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Does Anyone Know Anything About Lemtrada Infusion Medication

A MyMSTeam Member asked a question 💭
Elmwood Park, NJ

I'm going on Monday for this infusion called Lemtrada on Monday and was told to expect the worst side effects. Infusion for one week 1st year, than 3 days 2nd year. So if anyone knows anything thing please share because I'm really concerned. Thanks

May 31, 2018
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A MyMSTeam Member

My daughter had the complete course of Lemtrada two years ago. She now says she doesn't think of MS at all and feels really great. She had no side effects. She was in the early stages of MS though so maybe that makes a difference because she hadn't had any disease modifying drugs. She is now back running 10k races, she lives in Australia and copes very well with the heat. Hope you have such a positive outcome.

June 3, 2018
A MyMSTeam Member

I start Lemtrada this month. When I was told by my neurologist she wanted to put me on it,I was nervous and scared.She gave me a book on it.When I read all about it and then I wasn’t so scared.

June 1, 2018
A MyMSTeam Member

Tried to read your story but shows “SheenaEydmann is a 67yr. old woman, and was diagnosed with Secondary/Progressive MS in 1981.”
Motherwell North, Lanarkshire, United Kingdom. If you and daughter would update you stories on this site i believe several with MS would benefit greatly. What type of MS did your daughter have and had mri’s showed lesions or were there symptoms that are now completely gone. Early in the disease means? I’m glad your daughter got over MS and that @Lemtrada worked like it did. 🙂 Had your daughter lost the ability to run as many with MS do then regained it after Lemtrada?

June 3, 2018 (edited)
A MyMSTeam Member

Video at 18:20, 19:55 minute marks mention Lemtrada® (alemtuzumab)

https://m.youtube.com/watch?v=J4prsO-FDzs

https://www.lemtrada.com

http://news.genzyme.com/press-release/treatment...

I like what I’ve read about lemtrada and how it works against MS. You basically get a new and stronger immune system that won’t attack your nervous system. It’s apparently not the #1 drug choice of neurologist because of the side effects. If I was going to start lemtrada I would ask a lot of questions about its side effects. One question would be for the MS specialist and it would be, have you treated anyone with lemtrada that has gotten side effects and how were the side effects treated? Did the treatment include a lemtrada washout or is that even possible? Is there any literature/data showing lemtrada and the percentage of thyroid, cancer or infections versus persons not on lemtrada? How safe is lemtrada compared to other ms drugs (ask for documents)? Ask why the video ^ shows that lemtrada is rarely used by the Colorado The Rocky Mountain MS center?
See video at minute mark at 19:55. I think lemtrada is a good drug choice, but are there any charts showing that cancers, other autoimmune diseases or infections associated with lemtrada will trend lower after year 5? Basically, will the lemtrada side effect high risks be a possibility till the end of time?

https://m.youtube.com/watch?v=nBiAW4mxCNo

https://m.youtube.com/watch?v=2gkfei0hfdM

https://m.youtube.com/watch?v=cZRGp-y3wTU

See other YouTube videos related to lemtrada (several)

June 2, 2018
A MyMSTeam Member

Can you ask your doctor for ocrevus I been on copaxane then every time I had lesions they changed the medication ocrevus worked good for 5 years now I am on Mavenclad tablets

February 21, 2024

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