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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Been Diagnosed With Ms That Does Not Have A "typical" Brain Lesion Pattern?

A MyMSTeam Member asked a question 💭
Hershey, PA

Still waiting for definitive diagnosis because my brain lesions are not the typical ms patterns nor are my symptoms "typical". Anyone else have that?

December 25, 2018
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A MyMSTeam Member

Lesions in the brain, I was told, can appear on mri’s but also disappear again as inflammation goes, so two different consultants in my case came to two different conclusions....
Depending on where you get ‘hit’ you experience the impact on your ability to function. Sometimes improves, sometimes not. MS is a mystery (I could live without!) x

December 25, 2018
A MyMSTeam Member

I was told that I may have MS because I have brain lesions, but they could be nonspecific. I was told to repeat the MRI in 3 months.If new lesions develop in 3 months, it is most likely MS.

December 27, 2018
A MyMSTeam Member

That is my understanding as well. Just wondering why then the ms specialist at Johns Hopkins said that

December 26, 2018
A MyMSTeam Member

Thier is no normal Ms. It effects the brain. Your side effects and as randon as the placment of your lesions. That is way it gos undiagnosed in so many people for years

December 25, 2018
A MyMSTeam Member

I see that the lesions can grow and shrink but not disappear. Size of lesion depends on the amount of damaged tissue during and after a flare. That is why they have to keep putting me on steriods so I dont loose my vision as fast. Controlling the swelling, Keeps myself from eating myself as fast.

December 25, 2018

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