Everyone has been so kind and helpful and I appreciate all you MS veterans advice! I underwent my first 3 day steroid infusion last week. The MS clinic is almost trying it for diagnostic purposes to see if I respond as I don't have a confirmed diagnosis yet. My most bothersome symptom is a wonky left arm which is pretty constant (nerve pain in chest and down arm, numbness, weakness and hand is clumsy, I get a sensation of hot water on my chest in one spot) and… read more
Maybe this will help your anxiety over your improvement time. During my 25 day hospital stay, after several bags of IV steroids, I was able to see improvement in my walking, numbness and cognition. Over the next 6 weeks there was much improvement. Then over the next couple years, the improvement has been slow, but I guess it depends on the amount of work you are willing to put into getting your life back. Look up Trevor and Misti Wicken at theMSgym.com. If you follow only his free program, the exercises, etc. will give you marked improvement in all areas affected by your MS. MS is a terrible disease to have to live with such uncertainty. Trevor is a physical therapist specializing in people with MS and he and his wife are remarkable people who have the knowledge and the patience to help people like us. It all takes time - patience is a virtue, you know. Best wishes to you. Hopefully you'll see improvement in all areas of your life. Hugs
I went numb on my whole left side for about a month (before my diagnosis) then did 5 days of steroids in the hospital and the feeling slowly came back after a couple weeks. You'll get to feeling better I'm sure of it! Glad to have you here with us JillCp. Relax and get ready to start feeling better! 😀
First, I don't think it matters if others have it "worse" than you. What matters is you. Just because others don't walk doesn't make your numbness issues less real. Next, I don't remember needing to wait that long for the results from steroids. I do remember gaining weight, not being tired when I should have been tired and needing to eat constantly but they worked on my issues.
Thank you that is very helpful and I will look up the trainers you mention. You are correct on the uncertainty part. I had a conversation with my PCP the other day and he said you are just going to have to learn to live with uncertainty. Trying to wrap my head around how to do that, I'll get there eventually! This is all new waters to me, 41 years of good health and now I feel like I'm a rusty old car!