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A MyMSTeam Member asked a question 💭
Austin, TX

My MRI's are always stable but my symptoms continue to worsen. The dr says its old lesions worsening but no new ones. I don't really understand why the old lesions would cause worse problems. Can anyone explain it better?

June 19, 2014
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A MyMSTeam Member

I'm guessing older lesions are like an athlete having an old injury starting to give him/her problems. Just because for a while it didn't hurt wouldn't change the fact that it was compromised, making it more prone to act up later on.

June 20, 2014
A MyMSTeam Member

You may not have more lesions - but a particular lesion itself may worsen. Rub an electrical extension cord with steel wool. That leaves a scar or lesion in a specific location. Now, rub it some more.....same lesion/scar same place but now the lesion itself is a little deeper.....that may explain your worsening symptoms without lesions. Some lesions produce huge symptoms, some lesions may not produce any.

June 26, 2014
A MyMSTeam Member

They say I am stable as well, but my symptoms seem to be worse and all over the place. This is due to a prior lesion on the brain stem which is apparently one of the worst places to get one as it controls pretty much everything! I have rep lapses that seem severe, we do an MRI and nothing new is there. They think it's the old brain stem lesion acting up.

June 21, 2014
A MyMSTeam Member

The reason the old lesions are giving problems is because during summer the heat exasperates the old lesions and the more symptoms the more they change. I have had the same problem and now I am with a walker where I used to just be with a cane. Try having your doctor order you aquatic therapy where you can strengthen your legs and parts affected by the MS for it is low impact and it will cool you off as well. I actually had two seizures because I could not stop sweating and I went into heat exhaustion and an ms seizure. It scared my Dad and he cannot accept the fact that his daughter that was in the military, always walking and visiting locations with him and climbed the peak of Mt Evans in the 1980s has MS now and not able to do those things anymore. It is hard but try that and you will see that the therapy will help you in the long run.

June 26, 2014
A MyMSTeam Member

yes, Secondary Progressive is a most likely evolution as we stride into older age. I too have been moved to this group. It just means the disease no longer relapses big time, rather the symptoms stay more constant.

June 26, 2014

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