Does anyone else have lesions on their spinal cord at the C2? If so how long have you had them?
I have lesions at C1, C2, C3, C5, C6 and C7...I'm still walking and working, but barely. Following up with neurologist this Wednesday. MRI also confirmed lesions at T5, T6 and T10. Cervical spinal stenosis and severe spinal canal narrowing with possible cord compression at the C5, C6 level. I'm a hot mess...
I was on tysabri for 3 years and it worked great for me.
@A MyMSTeam Member....I'm pretty sure I know what Lorinhs meant by saying "feeling them". I know when I overdo it I can feel a pulse like sensation in the back of my neck right where the leisons are. In fact I felt that for about a month before I was diagnosed with MS. I just thought it was my blood pressure going up. The next think I knew my whole right side and both my feet and hands went numb. Still numb to this day.
I've read it works well for people. Time will tell.
@A MyMSTeam Member....let me know how you make out. I've had them for about, was on Copaxone and it did nothing. If fact the grew. My Nurologist sent me to his colleague for a second opinion. This guy has 40 years experience. He told me because of wher they are it's very dangerous so he told me about Tysabri we discussed the med and the risk involved. But the location of the leisons seemed more dangerous than the meds. So I've been on Tysabrl for 3 months now. We will see how it works. I'll let you know.