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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I Would Like To Know How Many Of You Have JC Virus? Along With Your M.s. Of Course.and Do You Take Infusions? Called Tysabri

I Would Like To Know How Many Of You Have JC Virus? Along With Your M.s. Of Course.and Do You Take Infusions? Called Tysabri

Who all here has m.s. and J.C. virus? Trying to understand more.Thank you..

A MyMSTeam Member said:

there is a blogger who just recently became JC + and still takes Tysabri, it's MATTSMS. . . do your research, the JC virus + doesn't mean you have to stip Tysabri or mean that you will get PML, just means you have to re-evaluate and monitor your symptoms more closely. I love the way I feel now I take Tysabri compared to when I was on Copaxone. hugs

posted over 7 years ago
A MyMSTeam Member said:

There is now an index or a range of how positive you can be for the JC virus. If you test low on the index scale you can continue on Tysabri. The lower index does increase your chance of PML but it's still a very small statistic. If you start testing higher on the index that's when you and your dr. will make the decision to continue or not based on how susceptible you might be to PML.

posted over 7 years ago
A MyMSTeam Member said:

Smooth, almost EVERYONE

posted over 7 years ago
A MyMSTeam Member said:

Don't take the chance of staying on Tysabri if you've tested positive for the JC virus. It's a game of Russian Roulette.

posted over 7 years ago
A MyMSTeam Member said:

I agree with @A MyMSTeam Member. I read and Immunologist I saw confirmed that even if JC positive, there is almost no chance to develop PML for the first two years on Tysabri. Its the go-to treatment at their clinic for MS because it has the best long-term outcome in studies, and they see great outcomes clinically. For me though, they recommended Aubagio so we could manage other autoimmune disease activity too.

posted over 7 years ago
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