Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people whoโ€™ve been there
  • People who understand what youโ€™re going through
Sign Up Log In
Powered By
Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMSTeam Member asked a question ๐Ÿ’ญ
Monroe, LA

Where have you traveled to since your diagnosis? Out of the country? Mobility difficulty? Airline problems? Is there somewhere you want to go but won't because of your MS?

July 13, 2017
 · 
Reactions

Answer Summary

Members traveling with MS shared a wealth of tips on destinations, mobility, and planning, with many agreeing that advance communication with... Read more

Members traveling with MS shared a wealth of tips on destinations, mobility, and planning, with many agreeing that advance communication with airlines and requesting wheelchair or courtesy chair assistance can save vital energy. Several members recommended cruising as a flexible, mobility-friendly option, and stressed the importance of packing lists, booking business class for long hauls, and building in rest time without guilt. A recurring theme was the need to research each country's medication policies before traveling, including carrying a detailed doctor's letter for any prescriptions and contacting the destination's embassy ahead of time.

A MyMSTeam Member

when it comes to meds it can be an issue in countries that do not accept certain pain meds/narcotics even if you have a doctor's note. Smuggling is smuggling is smuggling in many countries. Be open about what you are carrying. Make sure the doctor's note is in letter form, with original signature, place of business and phone number as well as the doctor's license to practise. Do not let anyone else carry your medications and documents. Only carry what you have been prescribed and in the amounts prescribed. If you have been prescribed methadone for pain be absolutely sure your doctor's letter states that you have been prescribed the drug for PAIN and that you are NOT a drug abuser or have a criminal past due to drugs. Methadone is very often mistaken for use for drug abuse and even though you may have been prescribed it security in other countries may presume criminality when there is none. But you can understand in the day and age a misunderstanding can get you into a whole hell of a problem not only with police but they will take away your drugs until the matter is cleared up albeit inside a jail cell. Before planning your trip look up each country you will be entering to determine drug policies, etc. and ALWAYS keep a list of closest embassies. Do Not make ANY reference to your medications on your iPhone. That is the first thing they check.

July 14, 2017
A MyMSTeam Member

I travel On a regular basis. Some trips easier than others. Personally if going to Europe or any long haul trip I find that Business class is a must. However you will determine what is best for yourself and your level of comfort. Planning now to head to New England in August then from Boston, Ireland in September. It can be exhausting even for someone who had a career in travel before MS. The key is to pace yourself before departure and when you arrive. I find beginning packing and organizing well in advance lessens the anxiety. Also using a packing list eliminates constantly guestioning if I have packed "it". Coordinating clothing using just 3 colors miixing and matching makes life easier. Scarfs and accessories can change a whole look. I also use Global Entry and a courtesy chair at all airports .Here or abroad. Many airports have long jet.ways and corridors and lines can also be long at customs and immigration. I find that by having the courtesy chair I save my leg strength and the possibility of getting caught up in the crowds. With my balance issues and gait issues this is a must. I also always have a folding cane with me. As with traveling anywhere you figure it out as you go. Don't let lack of accessibility stop you. Where there is a will you will find a way. I often cruise to places that seem "out there". This also allows you to pace yourself and return to the ship if need be. I do not any long cruise organized excursions preferring to schedule my own.. Control your own destiny as we say! Cruising you only unpack once! Most cruise ships are very mobile friendly for anyone with a disability. It sounds like you had an enjoyable trip to Iceland. My motto is "feet don't fail me now" get out and get going. It makes a world of difference.

July 14, 2017
A MyMSTeam Member

I now realize not to make an itinerary with friends or family due to extreme fatigue. I just tell whoever I travel with or visit that I might sleep while I'm there. So , it works out. They don't count on me and it's ok with them.

July 14, 2017
A MyMSTeam Member

Went to Jamaica three years ago. Packed meds in suitcases, with ice packs. Also took two syringes with me on carry on...again no problem. Had script with me.

July 14, 2017
A MyMSTeam Member

Great advice Jenne. โœ… I've never been on a cruise ship, but no doubt as my MS potentially worsens I may need to consider it as an option for future travel. I've never been to America, but it is definitely on my list. I'm all about having my travel itinerary, packing lists and schedules all well organised in advanced. I'm a big believer in the 5 P's. Prior planning prevents poor performance. Which gives me peace of mind. Love the motto. ๐Ÿ‘Œ๐Ÿฝ There are so many places I want to see, so while I can I'll be pushing myself till I can push no more.

July 14, 2017

Related Questions

View All
A MyMSTeam Member asked a question ๐Ÿ’ญ
Ohio, OH