Hi guys !!
I'm 7 years into this journey. Was on Extavia the first 2, but I became so tired of the injections that I stopped. I have been 5 years without treatment , but this latest relapse has made me realize that it may be time . Does anyone have any insight into either of these meds ? It would be so appreciated !! Thanks :)
Hi Jason, you sound like you're doing well, fantastic! Each person may have a different reaction to each drug. It is truly hit or miss so discussing with your dr is so important. I took a few injectable then stopped when I felt like I had the flu everyday, no Good! The last infusion I had was Rituxamab back in October 2015. I feel good & move around well.
Today is warm & high humidity & that sucks for everyone especially MS patients since we "cook" from the inside. UUGGHHHH!!! STAY HYDRATED!
I've taken all the injectables took Tysabri for around 100 infusions. Never had any problems but changed to Gilenia. I take it every day.Sinse I started (two almost three weeks ago)I seem to like it. I was diagnosed when I was 14. still walking talking and going to the gym. If you have any questions write me back.
I have . The issue unfortunately becomes about the coverage . I think I will be covered , or at least bridged until covered - however our ministry of health here in Canada has criteria specific for being on Gilenya ! Drives me crazy , as they want you to be sick enough to have to take it , when it may in fact be too late to be effective !! Grrr !!
Denial not good, been there. Was on injections 3X a week, not good if you haven't any body fat. Been on techfidera now for 2yrs, finding this suits me best. I would strongly advise anti sickness pills if you choose to start this treatment as vomiting was a big issue when i first started. Obviously consult your m/ s nurse, best of luck
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