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I am familiar with PML. what are the risks of going to Tysabri with the jc virus? Had anyone experienced this and survived without brain problems?
I've been on Tysabri for 7 years now. Just had another JC test a month ago and my index value came in at 0.45. My Dr. says there has never been a PML case of anyone having under 0.9 and Biogen recommends no one should take if .06 or higher. Even at that, there are still people with a value of 1.5 taking Tysabri. It is just your risk becomes much higher to contracting PML.
Having a 0.45 my Dr. orders blood work every 3 months, and MRI every 8 months. Just to make sure.
@A MyMSTeam Member
http://mssociety.ca/en/treatments/pml.htm
This link will explain it
I was told that anyone with th JC Virus could not take Tysabri! Please be careful.
Or just keep asking question because then I can search to find it out too! Lol
@A MyMSTeam Member
I've also been thing of you a lot lately and the loss you had. From the bottom of my heart I'm so sorry
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