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How do you describe a flare?

MyMSTeam asked a question 💭
San Francisco, CA
June 12, 2017
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Answer Summary

Members shared widely varying experiences in response to the question of how to describe a flare, with many describing a flare as new or... Read more

Members shared widely varying experiences in response to the question of how to describe a flare, with many describing a flare as new or significantly worsening symptoms lasting over 24 hours, such as numbness, extreme fatigue, vision changes, pain, spasms, balance issues, and cognitive challenges. Several members emphasized the importance of distinguishing between temporary symptom exacerbations triggered by heat, stress, or overexertion and true relapses or flares, with many noting that their everyday struggles with heaviness, tingling, and fatigue are not always considered flares but rather ongoing symptoms. A recurring theme was the value of tracking symptoms, communicating clearly with neurologists, listening to one's own body, and finding support through community sharing, as many felt isolated or misunderstood by those without MS.

A MyMSTeam Member

Bad fatigue and cognitive issues harder to walk and this causes depression God Bless MSERS keep fighting

June 27, 2017
A MyMSTeam Member

Corisal, this is a great place to be able to vent your feelings. You need to get things off your chest we're here to support you and love you and understand. Never feel alone we're here to support you. Thank you for sharing your thoughts this morning :-)

July 7, 2017
A MyMSTeam Member

Exhausting.
Frustrating.
Painful.
Time Consuming.
Feels like it won't end.
Nauseating.
Sad.

October 7, 2017
A MyMSTeam Member

I consider a flare something as something out of the ordinary of our day to day issues. What is most important is that you discuss vocabulary with your neurologist... Make sure apples are apples and that you make sure you both are on the same page. Regardless of the vocabulary, the words you choose have to mean the same thing every time. You both need to know 'worse" from "different." oh I hope this made sense and helped..... There is a pain behind this that I will not bother you with, but understanding between you and your Dr is paramount!

July 6, 2017
A MyMSTeam Member

Power Cart use in a store is necessary I just can't walk from my car to store I have not been in a store for over a year glad I have the internet and the Greatest Son in the world!

August 8, 2017

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