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I just tested JC positive and my Neurologist wants me to stay on Tysabri for now. Any advice?

A MyMSTeam Member asked a question 💭
Asheville, NC

Long story short I was diagnosed with MS back in April when I lost vision in my eye. I have been on Tysabri ever since. I just tested JC positive and my Neurologist wants me to stay on Tysabri for now. My infusion is tomorrow and I am a bit nervous? Any advice? PML does not sound very friendly.

October 22, 2014 (edited)
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A MyMSTeam Member

I got another Blood test done and now it's JC virus negative. I guess I will stay on Tysabri for now,..if it comes out positive again, we will see.

January 22, 2015
A MyMSTeam Member

The JC virus can be found in MOST people. Speak with your Neuro about it, before taking yourself off Tysabri. I was positive, yet stayed on Tysabri for 36 months.

December 11, 2014
A MyMSTeam Member

Ull be ok. I tuned positive after 2 years n Ty was by far the best treatment I was ever on. I begged to be kept on it. Stay strong!

October 23, 2014
A MyMSTeam Member

Being on time has been the best thing that has happened for my quality of life since I was diagnosed in 2009 when you're I was off of it was most challenging and most problematic. I am low positive and I feel the positive by far outweighs the negative for me

October 23, 2014
A MyMSTeam Member

I tested positive also but whats the alternative? I,m going to keep getting Tysabri ,hoping I have some good results.I,m very optimistic about this.

October 22, 2014

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