Ocrevus
I was wondering if anyone taking Ocrevus get better after the 2nd treatment in 6 months first it made me feel worse in every way now it's been 3-4 months since the first treatment and a week ago I started to be able to not use the walker that I never had to use before Ocrevus I'm still limping at times and the left side of my body doesn't function so I take breaks and then I'm fine I don't know if the treatment is working or leaving my system and I'm scared to do another treatment if this is… read more
Hi, i got two treatments and it got me worse too. Nevertheless, this is an exoerimental or research drug, its not a treatment. Im using a rollator when leaving the house cause im afraid i wilk fall cause im imbalanced plus trip alot cause of the foot drop. Well, im seriously thinking of not taking the next dose..i will probably take a 6 months break and see how i do without it. Im eating healthier and im feeking a bit better so I'll see. Good luck on your decision and blessings!
No one knows how you are going to respond to O. This is different for all of us, Give this a try, lovelyme, statistically, this is best we’ve got. Started in 2017 and been fabulous for me. 🤪. Dxd 92, and try to walk a mile a day using trekking poles. 🧡🧡
@A MyMSTeam Member, glad you're doing well now. It's always amazing how much better some can make us feel.
I have had a good experience and I needed 3 infusion before it really before it really kick in but now I simply feel amazing.
@A MyMSTeam Member, I started Ocrevus after being on Rebif for 10 years (needle fatigue, felt like a pin cushion plus always felt like I had the flu) tried Tecfidera which was horrible enough to cause me to go back to Rebif (stomach issues and major hair loss). I used to take medication to help improve my walking (Ampyra) and had major spasticity all the time along with the lovely MS hug. I've had less relapses and my walking has improved. If you get close to your infusion time they will typically just give it to you early. The main symptoms I've had with it at the beginning was major flushing and itching which they give you benadryl and prednisone to help with the side effects. Those have lessened for me quite a bit as long as I get it put in at a slow rate. I wouldn't hesitate getting on it. I've found it to be terrific and I love that I only get infusions every 6 months. Hope this helps you.
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