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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Going From RRMS To Other Stages

Going From RRMS To Other Stages

How do you know if you are transitioning from RRMS to other stages/types? What are the indicators? I am officially RRMS and usually recover from my attacks, although it has been more than a year since the last one and although I am much better it is still lingering - some days are better than others. Older stuff from years ago comes up too. Occasional nausea, dizziness, but then goes away
is that normal for RRMS or is that an indication of another stage of the disease
Could it be PRMS, PPMS,… read more

edited, originally posted over 6 years ago
A MyMSTeam Member said:

Another good ? I'm thinking yet another appointment with ur neurologist is in order. I stopped the copaxen years ago! Side effects & no relief! I thought mine was progressing because doc gave me Neurontin which has always helped with my neuropathy only didn't do a damn thing for it this time. I stopped taking it 2 weeks ago because I have been taking it since before Christmas & it did nothing! Now the neuropathy is pretty much gone! I said this to my friend @A MyMSTeam Member earlier trying to figure out MS is like trying to figure out rocket science... Close to impossible! Since there's no cure even the doctors r guessing!

posted over 6 years ago
A MyMSTeam Member said:

Hi sweetie, I was just at my neurologist & I had a couple of new lesions & I asked if it had progressed & he said it has but since u aren't staying in a relapse it's still considered the RRMS. My current relapse had went on since New Year's Day. Longest one so far. I'm thinking it has finally went away but yesterday I had unbearable back pain & had to leave work. So who knows! Great ? though. Wondering about that myself.

posted over 6 years ago
A MyMSTeam Member said:

yes..mine has been going that same way for at least the last 10 years or so...I just wish they would figure out what to DO about this, you know?! I mean, they know to put bandaids on cuts, stop bleeding, and how to restart a heart that has stopped....how hard can this g-d damned thing be?! (don't bother answering this, I am just ranting for a minute!)

posted over 6 years ago
A MyMSTeam Member said:

@A MyMSTeam Member: AMEN

posted over 6 years ago
A MyMSTeam Member said:

@A MyMSTeam Member so do I. It's a racket the way some good up in price when they find out some things treat others things, yet they aren't sure how they work. I was told by my doctor that is how ampyra came to be used for walking in ms, they haven't a clue how or why it works, but it does. Appliances like microwaves went down in price and meds climb and keep climbing.

posted over 6 years ago
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