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My neuro thinks I am already in progressive stage at 31. For those with RRMS when you were first diagnosed how much time in between "relapses" was the average time for a relapse to happen? I understand everyone is different but is the average like couple months? every year?
For those with diagnosed with Progressive MS how has your quality of life diminished within a approx. timeline? Fatigue to falling, vision, ability to work, numbness ect.
The last 6 months I consistently have gotten worse… read more
@A MyMSTeam Member For my husband, he was diagnosed in 2000, h quit working in 2006, when he started losing his vision. He battled for 16.5years, before he died. He became completely immobile in 2012. The best advice that I can give you is rest, no stress, healthy diet and exercise. Do water aerobics. Being in water will get you a long way in being mobile longer.
@A MyMSTeam Member wow! thank you for your inspirational story. I also pray alot and do my devotions. currently i am on disability, this is my 3rd month and my work cant currently hold my position. which i was unable to do anymore anyways. had way to many call offs. my director was always working with me bc i had worked there for so long. but i cant physically anymore. thank goodness my health ins is covered for one year. but yes prayer does help calm my nerves and anxiety about the future. i do believe God does everything for a reason, maybe that reason is to reach out to others, or possibly work somewhere in a setting to help others with my condition. Thanks for the info and response. i appreciate it
I was diagnosed with MS in 2007. I was paralyzed on my left side from neck to toe. Two weeks later after praying with laying on hands, I had no symptoms anymore.
In 2010 my right leg was not able to lift properly anymore. New lesions were discovered. The old ones really had disappeared! Praise the Lord for the healing.
In 2014 my vision, breathing, walking got worse. I had to stop working. In 2015 I was in rehab therapy. Did me good.
Heard I would never teach anymore. I was declared 100% disabled for work
After prayer I went back to teaching.
2016 I heard RRMS had progressed into SPMS. All the fitness did not give me strength and muscles just deteriorated.
I kept on working, until this year January. I was admitted to hospital as I experienced vision problems, walking problems, bad fatigue, nausea.
They found an extra lesion in my brain stem.
So despite SPMS, there was a relaps as well.
This is all in 10 years.
I keep trusting the Lord.The Lord helped me sofar in doing things nobody expected.
My advice, never give up. Do not accept to easily the limits the people around you tell you. Decide for yourself.
Regards,
René
(https://www.therevivalfellowship.com)
@A MyMSTeam Member I am so sorry for your loss. thanks for your input @A MyMSTeam Member what other symptoms worsen for you? I feel like mine get worse when im hot or summertime/humidity? just curious
Mine seemed to happen around the same time of year. It hits hard in January and February perhaps its due to the shorter days and cold weather. It makes depression and anxiety worse along with my other symptoms.
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