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How Do You Handle Family Or Friends With Good Intentions, But End Up Being Unreliable?

MyMSTeam asked a question 💭
San Francisco, CA
January 5, 2018
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Answer Summary

Members strongly resonated over the deeply personal challenge of managing family and friends who mean well but prove unreliable when support... Read more

Members strongly resonated over the deeply personal challenge of managing family and friends who mean well but prove unreliable when support is needed. Several members emphasized the importance of developing backup plans, whether through professional services like rideshares, medical transport programs, home care aides, or paid help, rather than depending on unpredictable loved ones. A recurring theme was learning to lower expectations without bitterness, recognizing that many people simply don't understand MS because the disease is invisible, and accepting that true friendships and family bonds often reveal themselves through consistent action rather than well-meaning words.

A MyMSTeam Member

You can only be responsible for yourself. Give others grace and know you can not control their actions. It can be painful at times but you must adjust your attitude.

January 14, 2018
A MyMSTeam Member

I'm sorry your family wasn't supportive when you needed them to be. No one can truly understand what you are going thru. Even other MS sufferers can't because we are all different. It is for this reason, I find I am less judgemental than I once was. I suppose that's one good thing that's come from this disease. I hope you have support from friends and love ones if not from your family. We all need someone to lean on now and then. I wish you only the best.

Heidi

March 19, 2018
A MyMSTeam Member

6 month after being diagnosed I was expected to be back where I was before diagnosis. I'm better now, but the people who were so unrealistic are people I don't spend time with. Most of my family is so supportive, I'm am so grateful for them!

January 13, 2018
A MyMSTeam Member

Smile, thank them for their good intentions - and then focus on people that CAN be reliable and make you laugh & bring you joy. Remember, YOU are your own best advocate. Take care of YOU. Watch something funny on TV, listen to music you enjoy.

January 6, 2018
A MyMSTeam Member

It’s hard for people to understand ms......there’s so many ups and downs to it. No matter how of I feel ,I do try to be positive. Got to be honest it doesn’t always work....sometimes we need to be alone.........from. Dawn. Xx

March 26, 2018

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