I think DESD is the same thing but may be more specific to males? Anyway, I've gone thru all the drugs settling on Oxybutynin. I had a neurostimulator put in in 2009 and that helped for about a year. In 2012 I started getting bladder Botox injections which have been life changing! I did have to start self cathing 2-4x a day, but probably should have been doing that all along for the retention. My life revolved around the bathroom-peeing upstairs then again as soon as I got downstairs, avoiding going places where I knew a bathroom was not easy to get to, hoping against hope I wouldn't pee my pants between a handicap parking space and the bathroom in the grocery store, horrible sleep from peeing every hour. Now I can sleep thru the night and go places with my family I always avoided.

Although I do have chronic constipation also..... the question I asked was related to Urology. My tank is always half full ( retention ) and I get the call to go every hour and it is not easy to go. Connection between brain and Bladder is crossed. It is often painful when I go . Some days easier then others. on a bad day or night I wake up every hour to go. The condition my Urologist said was DESD detrusor external sphincter dyssynergia Can anyone say it 3 times fast?

@A MyMSTeam Member, Almost forgot,take in plenty of liquids to drink during the day, do not stop drinking liquids, this helps dilute your urine and decrease the amount of sediments in the urine which can also, irritate the bladder, and make your kidneys not function properly. Your urine should be a clear light yellow, with less of a strong odor,and the amount you drink should equal the amount you urinate out. You can limit drinks two hours before bed though to try to lessen the volume a little bit. If you have congestive heart failure or any other diseases that cause you to retain fluid, with swelling ask your doc because you may be on a fluid restriction. If are up all night peeing buy yourself a bedside urinal to use to help you get back to sleep more quickly.

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A MyMSTea...

On a bad day I can set my watch to my bladder. I make a daily log with notes. Same thing when I sleep. I wake up every hour trip to the Jon. You can get used to anything. It has been better lately with some changes... New adjustable bed which is amazing and drinking high alkaline water.. Many other things. I feel alone like no one has this. I would like to know what others do and that I am not alone with this. It's frustrating but I always stay positive

Yes! It's a drag and painful at times. I'm glad I had a baseline urodynamic test. I didn't want to straight Cath
So I'm repeating it 6 months after fist one. I know I have it but I'm still in denial. Thank God for big fat poise pads!!!