Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMSTeam Member asked a question 💭
Crescent, OK

Does anyone else have this issue, is it a MS symptom??
For a good year now... I will have to pee, and i get to the toilet and it takes any where from 30 secs to 3 mins before i can pee.. No mattet how bad i have to go it takes forever to go and pretty painful sometimes. Sorry if it's TMI, but i need to know if its MS related. Thanks!

November 28, 2016
 · 
Reactions
A MyMSTeam Member

It sounds like you are beginning to have urine retention. It is a side effect of MS and there is nothing to stop it, other than (possibly) Botox injections. I had the injections three or four times and got some relief, but ultimately began to self Cath. It is so automatic with me, I really never even think about it. If you have not already done so, please do see a urologist as quickly as possible. You can go into full urine retention and I know from past experience it is excruciatingly painful. Good luck!

November 29, 2016
A MyMSTeam Member

Sounds like u may have a UTI. But I have the same issues. I have to use self catheters

November 28, 2016
A MyMSTeam Member

Yes, MS, and UTI will follow if you are not emptying your bladder. I actually had to go to PT at the Urology office to learn how to "relax" enough to allow my bladder to empty. Bottom line, don't push, your not having a baby, it's the opposite, you are suppose to relax. But, I would look for other symptoms to start popping up. My bladder problem was relapse related.

November 28, 2016
A MyMSTeam Member

Yes, this could be MS related. In late 2010 I started having trouble peeing and by February 2011 I was unable to pee at all because my MS had shut down by bladder and the urine had backed up into my kidneys causing me to have chronic kidney disease. I had to use a catheter and in 2014 I had a super pubic catheter tube put in because I was having too much irritation from the regular indwelling catheter. Then in 2019 when my nurse tried changing it, she wasn't able to insert the new one and I went to the E.R. and they couldn't get it inserted either. So, we made the decision to try me without it to see how I did and to this day I am still catheter free but have begun having some problems with peeing again. Also, because I am either in bed or in my power w/c I have developed kidney stones and have had them quite a few times over the past 3-4 years. Twice while having them, I went septic and the first time the doctors weren't sure if I was going to live through it and told me so. I had never experienced this before and yes it was scary because I became very confused and then passed out. Thankfully, my Lord sent me to the hospital where I received the best possible help and made a complete recovery.

June 7, 2024
A MyMSTeam Member

PT pelvic floor exercise also referred to as urodynamics.

November 29, 2016

Related Questions

View All
A MyMSTeam Member asked a question 💭
Tonawanda, NY