Connect with others who understand.

sign up log in
Resources
About MyMSTeam

Connect with others who understand.

sign up log in
Resources
About MyMSTeam
Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Starting My First Treatment

Starting My First Treatment

Dear all, I live in Berlin, Germany. Its hard for me to connect with English speakers who have MS here and its not a commun as it is in Canada. Anyway, found a Neurologist, had my first appointment last week and she is letting me decide between for injections 3 times a week (Copaxone) and pills (Tecfidera). While the injections are a lower dose, phisically they hurt over time. And Tecfidera seems to be the most used one but depression seems to be a side effect (which I already battle) What is… read more

A MyMSTeam Member said:

I’ve used Copaxone for 17 years and have no internal side effects, have had only two mild attacks in 21 years (but everyone is different). Copaxone is even better now since only 3 times a week (use to be every day). You must rotate around (I don’t do my arms, but do both hips, thighs, and both sides of stomach) to help with your skin getting firm or dented/dimpled-in with some areas. Ice can help, nurse will advise you to avoid skin irritation. That is my only small issue, otherwise no problem. Needle is very short like 1/4 in. Goes into your fat, muscle types hurts more and have longer needles. I don’t even feel it sometimes, but sometimes I hit a sensitive spot and stings a few seconds. I administer it with an Autoject. Just load and push button and it does the rest. Tried Tecfedera and didn’t like my face getting warm and red (flushing) for 20 min. twice a day and it affected my legs/walking in cold weather. Felt like walking through mud on occasion. Does that for some people according to an online search. However, my brother does fine with it (takes twice a day), he does get the flushing though. Hope this helps!

posted over 2 years ago
A MyMSTeam Member said:

My daughter does infusions once a month better side effects she says she has a lot more energy

posted about 2 months ago
A MyMSTeam Member said:

What drug is she getting on infusion days?

posted about 2 months ago
A MyMSTeam Member said:

My daughter refused everything but will start infusions tomorrow and see what she thinks. She does keto and long walks permitted been having cramps in her right thigh stretches before walks but some days stressful she stays positive. Has mine and 3 children and many friends support.. Blessings to you.

posted 3 months ago
A MyMSTeam Member said:

I was on Tecfidera and never had depression. I seemed to have decreased mobility, so they switched me to Gylena (also a pill). Only a few weeks in so I have no idea how that will work.

posted about 4 years ago
Already a Member? Log in