Hello, I just wanted some opinions.. This summer I started having some cognitive issues, like forgetting names to things but the names would only disappear for a little bit and then come back. This started after I began taking my first MS medication, Plegridy. I stopped taking my Plegridy after 3 months (2 months ago) and am not currently taking anything. Slowly those problems have progressively gotten worse. I don't have any physical issues with MS it seems, just cognitive ones.. I am… read more
I also have cognitive issues. I take a good multivitamin, extra B-12, extra D3, Biotin and fish oil pills. I notice an improvement. I also drink lots of water to stay hydrated. Getting adequate sleep is important too. I also try to slow down and focus more on what I am doing and not multi task too much. I write lots of notes to myself. I seem to remember better when I see things in writing.
Maybe you are relapsing? That could definitely make memory worse until you reach remission.
Please consider taking one of the disease modifying medications. It is SO important to slow MS down. I regret not going strong in the first place. I took Avonex for 8 years, then Copaxone until I had a severe allergic reaction to it and now I am on Rebif for 3 years (which is working great). I think if I would have gone stronger to begin with I would have less lesions on my brain.
when I was diagnosed
Yes it is. Back when it first started my roommates would get mad and tell me to write myself notes. I would tell them that I do but then I couldn't remember where I stuck the stupid notes. LOL
Today I have several "Memory Books" that I carry with me changing which one I carry depending upon where I am going each day. Each has the information that each place I go needs.
Before my heart attack, all of my medical records were up-to-date on my computer and I just printed them off before I went to my appointments. At the moment my mind won't even hold it together enough to do that. I am hoping enough of my memory returns so I can do so again. I am having to relearn everything it seems. Computer programs are "fun" to relearn.
I found my dream job through a temp agency and got hired on. For the first time in my life I enjoyed going to work and hated it when I couldn't. I was an Accounts Payable Specialist and the first thing every morning I did was report to my boss to see what extraneous jobs were to be added that day. It was those jobs that made my days interesting. Until the day I walked out of his office and realized I couldn't remember if I had even been in there. I knew by the time, I should have been and I was afraid to go ask. Since there was rarely anyone else in there, there was no one else to go to to ask either. Later that day, he stopped by and asked me how I was doing on that project and opened the door for further specific questions so I was saved.
It didn't stop that day. This went on for months and only got worse as it extended to jobs I had been doing since the day I started working there. The only way I remembered them was when someone asked me about them. I was suppose to run checks every Friday. The Friday I didn't have them done on time,was the day I knew I was at risk of getting caught.
I wasn't diagnosed with anything at this time. No one thought anything about my forgetfulness or my stumbling or falling or being tired or anything else. No one - not even me. I had not even heard of MS. Now, I rely on others to help me remember the word that is just on the tip of my tongue.
I haven't given up though - I am going to talk to my neuro at my next appointment now that I am almost 100% back from my heart attack about getting into the cognitive program they told me about.
Thanks Chonita! I just want you to know that I am sorry and I do understand what you are talking about. Since I started having these issues nothing has annoyed me more than hearing family/friends say that what I am experiencing is normal. I'm glad there is a site like this where we can all share these things with one another and not feel so "normal" but rather accept and learn to deal with our symptoms. I'm really worried that one of these days someone is going to tell me something ridiculous I did is normal and that I am going to just lose it! Seriously, I feel your pain- it has become my one of my major pet peeves, if not the first.