I was on Copaxone for many years, but when my MS turned to SPMS , I stopped taking my Copaxone.
I sometimes wonder if I should have continued with it anyway? Or perhaps find another neurologist?
Answer Summary
Members responded to a question about stopping Copaxone after transitioning to SPMS, with many sharing that their own care teams supported... Read more
Hello suziesunshine i always try to follow my gut feelings. it turns out better for me. however dont feel like you did something worry because ms has a mind of its own. you did what you thought was right. so i think you shouldn't be hard on yourself and i know your a good person and God knows it even better. hugs and love and happiness i pray for you.
I also stopped Copaxone when I moved to SPMS. I discussed this with my Neuro team.....DMT is designed to reduce the incidence of relapses....with SPMS there are no longer any relapses, so there s no point in taking medication designed to slow them down!
While I was scared to stop taking Copaxone, it has made no difference at all to my daily welfare. I do not miss auto injecting everyday!
Don't worry, go with the guidance.
I have taken Copaxone for 6 years. It is the only MS medicine I have been on. We have seen shrinkage in lesions in my spine and it is keeping my brain lesions inactive. This is only my opinion but, I would try to find another Dr. that specializes in MS. It took 3 Dr's to give me a diagnoses. I don't know if the Copaxone will work for SPMS. But, it is keeping me living a manageable life. I still have fatigue issues, and numbness issues.
But, I am thankful I can still walk on my own.
I hope you have a blessed day.
Thanks so much to everyone, I really appreciate it!
Some MS medication information;👇
https://m.youtube.com/watch?v=3tFYDPPwqpA
https://m.youtube.com/watch?v=3EdsFDI-8R0
https://m.youtube.com/watch?v=cjdj96JcfWw
https://m.youtube.com/watch?v=sG1DPWKW99E
https://m.youtube.com/watch?v=JEgRGUqaSZw
https://m.youtube.com/watch?v=lDvb6tVCxOI
posted 1 minute ago