I have described the pain as deep, bone pain. It is so painful I cannot touch my skin over the bones, knees, it feels like my bones are on fire about to crumble. I find amitriptyline 100 mg and baclofen 20 mg and Advil it takes about 25 to 40 mins to be able to go back to sleep. Deep burning bone pain is my best description.

MS pain is so real! Ever get the hug? Feel like your bones are toothpicks and if you take another step those picks will splinter? Ever feel like your legs are elephants legs and not yours-the heaviness that people talk about comparing it to carrying concrete legs? Even the optic neuritis lightning flashes of stabbing on the face? Yep-they are all real and I experience all of these at times-sometimes more than one type of pain at a time. I've read a lot of articles that mention as you say that MS does not cause pain-they obviously haven't done their homework.

I'm actually offended that we, as MS sufferers are doubted about the pain we endure. A thousand Chinamen can't be wrong. The pain is throughout the body and shooting and deep. It keeps you from your life. My face hurts sometimes. This pain is real and the cause is MS. Walk in our shoes for a day. You'd quit after an hour.

https://multiplesclerosis.net/living-with-ms/th... Mine are the numbness or the burning. I also have body areas such as a hip joint hurt as though dislocated without any mechanical reason as though the nerves are sending the wrong message.

I have hydromorphone in 1 mg doses up to 2 per day to help with diverticular pain and ms pain. I go on 1 week break about every 6 to 8 weeks to ensure I do not reduce efficacy at the lowest dose and usually only take the 1 mg at night to be able to sleep and avoid painsomnia. I use emugel on very specific areas, and on the no painkiller med week, it is almost a body lotion.
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Since the myelin that covers your nerves is attacked and damaged from ms, it makes perfect since that some people feel pain.....in my opinion, it's like having bare wires touching.

This is from the Multiple Sclerosis Association of America.

http://mymsaa.org/ms-information/symptoms/pain/

More than 50 percent of individuals with MS identify pain as a significant symptom. For many years, the medical community did not support the idea that pain could be caused by the effects of MS, but physicians today recognize that pain is a common symptom.