I am currently taking Copaxone 40mg. New MRI of brain showed new lesions. Going for spine MRI on Tuesday. Doc wants to change my meds to one of these options. Says copaxone isn't strong enough for me. Has anyone ever taken Rituximab?? Was considering it or Tysabri. Already been tested for PML? Virus and I'm negative.
What Is the JC Virus?
The John Cunningham virus, known more commonly as the JC virus, is a very common virus in the United States. According to the World Journal of Neurosciences, between 70 and 90 percent of people in the world have the virus. The average person carrying the JC virus will never know and is unlikely to suffer any side effects as a result of its being in his or her body.
However, for a small percentage of individuals with multiple sclerosis (MS), that is not the case. The JC virus can be activated when a person’s immune system is compromised because of disease or immunosuppressive medication. The virus can then be carried into the brain, where it infects the white matter of the brain and attacks the cells responsible for making myelin, the protective coating that covers and protects nerve cells. This infection is called progressive multifocal leukoencephalopathy (PML). PML can be disabling, even fatal.
Via the Internet.
I have been on Tysabri for like 7 years. I have taken Avonex, side effects awful. Then did Copaxone was on for a couple of years. Just wasn't strong enough. Put on Tysabri no side effects and has been keeping me from any new lesions.
People are still saying to go for that other stuff eh....
For this drug to be THE ONLY DRUG TO MEET FDA APPROVAL FOR MS, it has undergone CLINICAL TRIALS for both remitting/relapsing and progressive.
Ptentially stopping and REVERSING the effects of MS for a portion of us.
Made from chemic proteins. (mouse proteins)
Oratorio (not sure what they'll name it yet) = Ocrelizumab
Made from human proteins
Otherwise they are the same.
Both end in MAB = monoclonal anti bodies = a new variance of anti bodies that can be programmed to attack specific parts of your immune system while leaving the other part of your immune system intact. Which means it does not completely kill off your whole immune system.
I've just come off Tecfidera last year awful medication for me. The side effects led to having both endoscopy and colonoscopy new year eve....
Despite taking it, my neuro tells me I've been n active relapse for last 14 months.... so what was point of the Tecfidera I asked. He didn't have any answer. He wants me to now start gilenya. I refuse anymore medication. New lesion on right frontal lobe was noted... I'm just tired of all the guesswork that is done with this disease and tired of the medication side effects which seem to worse than the symptoms I deal with.
Good luck to u in ur journey however I'm choosing to try alternative medicine at this time, and no, not medical marijuana either. Looking at the gerson therapy. Guess we shall see.....
Be blessed all
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