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A MyMSTeam Member asked a question 💭
Portland, ME

Any tips on what to make sure I cover at my reumstiligy appointment today? My neuro doesn't think the pain I am experiencing is MS related.

August 6, 2014
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Reactions
A MyMSTeam Member

Be careful tho, some clinic make you sign agreements with them. Also all pain clinics are not created equal. The main doc running the clinic in my town was on our local channel for q&a and when one woman called in and told him all she had tried, and told him she was desperate his reply was a chuckle and said I guess you'll just have to learn to live with it. You couldn't pay me to go to that clinic. I've been pretty lucky, I have been with my PCP for a number of years and she is ok with prescribing me pain meds, although it took me years and a few docs to find her. Don't give up, hope you find an understanding doc.

August 9, 2014
A MyMSTeam Member

I agree with CoolLioness. I suffer chronic pain due to MS. It is somewhat like Fibromyalgia. "Fibromyalgia is characterized by a state of chronic pain. When injury or inflammation generates pain impulses, the body’s reflex mechanism can improperly perceive the severity and increase the sensation. With this type of pain, called “central sensitization,” nerves in the CNS become over-sensitized, responding to painful and non-painful stimulations in the same way and send stronger, constant pain impulses to the brain." Being that MS " is an inflammatory disease in which the insulating covers of nerve cells in the brain and spinal cord are damaged. This damage disrupts the ability of parts of the nervous system to communicate, resulting in a wide range of signs and symptoms,including physical, mental,and sometimes psychiatric problems." So, about a good 50%of MS patience suffer chronic pain (in my case all over - from head to toe - all the time but luckily not the same intensity) even though it is still not officially recognized as MS symptom.

August 7, 2014
A MyMSTeam Member

Ask about diet and nutrition. A pharmacist has good advise for reumatology.

August 6, 2014
A MyMSTeam Member

Oops...reumatology..........can't type on these tiny android keyboards!

August 6, 2014