I don't think I ever feel "normal" anymore. Honestly, what is normal with MS? We all have our individual normal. I'm just happy to be able to talk about it.

I have MS for almost 5 yrs RRMS, although my symptoms never really go away , when you have an exacerbation you will know it! Anytime you have new or worsening symptoms, check in with your Neuro. That's what they are there for... The first few years are scary and a huge learning process!

I think you'll find your answer, like the disease itself, will be different for you than others. It's just the nature of the beast. The last time I thought I was having an exacerbation it took a week and a half of Prednisone (something like 15 of those little pills maybe more, 3x a day, sorry can't remember) to calm it down. I was fortunate that my neurologist trusts my wife (a licensed nurse and phlebotomist) to treat me at home.
Here's the kicker, though. An MRI done afterwards showed no new or worsening activity. So technically my neurologist said it wasn't an exacerbation. That doesn't change what I know I was experiencing.

Everyone one of us and our experience with an MS exasserbation is different. Have you have IV steroids? Have you let your MS doctor know that your getting worse and not better. Your MS med may need to be changed. If they can't find a med to slow your progression and you don't have a period of being better you most likely no longer have RRMS and have one of the next levels of MS. Definitely see your MS specialist. If your not seeing a doctor that specializes in MS, I highly recommend that you do.

My understanding, may not be true, is that all of us initially diagnosed with RRMS will move into secondary progressive at some point. I was diagnosed in 2003 and MRIs have ben stable since about 2015 yet in the last two years I’ve had three disabling exacerbations, new issues are popping up at a rapid rate, old ones are getting worse, some have become permanent. While MS is responsible for more than 90% of what’s happening to me I learned not to assume everything is. A sharp resident listened to my complaint about increased fatigue, ordered standard blood work and went one step further checking my ferritin which was extremely low. Concerned about a GI bleed or cancer she ordered endoscopies. They found a bleeding polyp in my stomach and confirmed Celiac Disease with a biopsy. A transfusion of ferritin and the proper diet has helped considerably. Fatigue is still a major issue but not completely debilitating. So many of our symptoms are the same as many other conditions it’s easy for them to be missed.