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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Ocrevus

Ocrevus

I was wondering if anyone taking Ocrevus get better after the 2nd treatment in 6 months first it made me feel worse in every way now it's been 3-4 months since the first treatment and a week ago I started to be able to not use the walker that I never had to use before Ocrevus I'm still limping at times and the left side of my body doesn't function so I take breaks and then I'm fine I don't know if the treatment is working or leaving my system and I'm scared to do another treatment if this is… read more

posted about 5 years ago
A MyMSTeam Member said:

Hi, i got two treatments and it got me worse too. Nevertheless, this is an exoerimental or research drug, its not a treatment. Im using a rollator when leaving the house cause im afraid i wilk fall cause im imbalanced plus trip alot cause of the foot drop. Well, im seriously thinking of not taking the next dose..i will probably take a 6 months break and see how i do without it. Im eating healthier and im feeking a bit better so I'll see. Good luck on your decision and blessings!

posted about 5 years ago
A MyMSTeam Member said:

Just Finished my Ocrevis. Been feeling pretty bad but it also might be the UTI I Have right. I will try to update later on how I'm doing. Stay Stong.

posted about 5 years ago
A MyMSTeam Member said:

Here are two groups on Facebook for Ocrevus / Ocrelizumab

https://www.facebook.com/groups/ocrelizumab/

https://www.facebook.com/groups/438394603178145/

posted about 5 years ago
A MyMSTeam Member said:

undisclosEd, nervous as well, some with PPMS have felt better others worse. Saw my neuro today, sending me for MRI to see if eligible for Ocrevus. Feeling somewhat desperate for something as having my health decline isn't an option. Yet playing roulette isn't anymore appealing. Neuro persuading me down the path of this new med. Still have to see if meet the criteria so will continue researching in the meantime. Take step at a time lol.

posted over 4 years ago
A MyMSTeam Member said:

Seeing these negative reactions to Ocrevus is not very encouraging, especially considering the fact that I was already very skeptical about this drug getting approved by the FDA for PPMS, which is what I am diagnosed as.

posted over 4 years ago
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