My mom keeps being up stem cell transplant for my ms. She had a friend that went and lived in Canada and had it done. She was stage 4 from what i understood. She was really bad off. She's now doing great. Was wondering if anyone else knows about it. I looked into it and didnt find much. She really wants me to consider it. I'm her youngest.
For some it works and others it doesn't, it's basically a glorified bone marrow transplant. They give u drugs that make the cells come out into your blood stream, collect them, harvest them, freeze them, give u a course of chemotherapy to destroy all other immune cells then give you all the cleaned out cells back into yoir body. Your basically irradiating your old immune system and starting with a brand new one. It's by no means a cure for MS and I'm clinical trials alemtuzumab which they call a mini stem cell had much the same outcomes.
I will give my mom a hug from you. Today she's taking care of my sister whos doing chemo. My moms the best.
Thank you. I talked to my neurologists a couple times about it and he said sure but theres alot of side effects that can happen. And that if the meds im on now stop working then i deff should think about it. Ive had so many extreme side effects of most of the meds i was on before. And theres only 1 other out there that i can take if this stops working. I had few allergic reactions to a couple whoch rules out most meds. But my family are all looking into it. But i refuse to let my mom pay for it. She has enough on her plate after her house caught fire a week before Christmas and they lost so much and have to rebuild. My uncle had stem cell therapy for something i think it was his knee and he did great.
I know one person that had it and very mixed results,good at the start but reverted over time
It sounds like your mom wants to find a way to make her baby ‘well’ again! Understand that she is motivated by love and concern for you! I suggest you include her in your MS research and stem cell research. Tell her that you need more facts before committing to such a radical treatment and thank her for trying to find a cure. I suggest you both take a year to research stem cell therapies, their outcomes, side effects, what it involves and that you ask your neurologist along with another 1-2 neurologist what they would recommend and why (if possible have your mom come with you to the dr appointment so she can hear what the doctors say.) One of those neurologist should be a MS specialist. Since your mom is willing to pay to give you the stem cell therapy, her paying out of pocket for you to see a MS specialist should be small in comparison.
*I asked my neurologist about it and he said there was not enough information/trials out there to know if it is worth it; so no he wouldn’t recommend it. I am currently on Tysabri and it is working.
*P.S. give your mom a hug!