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How Safe Is Taking Rituxan

A MyMSTeam Member asked a question 💭
Sylmar, CA

I’m in the mix of changing my MS medication. Been off meds since December. I’m not a fan of injections anymore. Rituxan was recommended even though the JC virus was positive with me. The more I read about this is scary. Is there anyone else going through this or so more questions I should be asking.

April 15, 2019
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A MyMSTeam Member

I was scared of taking my first infusion of Rituxan though I didn't know why. You are constantly monitored during your first infusion. I just had my 5th infusion yesterday. I know what you mean about injection meds. I stopped too as I often felt worse post injection so I finally asked why and got a really weak response. Within hours after taking Rituxan I actually felt better. I could stand longer and felt more confident. I read all the potentials that may happen but most DMDs have a bevy of could go wrong things. We all have different reactions to MS meds but I'm so glad I tried Rituxan. One of my "symptoms" of MS is that I never got sick. I mean the last time I remember being sick before Rituxan was when I was 16 and that was a few years ago. After I took Rituxan, I felt better then caught a virus. I know you think, "poor you", but Rituxan allowed me to fall ill again and that was fantastic!! I don't have a bad thing to say about Rituxan

April 16, 2019
A MyMSTeam Member

JimmyB, thanks for rhat. Yes, Im scared because of the risk of catching Covid while on Rituxan. The other potential side effects dont bother me as much as Covid infection. But great news about the "getting sick" part. Me too, actually. Not even the flu! Lol!

July 16, 2021
A MyMSTeam Member

Don't know about that one but I'm at the point where I refused to put any more chemicals in my body. I'm going with the total totally natural routeb now.

April 18, 2019
A MyMSTeam Member

Yes..I get my 1st dose in May. Detoxing from Gilenya the last 3 weeks. Ocrevus is Retuxan basically. Retuxans patent ran out before it got approved for MS use...they made a couple changes and boom! It was renamed and selling for tons more cash as Ocrevus. Retuxan/Retuximab..It's not chemo. Its used in conjunction with some chemo drugs for some cancers. It doesnt cause chemo effects..but I'm not sure what effects it will have on me. Im afraid too, but doing what I've been advised and told it is better than what I was on. I feel ok usually. Just dont want that to change.

April 15, 2019 (edited)
A MyMSTeam Member

There's a rituxan Facebook site that's great

April 15, 2019

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