It would be an accomodation, you probably wouldnt feel like it, but a standing desk? It goes up and down so you can sit too. They are in my office and I dont have one. Its called a Vari-desk. I think.

Oh dear, I'm not intending to take sides of any kind. I don't believe I explained myself well. My fatigue is not, and has never been, that severe in a constant way, and that sort of fatigue has never lasted for more than 48 or so hours. But it has only occurred when I have pushed myself beyond certain limits with sustained (and, for me, intense) periods of activity/exertion. That's what I intended to say--that pushing oneself too hard may have terrible effects on some people, at least in my own experience, but not that isn't good to push against fatigue. The fatigue I tried to describe was/is very extreme indeed and simply demanded sleep--I couldn't not sleep; it was/is almost like I'd been injected with some powerful anesthesia. But I would come out of it and I have always known I could and must get up again and keep moving. If I experienced fatigue such as this continuously, I would definitely belong in a hospital and suggest anyone fatigued in that way, continuously, get medical help immediately! I hope this explains my remarks a little better.

Slimeball--I don't like calling you that!--but your experience of fatigue is certainly different from mine. I get fatigue from forced activity that is like a sleep inducing drug injected straight into a vein. I CANNOT stay standing, often sleep and simply can't wake up--though in my dreams I'm struggling to--sometimes for as long as 48 hours (During such periods I will drink whole glasses of water and stagger to the bathroom to pee every 12 to 14 hours, but that it.) When I had children, trying to avoid such complete collapse by not forcing myself to carry on despite debilitating fatigue became imperative to their well-being. Continuing to move is, i believe, important, but in the past I have felt intensely frustrated and sometimes depressed when advised by people to just push through my fatigue. I think everybody's experience may be different. I'm mostly responding to your post in case anybody reading our exchange feels more the way I do and less like you do in their fatigue battle. I am truly glad you're able to keep going against such a powerful adversary. And I do think I have probably yielded too much ground in recent years, but I'm not entirely sure of that. Three days of enforced work on necessary bureaucratic tasks outside my house left me plastered to a friend's bed, 40 miles from home. I was too tired to speak or pick up a phone, to ask anyone--a doctor, my friend in the room next door, or my husband--if the fact that my heart, for ten minutes and counting, had felt like a fat fish flopping around in my chest (and not flopping rhythmically) was anything to be concerned about. I'm used to "palpitations" but this was nuts. Yet the only thing I was capable of doing was giving my body and its parts a rest: letting it fall asleep for as long as it wanted. everything worked out all right. Good luck. sounds like you're fighting the good fight and doing it well.

When working, I've never been able to work 8 hour days for very long. Flexible work, much of which can be done at home, is the only thing I've found that worked in the long run. I used Provigil, but ended up on Adderall, 10 mg tabs up to four times during the day. Long acting stimulants just made me feel lousy, but the control a short acting stimulant provided really helped. Just watch your blood pressure.

Thanks everyone ❤️ Back to the neuro tomorrow for round 3 of Tysabri. I’m going to follow up with her while I’m there. Wish me luck!