I was dx in Sept 2011 with RRMS. Since then I have progressively gotten worse my symptoms that were very occasional n really didn't interfere with my life have seem to have taken over my life n now it is such a 360 from then to now. I want to know for the ones that went from RRMS to SPMS what were the changes that made the dr decide from one stage to the other? Thank you for anyone's answer. God Bless all of us.
I probably have never had a flare. At least not like what I've read here. Mostly when something happens to me, it does not go away. (Numbness in feet and legs, tingling, etc) I don't walk at all really, but am waiting to go back on Ampyra. I had to stop it for insurance reason as. I walked while taking it, slowly, but I walked. Soon after stopping it, I stopped being able to walk at all. I am now as scooter girl!
I was diagnosed in 2011 with RRMS. I seem to have taken the same path as you. My Dr now thinks it's SPMS. I am still on Copaxone. I am supposed to repeat two MRI s in November. We will decide on any changes when the results are in. I will either stay on Copaxone or switch to another DMD. He still wants me on one.
My mobility, basically walking and balance.
It does help a lot of people. I know that they will help you get it for free if your insurance doesn't pay for it. I tried it when we were without insurance for three months. They said that we made too much money the year before. But it's definitely worth a try.
My Dr wants me to try Amprya for my walking. I've had the prescription on my coffee table for about a week. I'm a little reluctant to take it. Number one my insurance doesn't pay for it and I found out that I don't qualify for Medicaid. So I was dropped on the new year. I really don't know if I qualify to get the second prescription or not. So I don't ant to start it if I can't continue it. I'm applying on the healthcare . Gov but I don't know if this ins pays for it yet. I'm going crazy mad with my Ins. Does Amprya really help you. Right now I'm not so steady on my feet. I have balance issues.