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Has Anyone Been Diagnosed With Ms That Does Not Have A "typical" Brain Lesion Pattern?

Has Anyone Been Diagnosed With Ms That Does Not Have A "typical" Brain Lesion Pattern?

Still waiting for definitive diagnosis because my brain lesions are not the typical ms patterns nor are my symptoms "typical". Anyone else have that?

posted almost 4 years ago
A MyMSTeam Member said:

Lesions in the brain, I was told, can appear on mri’s but also disappear again as inflammation goes, so two different consultants in my case came to two different conclusions....
Depending on where you get ‘hit’ you experience the impact on your ability to function. Sometimes improves, sometimes not. MS is a mystery (I could live without!) x

posted almost 4 years ago
A MyMSTeam Member said:

I was told that I may have MS because I have brain lesions, but they could be nonspecific. I was told to repeat the MRI in 3 months.If new lesions develop in 3 months, it is most likely MS.

posted almost 4 years ago
A MyMSTeam Member said:

That is my understanding as well. Just wondering why then the ms specialist at Johns Hopkins said that

posted almost 4 years ago
A MyMSTeam Member said:

Thier is no normal Ms. It effects the brain. Your side effects and as randon as the placment of your lesions. That is way it gos undiagnosed in so many people for years

posted almost 4 years ago
A MyMSTeam Member said:

I see that the lesions can grow and shrink but not disappear. Size of lesion depends on the amount of damaged tissue during and after a flare. That is why they have to keep putting me on steriods so I dont loose my vision as fast. Controlling the swelling, Keeps myself from eating myself as fast.

posted almost 4 years ago
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