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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Who Has A Baclofen Pump?

A MyMSTeam Member asked a question 💭
Raleigh, NC

Who has a Baclofen pump and why? Did you start with oral pills then moved to pump?

July 3, 2013
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A MyMSTeam Member

Most people start with as high a dose as can be tolerated of Baclofen. Tizanadine may be used additionally. In a small number of cases, like mine, severe and pretty disabling spasticity occurs and a baclofen pump becomes an option. I'm just now after 15yrs. of pretty bad spasticity, am seeking all the info on getting a pump. This pump administers high doses of baclofen directly into the spine. Most doctors try all oral spasticity medications first.

July 15, 2013
A MyMSTeam Member

From the day I started with MS 35 years ago, my legs have always been my big problem. But back then there was no medicine on the market, so I just put up with it. The baclofen I use is pill form I don't want a pump.

August 16, 2023
A MyMSTeam Member

I don't have a pump yet. I wondered if maybe sometime I will though. I do get really serious craps on my feet in my back so I'm not sure. I'm trying to avoid taking a lot of narcotic type medicine for as long as I can

August 23, 2023
A MyMSTeam Member

@FrancineDiBonventuroGray the intrathecal is absorbed directly into the spinal fluid, therefore doesn't go through digestion

August 17, 2023
A MyMSTeam Member

I have a Baclofen pump. I needed a high dose of Baclofen because I have extreme stiffness and spasticity. I started by taking it orally, but I needed so much that it wasn't safe because of the side effects and what it could be doing to my kidneys/liver. I would do it all over again if I had to make the initial decision. I have had a pump for over 8 years now

August 16, 2023

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