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A MyMSTeam Member asked a question 💭
Johannesburg, ZA

Please can anyone help ... Getting a terrible head pain behind my ear which leaves me in a disoriented state and very weird sensation in face on the right side? Been doing some research and apparently it might be related to MS. It only last aslong as it takes pain meds to work, then gone ... And everything feels normal again, thus not s constant pain just random incidents! It started to happen after my last iv in hospital!

May 16, 2016
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A MyMSTeam Member

Hi Bokkie77, I get it too. It's brain fog and is horrible. I usually have it on a not so great day and take it easy. Just remember to listen to your body and be kind to yourself.

May 16, 2016
A MyMSTeam Member

What is a trigeminal neuralgia?

Trigeminal neuralgia (TN) is a condition that causes repeated (recurring) severe pains in parts of your face. It usually affects people aged over 50. Treatment with a medicine called carbamazepine usually works well to stop the pains.

What is the cause of trigeminal neuralgia?

Trigeminal neuralgia (TN), also called tic douloureux, is a chronic pain condition that affects the trigeminal or 5th cranial nerve, one of the most widely distributed nerves in the head. TN is a form of neuropathic pain (pain associated with nerve injury or nerve lesion.)

Is trigeminal neuralgia a disease?

TN symptoms can also occur in people with multiple sclerosis, a disease that causes deterioration of the trigeminal nerve's myelin sheath. Rarely, symptoms of TN may be caused by nerve compression from a tumor, or a tangle of arteries and veins called an arteriovenous malformation.

How do you treat trigeminal neuralgia?

Trigeminal neuralgia can be treated with antiseizure drugs such as Tegretol (carbamazepine) or Neurontin (gabapentin). The medications Klonopin (clonazepam) and Depakote (divalproex sodium) may also be effective and may be used in combination with other drugs to achieve pain relief.

May 17, 2016
A MyMSTeam Member

Words to live by! always.

May 16, 2016
A MyMSTeam Member

I get TN on top of my head and also behind my left eye and some stabbing pains around my ear usually accompanied by a brain fog and or fuzzy kind of feeling. I often get it when I have some other sought of infection ocurring. However, ocassionally it has been due to stiffness in my neck (I think trapping a nerve) which when I've gone to the chiropractor for an adjustment miraculously all disappeared. If I can't get in to the chiropractor because its a weekend I'll use my electrical stimulation machine around the back of my neck and shoulders and an anti-inflamatory like Iburprofen. So when I get this now and then I check I don't also have stiffness in the neck if I do I go straight to the chiropractor for a quick fix. If I don't then I take Ibuprofen and use an icepack to relieve the sensation in the top of my head and behind my eye and beliieve its most likely due to an underlying infection that has increased my body temperature slightly.

May 21, 2016
A MyMSTeam Member

Sounds like TN to me as well. Iève had 3 Rhizotomies to alleviate the pain. Drugs did not control the pain after a while. Itès a horrible suicidal pain. Myself and @A MyMSTeam Member have both had a Rhizotomy (me 3 of them) Check into that with your neurologist

May 20, 2016

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