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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Did You Used To Take Copaxone?

Did You Used To Take Copaxone?

Why did you switch meds? Did you have more lesions? Did you have more symptoms? My Neuro thinks that if I stopped taking Copaxone, that i wouldnt notice a difference, but i am curious to see what you think?

posted over 4 years ago
A MyMSTeam Member said:

No Copaxone here, haven't used any MS meds since 1994. I do continue to follow my own Diet & Exercise regimen which enabled me to Self Rehabilitate myself by 1994 and to remain 95% Ambulatory in 2018.

posted over 4 years ago
A MyMSTeam Member said:

I had a friend whose daughter was taking @Copaxone. She didn't like taking the shots and felt "ok". Overtime she would stop taking them and was shooting it into the sink. She didn't tell her mother and I asked her mother has she been doing and she said it seems she has leftover @Copaxone shots. Within a week after I spoke to her her daughter was in the emergency room. She had gone from no symptoms to not being able to walk or see. She had a major relapse. When her Doctor Who is my doctor met with her in the ER he was refusing treatment because she was noncompliant. She almost died. The doctor treated her with multiple meds, blood infusions, including chemotherapy. I suggest before going off your meds you discuss this with your doctor. Luckily she came back about 90%. She never misses a dose anymore. Yes some people are fine and other forms of treatment have help them but we all respond to the medications differently . Ultimately the choice is yours and I understand not wanting to take shots I did it every day for 17 years. I wish you luck and wellness.

edited, originally posted over 4 years ago
A MyMSTeam Member said:

Np TrojanOR, i have been taking Copaxone for close to 20 years. I have not had many side effects besides redness and some inflamation at the injection site but for me there have been minimal side effects.

posted over 4 years ago
A MyMSTeam Member said:

I was taking Copaxone as a prerequisite for a clinical trial I was participating in. At the time I had been given the PPMS tag. That changed when, about halfway through the trial, I had a flair. My first ever. My neuro and I decided that we needed to change my approach as it was obvious the Copaxone did not work for me. Now I am on Tysabri.

posted over 4 years ago
A MyMSTeam Member said:

I've been on Copaxone daily for 26 years. I took two years off once to see if there was a difference and l got weaker. So l went back on it. I am walking with a cane and live the rollercoaster that is MS.have RMS

posted over 4 years ago
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