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A MyMSTeam Member asked a question 💭
Hartford, CT
October 19, 2016
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Answer Summary

Members discussed whether every MS flare-up needs treatment, with the general consensus being that not all flares require medical... Read more

Members discussed whether every MS flare-up needs treatment, with the general consensus being that not all flares require medical intervention. Several members shared that the common guideline is to wait 72 hours before contacting a doctor, allowing the body a chance to recover on its own, and that steroids like Solumedrol are typically reserved for flares that significantly impact daily functioning. A recurring theme was the importance of knowing your own body, keeping a symptom journal, and staying in close contact with your neurologist or MS nurse to help guide treatment decisions.

A MyMSTeam Member

I was told many years ago, by a well-respected neurologist who was ready to retire...." let your body have the chance to start recovery on its own, before you think of adding treatment".... I realize that many things have changed over the years, however, all kinds of input are valuable when you are down . I hope you feel better soon!

October 19, 2016
A MyMSTeam Member

I have had multiple relapses the best thing to do is keep a journal where you document your changes. Usually if it last longer than three days and you are not getting any better you should go to the Hosptial right away or call your multiple sclerosis nurses or the clinic or call your doctors they should be able to guide in the right direction.

October 19, 2016 (edited)
A MyMSTeam Member

No, the general rule with steroids is first, they dont lessen the severity of the flare they only potentially speed up recovery. Second, only relapses that significantly impact functioning should be treated with steroids. That's the current treatment guideline. The doses of solumedrol used are extremely high, it has to be to be effective however frequent exposure to THAT amount of steroids can be detrimental so treated mild relapses with it is not the best idea.

October 19, 2016
A MyMSTeam Member

Fortunately, my neuro. knows me well enough-I've been with him for 10yrs, & he knows I know my body well enough--I call his office when I have a new symptom arise- usually an exacerbation that is lasting more than 3 days--since I am 2cd ptogressive there are no big flare ups anymore--except now when I was under a lot of stress I lost control of bowels--UGH--so I knew this was a new symptom & my eye sight has diminished--now using 8x magnification. All that to say- let neuro. know what is going on.

October 20, 2016
A MyMSTeam Member

There have been times when, if I treated every flare up, I would never leave the hospital or doctor's office. Not all flare ups need treatment. Plus, treating one flareup is possibly treating others. The best thing you can do is let your fingers and toes tingle while bouncing off wall's, and talk to your Neuro for memory loss, limb weakness, and speech disturbance.

October 19, 2016

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