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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Starting My First Treatment

A MyMSTeam Member asked a question 💭
Toronto, CA

Dear all, I live in Berlin, Germany. Its hard for me to connect with English speakers who have MS here and its not a commun as it is in Canada. Anyway, found a Neurologist, had my first appointment last week and she is letting me decide between for injections 3 times a week (Copaxone) and pills (Tecfidera). While the injections are a lower dose, phisically they hurt over time. And Tecfidera seems to be the most used one but depression seems to be a side effect (which I already battle) What is… read more

May 14, 2018
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A MyMSTeam Member

I’ve used Copaxone for 17 years and have no internal side effects, have had only two mild attacks in 21 years (but everyone is different). Copaxone is even better now since only 3 times a week (use to be every day). You must rotate around (I don’t do my arms, but do both hips, thighs, and both sides of stomach) to help with your skin getting firm or dented/dimpled-in with some areas. Ice can help, nurse will advise you to avoid skin irritation. That is my only small issue, otherwise no problem. Needle is very short like 1/4 in. Goes into your fat, muscle types hurts more and have longer needles. I don’t even feel it sometimes, but sometimes I hit a sensitive spot and stings a few seconds. I administer it with an Autoject. Just load and push button and it does the rest. Tried Tecfedera and didn’t like my face getting warm and red (flushing) for 20 min. twice a day and it affected my legs/walking in cold weather. Felt like walking through mud on occasion. Does that for some people according to an online search. However, my brother does fine with it (takes twice a day), he does get the flushing though. Hope this helps!

November 21, 2019
A MyMSTeam Member

I've finally found the med for my MS DMT. KESIMPTA. This one does lower the immune system, buy don't they all? It's an easy injection once a month . I'm feeling so much better already. Copaxone doesn't even work from what I experienced. It's way too weak and it's old news. There's a wonderful support system for folks who need that with KESIMPTA. 🥰

December 9, 2023
A MyMSTeam Member

I'm awaiting to be cleared for Mavenclad. It's a newer DMT for MS. It's in pill form. And you only have to take it a very short time. I will have a coach with MS Lifeline. I am waiting for my neurologist to get the results back from the lab.

July 8, 2023
A MyMSTeam Member

@A MyMSTeam Member, Melinda 44 summed it up perfectly

July 7, 2023
A MyMSTeam Member

I was on Copaxone in 2012 my very first Ms med. I was allergic to the medication. All that training to have a nurse come out and teach me how to inject myself. I knew something was wrong the way I felt after giving myself about three injections. I didn't feel any better I felt faint and was itching and started to break out on my arms and legs. I called the doctor.I was told to stop using it immediately. So then I was put on Tecfiderma not to long after. The scans showed it didn't work for me either. So what im saying is somethings work for some but not for all. All MS people and diagnosis are different. But we are all here to help on your journey and the decision and outcome that follows be blessed.

July 7, 2023

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