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Ok so now I have had my 2nd attack in 6 months my neurologist has made a plan and I am now having to weighing up treatment options, and wanted to know if anyone had Tysabri or Lemtrada treatments. If so how did you get on? I am leaning towards Tysabri just concerned about JC virus. If anyone could give me any information I would be most grateful. Thank you in advance x
Are you JC positive? Im on tysabri, had 5 infusions thus far and honeslty its hasnt been too bad at all. Too soon to know if its controlling my disease but i switched to it cause previous treatment didnt. Im more concerned about untreated or subaoptimally treated ms then side effects, im JC negative on two different occasions. Its all about weighing risks vs benefits. Its not for everyone but for me it was the best choice and thus far (with the exception of fighting with insurance) its been good. Definitely worth considering.
Hi I have had MS for almost 10 years and was on Interferon injections every 2nd day for 8 years and then I actually stopped all medicine for 1.5yr and from the Neurologist he strongly suggested Lemtrada as my next course, I actually decided to go with Tysabri instead and just finished the first infusion about 2 weeks ago, I also was really nervous about starting but didn't want to get worse than I am now and better to take the step to try to reduce negative effects anymore and just have the regular checks each month and monitor. I had a similar experience to @A MyMSTeam Member and the last 5-6 days have been sleeping more than normal and really tired, I have heard up to and including the 3rd dose it takes time for the body to get used to it and then I should have more energy (Hoping for that), I would suggest to go with Tysabri first if you have the option and then review Lemtrada afterwards. Good Luck with deciding and wishing you all the best. Keep Smiling and stay positive :)
My experience is with both tysabri and Lemtrada, I am currently on Lemtrada now was on tysabri first for 7 months and lesions showed enhancements so we decided to go to Lemtrada, started Dec 2016 and so far no issues and good results. For both medication in my experience the infusion center personal and testing take good care of you and they were always taking blood work to keep close eye on you, this has been my experience and I am just a rookie here diagnosed 5/2015.
@A MyMSTeam Member great that my comments helped a bit and sounds like a good plan, all the best to start and I am sure everything will be ok for you. Continue to enjoy each day and stay positive and smile (It really does help) all the Best :)
Hi. I am newly diagnosed and have been prescribed Tysabri. I tested positive for the virus, but somehow, my numbers have went down. I will undergo my 7th infusion Tuesday. When I first started I would sleep for hours now that I have done it awhile I am more energetic after the treatments I had an MRI and I have no new lesions, the ones I have, have not worsened. I have had a few attacks but very mild and not long lasting. I still have brain fog but nothing like before. I no longer walk and suddenly fall down and scrap my knees and tatter my jeans. The worst of it is you have to sit for two hours during the infusion once a month. I hate getting stuck by a needle but I have grown tolerant of it. Everyone is different. Further to the JC Virus when I was researching it scared me but you are tested monthly and this is watched. I hope this helps. You will receive a package from BioGen which addresses the side affects. You will have a case worker when they ship your medicine to the infusion suite whereas they will give you a phone number to speak to someone who will answer your questions and advise you accordingly. I have only taken this treatment and have no idea of the others. Again, I hope this helps.
all the best to you. :)
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