Is seems I know why I am so tired all the time but what do you do for your fatigue? And who else doesn't sleep good throughout the night and what do you recommend or any advice. I'm new to having MS and just trying to find some relief. Thank you for any advice , have a great day everyone!!
Hi there @A MyMSTeam Member. Sadly I've just accepted the fact that I'm just gonna be tired, not exactly sleepy, but deeply fatigued. For me, it's almost like a lead blanket descending on my body making movement difficult - being in a hurry is a thing of the past. I do have a few hours or relative energy in the early morning hours, so I try to get everything that I can done in the morning. Because I know that after 12 noon, I'm useless. I've tried Amantadine, ProVigil, NuVigil, various vitamins, etc. but nothing has been noticeably effective. I have to say that Ampyra was very effective, not only for walking but also for fatigue, but I had to stop taking it because I had the side effect of seizures - my driver's license was suspended for a year because of them. Tell your neurologist -- maybe one (some) of those drugs will be effective for you.
And I don't sleep through the night because I'm up so many times because I gotta pee. Thinking of getting a bed pan...🙄!LOL!
Hang in there.
Fatigue is just one of those things we all are gonna have to manage/deal with the best we can with MS. Some days I'm fine, others I wonder if I'm going to fall asleep when I drive home for the day. I have a horrible time sleeping as well! I've tried basically everything. Weighted blankets, tea before bed, meditation, etc. Smoking really REALLY helps me but I cannot smoke/use it as I'm in a program for school right now, even if I have a medical card. So, if you can, I suggest looking into a medical card. If not, maybe try to take some homeopathic measures into effect. If nothing works, I suggest going to your neurologist to see if they can prescribe you something.
Hope this helps!
I, use Edibles (Marijuana) that My Husband makes Me or CBD Oil and I sleep like a Baby. Years ago I started using this because I was Hurting so bad and was Blessed not only with a great Nights sleep and no Pain, Muscle Spasms and I can empty out My Bladder before going to Bed.
I think CDB oil would be the best option. A friend of mine has a tumour in his brain and gets heavy fatigue just by walking ten steps. He use CDB and he never smokes, but he can do much more now than before he started with CDB.
You dont feel anything with CDB, specially if you smoke regulary.
I smoke every day, it has its positives and negatives.
Do what is best for you, not whats best for others.