Help, my R) leg is going numb randomly and if im walking i hit the dust/concrete or carpet if im lucky. 'They' say that my RRMS responds well to Rebif, is this true? I dont want to start taking Rebif and have a whole load of new side effects to put up with. Let me know what your experiences have been please? Thanks in advance
I've not tried Rebif (am only diagnosed a year myself) but I can tell you, as you know full well already being a nurse, that one persons perfect drug is another persons horror story. I was on plegridy which most tolerate quite well, but for me- it decimated my WBC count, now I'm on Copaxone with virtually no side effects, but it's not helping. You don't want to hear it- none of us do but it seems to me that at this point that the best advice is give it a go and see what happens. At this point we could count falling over as a side effect of not taking it, and that's a pretty lousy one too so why not give it a try. As for the diet idea..... preaching to the choir here. I had JUST re glutened my boys who, when young, had an odd wheat sensitivity but had out grown it. SO when folks said go GF I said "Bite me" I know exactly what that costs in time, money & taste. But I'm dying to wear acute pair of shoes again one day and I miss dancing out my frustrations in the living room so, there is a book I finally agreed to read (likely the same one you mentioned in your bio called "the MS recovery diet") which does lay out a pretty good line of reasoning, also the book "Undoctored". These together have at least given me a handle on how to figure out what might be triggers for me. my advice, get comfortable with a great snack and power thru the book with a pen underlining what's interesting and skipping what's not. And don't forget it's you whose got MS, not MS whose got you..... Keep in touch! Hugs.......
this is such a difficult question to answer, as with most MS drugs there are possible side effects, each person will react differently to each drug, you may suffer SE you may not, my approach to any new drug my MS nurse suggests is, you gotta be in it to win it, maybe it will help maybe it wont ,maybe it will cause more problems than it solves but there is only one way to find out
Rebid is powerful in many ways, as t was originally thought it would be useful with HIV. Using @Rebif put me in hospital twice.
I have been self rehabilitated since 1996 and am currently 95% Ambulatory in 2017
Thanks for your kind sharing, i really do not want to go on any of 'their' ms drugs at all, i think i might hold out for as long as i can and just use nutriction, vit D and Tumeric. Why would an ad pop up about Rebif? Scary! Are the drug companies watching this site? Conspricy theories anyone ?! Love and hugs to all :-) but not to the drug companies! B-)
We never share your personal information with anyone.