Given the statistics...the facts...about the new oral medicines...WHY ARE OUR NEUROLOGISTS STILL PRESCRIBING THE LESS HELPFUL INJECTABLES? I'm on Gilenya now and had almost instant results. Yes, we might be in a remitting period of our disease, and yes even when we feel good we might be losing mylen cells. But these new oral medicines are our best bet. WE NEED THE BEST effort to reduce the progress and hopefully even stop the progress of this disease. Yes, we should trust our Neurologists - but… read more
I was diagnosed in May. I've been on Avonex for 3 months now with very little side effects so far. My nurse trainer suggested I take my pen out of fridge in the morning. I inject about 6 pm. I start hydrating the day before and limit caffeine and drink as much water as I can stand even the next day. I do Aleve and Tylenol as well. Aside from headaches I've done pretty well. I hope this helps someone
Gilenya is not new. It's been around for at least 5 years.
Oral meds are not indicated for everyone. I have other health conditions that contraindicate prescribing Gilenya. I also couldn't take Tysabri. I am starting Tecfidera (first dose today) and hope that it helps slow the progression of disease. I have been very fortunate this far with having MS that it has only caused a moderate disruption of my life.
I've lived with MS for most of my life - earliest memory of numbness at age 5. Still walking but eccentrically.
I HATE Avonex. I've been taking it for just over a year and it still makes me very sick - every single time. Horrible chills - teeth chattering, fever, body aches that are off the charts bad, and headaches. I spend one day a week being sick, no matter what I do. But.....I've had cancer once, and don't want to take a chance on side effects from new drugs. Doc agrees with me for now. I just wish we could have a cure, and soon!!! :-)
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