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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Any Others Have A Urology Condition Called Detrusor External Sphincter Dyssynergia? It Is A Lousy Condition.

Does Any Others Have A Urology Condition Called Detrusor External Sphincter Dyssynergia? It Is A Lousy Condition.

posted about 5 years ago
A MyMSTeam Member said:

I think DESD is the same thing but may be more specific to males? Anyway, I've gone thru all the drugs settling on Oxybutynin. I had a neurostimulator put in in 2009 and that helped for about a year. In 2012 I started getting bladder Botox injections which have been life changing! I did have to start self cathing 2-4x a day, but probably should have been doing that all along for the retention. My life revolved around the bathroom-peeing upstairs then again as soon as I got downstairs, avoiding going places where I knew a bathroom was not easy to get to, hoping against hope I wouldn't pee my pants between a handicap parking space and the bathroom in the grocery store, horrible sleep from peeing every hour. Now I can sleep thru the night and go places with my family I always avoided.

posted about 5 years ago
A MyMSTeam Member said:

@A MyMSTeam Member, Almost forgot,take in plenty of liquids to drink during the day, do not stop drinking liquids, this helps dilute your urine and decrease the amount of sediments in the urine which can also, irritate the bladder, and make your kidneys not function properly. Your urine should be a clear light yellow, with less of a strong odor,and the amount you drink should equal the amount you urinate out. You can limit drinks two hours before bed though to try to lessen the volume a little bit. If you have congestive heart failure or any other diseases that cause you to retain fluid, with swelling ask your doc because you may be on a fluid restriction. If are up all night peeing buy yourself a bedside urinal to use to help you get back to sleep more quickly.

posted about 5 years ago
A MyMSTeam Member said:

Although I do have chronic constipation also..... the question I asked was related to Urology. My tank is always half full ( retention ) and I get the call to go every hour and it is not easy to go. Connection between brain and Bladder is crossed. It is often painful when I go . Some days easier then others. on a bad day or night I wake up every hour to go. The condition my Urologist said was DESD detrusor external sphincter dyssynergia Can anyone say it 3 times fast?

posted about 5 years ago
A MyMSTeam Member said:

Yes! It's a drag and painful at times. I'm glad I had a baseline urodynamic test. I didn't want to straight Cath
So I'm repeating it 6 months after fist one. I know I have it but I'm still in denial. Thank God for big fat poise pads!!!

posted about 5 years ago
A MyMSTeam Member said:

@A MyMSTeam Member, I too have had bladder problems related to MS, and from having children, weak pelvic floor muscles, with prolapse. I have overactive bladder related to MS which just like you at one point I was running to the bathroom every hour. It was horrible! then my neurologist put me on oxybutynin er tabs 15 mg twice a day, and this along with kegel exercises have helped me tremendously. The medication helps the bladder relax, so it's not inappropriately spasming all the time. We all have an internal sphincter that the CNS controls and external sphincter that we are supposed to be able to control to prevent us from peeing when it's not the right time or place. Has your urologist checked your prostate gland? Because as men age typically their prostate enlarges and could cause you to retain urine and not empty your bladder all the way, which tricks the bladder to be at it's full volume, because the last time you urinated the bladder didn't empty all of the way, and so the bladder spasms again at a certain volume of urine left in the bladder along with the urine your kidneys have made the past hour. Enlarged prostate also called benign hypertropy of the prostate; BPH, can cause urine frequecy at night, it causes pain with urination ( not for everyone). It can cause urinary infections related to the urine dwelling in the bladder too long and infections make the urgency worse because irritation occurs in the bladder causing it to spasm even more. I asked about the prostate because if your doc feels like you are retaining, usually they will have you straight catheterize yourself to get rid of the extra retained urine that is making you get the urge to go pee all the time, but if you have bph it may be difficult and painful to do catherizations because the prostate actually starts to press on your urethra causing the diameter of the urethra to get narrower. Did he discuss a treatment plan with you? If not find a really good urologist for a second opinion. You shouldn't have to suffer like this, there are options for relief. Hope this helps, this is very common, especially with BPH and MS.

posted about 5 years ago
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