Has anyone else ever been told by their neuro that they they are not in a flare/relapse but it's just the old MS lesions acting up?
@A MyMSTeam Member. Yeap...I've just decided it was relapse however mild or non severe they thought it was. I still think I did the right thing by keeping the appt because at least it's on paper. (Symptoms ). Which helps with my disability case.
Ughhh.....use to think I had the best neuro but now it's just frustrating when I go even just for my every 6months check up. My blood pressure is always high when I go in. When I leave and get home its back to normal. (So many changes going on in that office I can't get into on this site)...it's depressing.
Thanks @A MyMSTeam Member!
@A MyMSTeam Member Thanks!
@A MyMSTeam Member. ..mmmm..not really at this point.
@A MyMSTeam Member. Yeah. Mine do take notes of any new or something I feel has worsened . But as I've said you have to be falling , running into things bedridden with dizziness etc.. before they consider it a "true" relapse.
At least I know what I tell them is noted whether they think it's a relapse or not. I have access to their notes for every visit.
The next time you go make sure their writing or typing down any new or worsening symptoms. It's your footprint.
Blessings
Heard on the Grapevine -- definitions for 'flare' vs 'relapse'.
A flare is a symptom(s) lasting up to three days (you know the doctors' 3 day rule for any 'sickness') .
A relapse is the same but takes longer to subside - take up to weeks, months, years . . .
relapse will knock back any progress you've made
a flare is just a bump in the road - just to keep life interesting
keeping track of symptoms is for our benefit, not your med team - save the umbrella info - general overall info - for the for PCP if it bothers you that much
All of us having tingling, numbing, throbbing etc. -- HOW is it different, significant owww pain??? - can you account as to why it's painful ( a physical fall ) or muscle spasm, etc.
Neuros don't need to know the details - they're considered 'all inclusive', besides they can see on your pix what's going on.