“Secondary progressive MS (SPMS) is initial relapsing remitting that suddenly begins to decline without periods of remission.” Once you start to decline without remissions, ask your doctor to change your DX medical records to “SPMS without remissions”. It’s easier for social security to approve a disability claim if your medical records clearly state your disease will be progressing without remissions. Why not try @ocrevus if it might stop disease progression from where u are now to bed ridden or worse. Just do everything exactly as your doctor perscribes if you go with it.

With my financial situation and what's covered, been on betaseron for over 4yrs, Ocrevus is a med I want to try, I may qualify for Ovrevus since it was released in Canada a month ago, my opinion- it's the next best thing to stemcells

@A MyMSTeam Member

It's highly unsual to be DX'd with RRMS and 16 years later DX'd as PPMS . In fact if you research PPMS it's a class all by itself. Your DX'd with PPMS from the onset. Per my Neuro who is a MS Specialist with a major MS Research Center RRMS progresses to SPMS but very unlikely progresses to PPMS .

https://www.nationalmssociety.org/What-is-MS/Ty...

https://www.nationalmssociety.org/What-is-MS/Ty...

https://www.webmd.com/multiple-sclerosis/primar...

Mentioned Users

A MyMSTea...

I'm very happy, with Ocrevus. ☺️ I've also been on this about 6/7 years.

The progression of disease in some people goes from relapsing remitting is to chronic progressive. I would not waste any time getting started on the @OCREVUS. If you are getting worse by losing function. I would definitely start as soon as possible because once it is lost it is difficult to get back