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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

LDN

LDN

Want to know if anyone heard or had LDN treatment I read up on it it's very effective for MS just want to get any input I can my oncologist gave me information just don't no why my Neurologist didn't say anything about this it's very cost efficient is this why doctors are not using it

posted over 5 years ago
A MyMSTeam Member said:

Low Dose Naltrexone is not approved by the FDA for the treatment of MS. Thus the reason that most neurologists do not discuss this as being a treatment option. Nor will your insurance cover the cost of it since it's not approved by the FDA. You generally have to go to a Homeopathic Doctor to get a RX for LDN and it has to be filled by a compounding pharmacy. If you choose to pursue this further it's important that you do a lot of research in finding a reputable compounding pharmacy once you have obtained RX.

Personally tired it years ago but didn't do anything for me.

posted over 5 years ago
A MyMSTeam Member said:

Low dose naldextrone

posted over 5 years ago
A MyMSTeam Member said:

I have heard of it and saw it was inexpensive but have never had it proscribed to me. Let us know how it works!

posted over 5 years ago
A MyMSTeam Member said:

I have PPMS and LDN has helped me with pain levels, energy, and that 24/7 overall feeling that I had been run over by a truck.

posted over 5 years ago
A MyMSTeam Member said:

The FDA does not consider any drug for approve unless it's gone through all required trials. The FDA does not do the trials but rather the pharmaceutical company wanting to develop and market the drug is responsible to do the trials based on FDA protocols. Unfortunately getting FDA-approval for use is not a straightforward process.

The fact that LDN is an inexpensive compound and that the original patent for the Naltrexone compound used in LDN has expired is the reason no pharmaceutical company will step forward with the billions of dollars needed to do a large-scale study on low-dose naltrexone (LDN) which is necessary for FDA approval. With the patent expired, no drug company has been willing to pay such a large sum when they cannot sell the drug exclusively.

posted over 5 years ago
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