Thanks Larry. I don't suppose there's very many on here I'm just hoping to find at least a few.., from all my research it's pretty rare aggressive form of MS. 😬

I was diagnosed with tumefactive multiple sclerosis two years ago. I would like to let you know that I am on a Facebook group for people who have TMS as we call it.

I have secondary progressive. I have had this disease diagnosed 15 yrs ago. I take a po MS drug and drugs for symptomology; bladder, bowel, physical endurance drugs.

It resembles a brain tumor because the large size. Instead of multiple little scars, I have one big one.

what is tumefactive?