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I'm currently working 2 jobs. One that is my full time job the other is a work from home part time job. As of late, I have been waking up super early (my choice) to get a head start on my part time gig before I head to work. I've been doing this for about 3 weeks. Yesterday, I was feeling incredibly weak to the point where I could barely pick up my feet when I walked. I ended up going to sleep early (8pm) and feel so much better, so I think I was just sleep deprived. Has anyone else dealt with… read more
Pre-MS I worked 80 hour weeks & rarely got more than 5 hours sleep. I would stay up late working and get up super early to work. Even as a child I would stay up reading very late and in our house naps weren't allowed, so I grew up totally sleep deprived. I honestly believe that is a big part of what is happening with my body now. When I was diagnosed almost 3 years ago, it was determined that I had serious long-term sleep deprivation and a high level of chemical toxicity. At first I made small changes but was still working a TON and not really sleeping. Losing my vision 9 months later to a severe case of optic neuritis was the wake up call I needed to make some serious changes. I was forced into early disability retirement from the O.N. (can no longer be around fluorescent lights due to permanent damage to my optical nerve so I could no longer coach teachers). That was a tough transition at first. A lot of my sense of purpose was gone. But over time, I have learned to embrace my MS. Nothing else would have gotten me to stop and start paying attention to my physical pain and horrible lack of self-care. Nowadays, I actually sleep 8-10 hours a night (thanks, CBD/THC!) and that really (!) helps me feel my best. On the rare nights where I don't get to take my nighttime meds and I don't sleep well, I consistently feel crappy the next day, so yes, for me, for SURE, sleep matters. If you think it matters for you (and it's highly likely it does more than we think!), take care and get some extra Zzzz's. I thought my work was SO important - I mean really, what's more important than educating kids ?!?!?! - but now I have learned the hard way that we can't take care of others unless we take care of ourselves. It's the "put the oxygen mask on yourself first before assisting others" that I think of every day now..... XX
sleep is when the body heals. it is imperative that we with MS get enough sleep!
Sleep is critical for MSers. That's when the body is trying to repair itself.
Stress & lack of sleep are very bad fir my health
@A MyMSTeam Member I can't take credit for the term.....CalStrs said it to me - I had to disability retire with them and all of their forms started at age 50 so they had to create a new box for me! 🤪
Thanks for sharing your work & care history. It's fascinating to me how many of us share so many aspects of that....seems to me like the answer to this disease has to be related!
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