Hello everyone I hope you all are good! I Normally try to answer questions but I had 2 I wanted to ask, I already asked the first and this is second
When Ampyra came out, I never thought to ask about it or anything because I have been NUMB for 12 years. My walking is getting harder and more difficult to point I rarely even leave house anymore. I am asking this question to ANYONE WHO IS ALSO NUMB, YET STILL WALKS. It IS HARDER but I want to know if anyone who is numb (legs) takes this and it… read more
I just saw your post about Ampyra and the idea of a body/leg whatever that has gotten out of use.
I tried Ampyra for a month or so and found instead of feeling better about walking forward better I began to notice I was "wobbling" left and rightm so decided tom stop taking it.
But a PT was a speaker at one of our "seminar meals" and I was so impressed with her knowledge, etc., I started seeing her and another PT on her staff.
I am doing better wlaking or at least standing. Eevry day when I get basck home my wife says she can see differences in how well I'm standing up.
So, between Medicare and my government health insurance I get one full hour with a PT at no cost to me!. So fae=r the only cost has been a speeding ticket. One of the roads I use to get there is tree lines straight suburban with a speed limit of 35 mph. One of then damned cameras clocked me at 48 mph! Shame, shame, shame.
I'll let you know how things turn out.
Scooterman
Than You @A MyMSTeam Member
Thank You @A MyMSTeam Member
The apyra made my walking, balance etc so much worse. I felt more crippled on it and I was stuck in bed due to nasea, headaches and really not being able to walk stopped the med and so did the symptoms.
My doctor and I discussed Apyra at my last visit. We decided I should stop taking it for a week and see if my walking was affected. I didn't make it more than missing two doses and I could tell I had not taken it. I also have a new KAFO(knee,ankle,foot orthotic)added to my wardrobe, not because of the ampra.
Has Anyone Had Any Positive Or Negative Results From Ampyra?