower back around that area of my body, my hands and feet. Very weird.

June 13, 2013

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