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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I Am Starting Fampyra This Coming Week Or The Next.. What Kind Of Improvements, If It Works, And Side Effects Could I Have

I Am Starting Fampyra This Coming Week Or The Next.. What Kind Of Improvements, If It Works, And Side Effects Could I Have

posted over 6 years ago
A MyMSTeam Member said:

I think the drug is called Ampyra. . At least that is the one I am taking. It really varies as to your physical reactions to Ampyra. In my case I was staggering around slowly with my rolling walker no matter when and within like three hours I was slowly walking around my house without a cane or walker. My Neuro said at an appt the next morning that my improvements were a best case scenario. For me, it really does a lot. . I began to understand why it is called the Walking Drug. It does not help with hear, cold or noise sensitivity, by my mobility improved three fold or more. . As long as I remember to take it. . And I have an alarm set so I don't forget, my mobility can only get better. For me, there are no side effects.

posted over 6 years ago
A MyMSTeam Member said:

I have been on Ampya for3 months now. Stopped taking because my hands started shaking / my speech and word were awful. Like wordfind. Yes I did have to pay 2002. per month. Any financial help go by your income.

posted over 6 years ago
A MyMSTeam Member said:

@A MyMSTeam Member Here in Canada it costs $700.00 Still waiting on our insurance company to see if they will cover it. But here in Canada Famprya is under a program so they said not to worry cuz there are other routes for coverage if our will not

posted over 6 years ago
A MyMSTeam Member said:

I have been on it less then a year now. When I first started it after 3 Mos I was going to take myself off it as having more trouble with balance , having difficulty in speech and more memory loss. I Google it as never cold get a response from doctors office and everyone who took themselves off of it seemed to have more trouble then they did before they even started taking it. Therefore I am still on it and I don't seem to tire as fast as I used to my stability is still crap! Just like everything else it works different with everyone. If you decide to take it I wish the best hope it helps you in every way. Take care!!

posted over 6 years ago
A MyMSTeam Member said:

I took Ampyra when it was first approved by the FDA in US for years. I didn't really notice a big change in my mobility until I stopped it on my own. Slowly, I began to notice that my balance issues were returning, and I tripped more easily (drop foot). I have recently begun to use it again, mainly because I am less clumsy and fall less when I take it, but also because I have read of many anecdotal instances where it has shown to decrease heat intolerance, which is a huge issue for me.

posted 11 months ago
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